Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,531 members • 66,588 posts

All posts for March 2020

Hair loss

Good morning, Is anyone else on Pregabalin? If so are you losing hair?

Topcat64

•4 years ago

17 Replies

Lyrica/Pregabalin Withdrawal?

In 2013 my GP put me back on 75mg x2 a day of Lyrica after I started getting electric tingling over my nose area. I'd been on them before at 600mg daily and...

In 2013 my GP put me back on 75mg x2 a day of Lyrica after I started getting ele...

medsoph

•4 years ago

7 Replies

Medication help

Hi there, I am new to this site. Looking for a medication that does not make you gain weight? Any ideas? Thanks

Hi there, I am new to this site. Looking for a medication that does not make yo...

Fibromum55

•4 years ago

3 Replies

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What's your view ???

So I'm not aware of doctors officially diagnose fibromyalgia mine certainty did not however he mention it possible as all tests were coming back clear however...

So I'm not aware of doctors officially diagnose fibromyalgia mine certainty did ...

Hidden

•4 years ago

21 Replies

Alcohol & Fibromyalgia

Can the odd glass of wine or rum & coke make Fibro pain worse? Is it safe to drink any form of alcohol while taking Lyrica etc?

Can the odd glass of wine or rum & coke make Fibro pain worse? Is it safe to dr...

Hidden

•4 years ago

8 Replies

Joke

Just to cheer up I said to my wife the other day give me a compliment I said I looked in the mirror and I looked awful fat and dull so my wife said I will...

Just to cheer up I said to my wife the other day give me a compliment I said I ...

Flyby7

•4 years ago

2 Replies

Aching

Feeling tired today ach just feel done in didn't want to get out off bed today but got up and my wife and I took our little dog for a walk he is a shitzu a...

Feeling tired today ach just feel done in didn't want to get out off bed today ...

Flyby7

•4 years ago

7 Replies

Support Groups in Northern Ireland

Does anyone know where I can find out is there is a local support group for Fibromyalgia in Northern Ireland.

Does anyone know where I can find out is there is a local support group for Fibr...

Hidden

•4 years ago

3 Replies

Ibs xx?

Hi guys when I got diagnosed the Rhumatologist also said I've got ibs as people with fibromyalgia get digestive issues well last night I ate a lot of brussles...

Hi guys when I got diagnosed the Rhumatologist also said I've got ibs as people ...

Hidden

•4 years ago

17 Replies

Does anyone get red skin after showering or hot?

I get a red rash on my cheeks nose and forhead after I shower or bath every time. I have only just been diagnosed with fibro, I didn't know of this could be...

I get a red rash on my cheeks nose and forhead after I shower or bath every time...

Penguinsmall

•4 years ago

14 Replies

Is this a flare up

Morning all. The sun is shining, its a beautiful day and I am miserable. I have read threads here and thought I was very lucky, my pain was not as severe as...

Morning all. The sun is shining, its a beautiful day and I am miserable. I hav...

margaretpaloma

•4 years ago

15 Replies

And the view in my mirror .

Aghhhhh!!!

Hidden

•4 years ago

4 Replies

Goooooood Morning friends.

I hope that everyone is doing ok this morning. Amazing but the sun ☀️ is shining outside my window for the second day in a row. The birds 🐦 are chirping away...

I hope that everyone is doing ok this morning. Amazing but the sun ☀️ is shining...

Hidden

•4 years ago

20 Replies

Painful to touch??

Hello to you all, still only have diagnosis for Cadasil, please Google, but have had a couple of Drs mention Fibromyalgia when I was in Emergencies... my...

Hello to you all, still only have diagnosis for Cadasil, please Google, but have...

Bools33

•4 years ago

1 Reply

Body Pillows.

I have real problems getting comfortable at night. Obviously like most people with fibromyalgia sleep is not a guaranteed commodity. I have come across the...

I have real problems getting comfortable at night. Obviously like most people wi...

Badbessie

•4 years ago

19 Replies

Which Drugs Work Best?

I’ll keen to know what drugs you guys are taking and are they helping? I’ve only been diagnosed two days ago (but reckon I’ve had it for years) when I went...

I’ll keen to know what drugs you guys are taking and are they helping? I’ve on...

Hidden

•4 years ago

12 Replies

PIP Assessment

Has anyone has a face to face appointment cancelled and then never had to goto one, or does everyone have to have a F2F ?

Has anyone has a face to face appointment cancelled and then never had to goto o...

Namtox

•4 years ago

7 Replies

Need advice please 😓

Hi all - been diagnosed with fibromyalgia this year. I had rheumatoid arthritis diagnosed in 2004 a And received the biological drug tocilizumab every 4 weeks...

Hi all - been diagnosed with fibromyalgia this year. I had rheumatoid arthritis ...

tamnwill

•4 years ago

5 Replies

Speach issues.

When I got my fibromyalgia diagnosis in August 2018, (also chronic fatigue syndrome a few months earlier), the doctor was rather offhand about it. He said I...

When I got my fibromyalgia diagnosis in August 2018, (also chronic fatigue syndr...

Affrael

•4 years ago

62 Replies

Upcoming Pain Clinic Appointment??

I’m really nervous about an upcoming appointment at the Pain Clinic.. as not only am I nervous about what to expect, but I also struggle with agoraphobia.....

I’m really nervous about an upcoming appointment at the Pain Clinic.. as not on...

KittyKat37

•4 years ago

5 Replies

Fibromyalgia queries?

Hi their, still awaiting other refferals(respiritory and neurology) I was told last week by msk team they would have diagnosed me with fibromyalgia if all was...

Hi their, still awaiting other refferals(respiritory and neurology) I was told ...

Gg4l

•4 years ago

24 Replies

Pain query

I’m beginning to suspect I might have fibromyalgia. Does it move around the body (ie shoulder, hands & legs) and is this normal? I was told a couple of years...

I’m beginning to suspect I might have fibromyalgia. Does it move around the bod...

Ms_Vonnie

•4 years ago

9 Replies

Low immune system fibro

Does anyone else with fibro suffer with constant bouts of ilness for me iv been soo poorly its been one thing after another since christmas

Does anyone else with fibro suffer with constant bouts of ilness for me iv been ...

JDiva93

•4 years ago

13 Replies

Employee Appreciation Day 2

Below are Morag and Des who work in the head office. Morag is the office manager, whereas Des is the chair of the charity who does so in a volunteer capacity.

Below are Morag and Des who work in the head office. Morag is the office manager...

FMA_Reece

FMA UK Staff•4 years ago

4 Replies

Employee Appreciation Day 1

Today is #EmployeeAppreciationDay and we'd like to highlight the work that our staff and volunteers do in helping the charity run. Below are 3 staff members...

Today is #EmployeeAppreciationDay and we'd like to highlight the work that our s...

FMA_Reece

FMA UK Staff•4 years ago

6 Replies

Fribromyalgia

What started of a chest infection I feel not right ever since the 2 lots of antibiotics,x Ray's, lots of phlegm bringing up which I put down to 2 months of...

What started of a chest infection I feel not right ever since the 2 lots of anti...

Gg4l

•4 years ago

2 Replies

Another day !

Another day we fight the good fight we ignore the lies and negative thoughts and replace them with facts and truths were here we survived we can do all things...

Another day we fight the good fight we ignore the lies and negative thoughts and...

Hidden

•4 years ago

13 Replies

Sleeping techniques

Had anyone got any advice on sleeping at night? Iv tried all sorts, warm bath, night time tea, sleep music and nothing’s working my minds in over drive 😔😔

Had anyone got any advice on sleeping at night? Iv tried all sorts, warm bath, n...

Becks2020

•4 years ago

21 Replies

Who can relate to this statement ?

Namtox

•4 years ago

4 Replies

Tea for me

David has been to see Neurologist this morning thanks to our wonderful pain consultant's urgent referral. Wants an up to date MRI as last one taken in August...

David has been to see Neurologist this morning thanks to our wonderful pain cons...

Bananas5

•4 years ago

16 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for March 2020

Hair loss

Lyrica/Pregabalin Withdrawal?

Medication help

What's your view ???

Alcohol & Fibromyalgia

Joke

Aching

Support Groups in Northern Ireland

Ibs xx?

Does anyone get red skin after showering or hot?

Is this a flare up

And the view in my mirror .

Goooooood Morning friends.

Painful to touch??

Body Pillows.

Which Drugs Work Best?

PIP Assessment

Need advice please 😓

Speach issues.

Upcoming Pain Clinic Appointment??

Fibromyalgia queries?

Pain query

Low immune system fibro

Employee Appreciation Day 2

Employee Appreciation Day 1

Fribromyalgia

Another day !

Sleeping techniques

Tea for me

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