Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,078 members • 27,705 posts

All posts for November 2022

Cleveland Clinic and UCSF (more to follow) have started charging insurance for answering patient questions on patient portals

So far, I'm aware of these two: https://www.ucsfhealth.org/mychart/medical-advice-messages...

So far, I'm aware of these two: https://www.ucsfhealth.org/mychart/medical-advi...

Tall_Allen

•2 years ago

35 Replies

White count lower 3 1/2 weeks after final chemo than 1 week after - WTF?

Had my 6th & final chemo (docetaxel) on Oct 24; one week later my WBC was 3.1. Previous 1 week post chemo white counts were in the 5 - 6 range. Been self...

Had my 6th & final chemo (docetaxel) on Oct 24; one week later my WBC was 3.1. P...

rsgdmd

•2 years ago

3 Replies

Enzalutamide may have synergistic effect on Lu-177 Pluvicto treatment

found these recent published studies that indicate short-term use (2 weeks) of enzalutamide prior to Pluvicto treatment increases PSMA expression in PC cells,...

found these recent published studies that indicate short-term use (2 weeks) of e...

Kayakbob

•2 years ago

6 Replies

Want to take advantage of all our features? Just log in!

When you take Meds that impact other meds....

I don't see this discussed often or maybe I'm just missing them. I was recently prescribed Erleada so I leave a link below specific to that drug. This is...

I don't see this discussed often or maybe I'm just missing them. I was recently...

swwags

•2 years ago

1 Reply

First month on Xtandi - the good and the not so good

Given all the horror stories I've read on here about the SEs of Xtandi, I was very apprehensive about taking it. Notwithstanding that, I decided to go straight...

Given all the horror stories I've read on here about the SEs of Xtandi, I was ve...

Benkaymel

•2 years ago

21 Replies

Lu177 Not Working

I’m so discouraged, the nurse just informed me yesterday that my Dad’s PSA is increasing on Lu177 and I don’t think my dad understands that this means it is...

I’m so discouraged, the nurse just informed me yesterday that my Dad’s PSA is in...

Here4Dad

•2 years ago

14 Replies

Lupron and High Dose Brachytherapy

I had a biopsy that shows recurrent cancer in both seminal vesicles. The recommended treatment from MSKCC is 4-6months on Lupron and High Dose Brachytherapy. I...

I had a biopsy that shows recurrent cancer in both seminal vesicles. The recomme...

Trying-Times

•2 years ago

21 Replies

Pseudo-science means pain and suffering for those who need to think critically about the remedies presented below.

at link - https://m.facebook.com/story.php?story_fbid=pfbid0iLedZ5JgfP4HXMk27aFM2R3M9Z4h6muTWXa5rJALKThbo1geDMzCF9MpaDmdTow4l&id=100086773579706

at link - https://m.facebook.com/story.php?story_fbid=pfbid0iLedZ5JgfP4HXMk27...

kainasar

•2 years ago

7 Replies

Zytiga advise on best time to take.

Can you please let me know the best time of the day or evening to take Zytiga. I know it is to be taken on an empty stomach. Thank you in advance for your...

Can you please let me know the best time of the day or evening to take Zytiga. I...

Hidden

•2 years ago

20 Replies

casadex use

I HAVE BEEN ON 50 MG OF CASADEX DAILY SINCE APRIL 2020. MY PSA WENT FROM 119 TO 18 AND NOW IS 24. HAS ANYONE WHO USED CASADEX HAD PSA FLUCTUATE UP AND DOWN....

I HAVE BEEN ON 50 MG OF CASADEX DAILY SINCE APRIL 2020. MY PSA WENT FROM 119 TO ...

woppaginny

•2 years ago

7 Replies

fenbendazole treatment for Prostate cancer

Has anyone used Fenbendazole to treat their prostate cancer with success. i have been reading success stories on this subject.

Has anyone used Fenbendazole to treat their prostate cancer with success. i have...

woppaginny

•2 years ago

20 Replies

Pleasant PSA surprise

I’m on the triple therapy. Lupron, Chemo and Zytiga. Got a pleasant surprise today as my blood numbers are all within suggested ranges, testosterone less...

I’m on the triple therapy. Lupron, Chemo and Zytiga. Got a pleasant surprise t...

Lslal

•2 years ago

10 Replies

Magnesium glycinate

Which is the best brand and what dosage for osteoporosis.

Radars

•2 years ago

13 Replies

Studies about Suppression of IL 17 and IL 23, Why aren’t biologics used to suppress these proteins in Prostate Cancer?

Is there anyone here, who has studied this phenomenon?

Shorehousejam

•2 years ago

3 Replies

Exercise for those of you that may be more challenged

This was inspired by a reply to a post I did on benefits of exercise by Wagscure259 Worth a try as the benefits look to be substantial especially for cancer...

This was inspired by a reply to a post I did on benefits of exercise by Wagscure...

Scout4answers

•2 years ago

4 Replies

QOL spa day at home. Some days we just can’t get out to go places ( appointments at Kaiser , not feeling well , bad weather ).

having a QOL day at home with your counterpart is sometimes a great way to just kick back , let go and relax ( helpful substance’s optional but highly...

having a QOL day at home with your counterpart is sometimes a great way to just ...

Kaliber

•2 years ago

65 Replies

Wondering about a member who was in a clinical trial, doing great and as he stated brashly ended the treatment to see what would happen.

I can't remember the trial or the member but perhaps he will see this, he was supposed to have another PSA Test in Oct and update us.

I can't remember the trial or the member but perhaps he will see this, he was s...

TJGuy

•2 years ago

6 Replies

One more reason to avoid Covid

A persistent reduction of the p53 tumor suppression functions, as might be the case in long-COVID-19 severe patients, may constitute a risk factor for...

A persistent reduction of the p53 tumor suppression functions, as might be the c...

Nusch

•2 years ago

4 Replies

Prostate Biopsy

I have had several biopsies both with and without general anesthesia. With general anesthesia they were a breeze no problems at all. My last one on Friday was...

I have had several biopsies both with and without general anesthesia. With gene...

Trying-Times

•2 years ago

23 Replies

You can't get an erection if you see a bear (animal)

https://youtube.com/shorts/06E-x9aCwfc?feature=share

Darryl

Partner•2 years ago

9 Replies

SPLASH Study using Lu-PNT2002 PSMA after second line hormonal treatment

My dad is ready to sign over to the SPLASH PSMA study. He is 87 and seems 70. Was diagnosed 16 years ago with advanced prostate cancer and has done ADT,...

My dad is ready to sign over to the SPLASH PSMA study. He is 87 and seems 70. ...

dadsdrdawn

•2 years ago

6 Replies

PSA 0,7

my husband had 5 years ago his prostate removed. Now he shows a PSA of 0,7, this has developed over the years, his Gleason is 7. His doctor advised radiation...

my husband had 5 years ago his prostate removed. Now he shows a PSA of 0,7, thi...

Grommi

•2 years ago

13 Replies

Good news among the bad Over 6 months . Stage ONE TRIAL WORKING, .😊 NO CANCER PROGRESSION HUMC NEW JERSEY

Bc his PSA was rising and could t stay awake we assumed Mets grew or cancer progressed but since dx 6 yrs ago at stage 4 filled with Mets in every bone and one...

Bc his PSA was rising and could t stay awake we assumed Mets grew or cancer prog...

Daddyishealing

•2 years ago

4 Replies

AN UPDATE POST STARTING A VACATION: PT3bN1M0 STG 4A

After RP, Whole Pelvic Radiation and ADT for 30 months with a largely non detectable PSA my Rad Onco and I decided to try a vacation. I had my last 3 monthly...

After RP, Whole Pelvic Radiation and ADT for 30 months with a largely non detect...

Tally111

•2 years ago

5 Replies

Bladder clots after SRT

Bladder clots after SRT is it another cancer?

carlo1993

•2 years ago

2 Replies

PSA <0.04 to exactly 0.05

My husband was diagnosed with stage 4 PC in November 2019.(Gleason 9) He had 2 mets on his lower spine only. (thus the stage 4 diagnosis) He has been on...

My husband was diagnosed with stage 4 PC in November 2019.(Gleason 9) He had 2 ...

brzandme

•2 years ago

16 Replies

Plain English for a layman please!

Not complaining, I know the doctors need their own precise terms and acronyms, but as a patient (even a reasonably educated one), I struggle to interpret what...

Not complaining, I know the doctors need their own precise terms and acronyms, b...

Atdabeach

•2 years ago

14 Replies

5 years ago at the NYC Marathon

This memory came up on my Facebook: I had come upon this lady at about mile 23 in Central Park and the back of her Tank said "You think a marathon is tough,...

This memory came up on my Facebook: I had come upon this lady at about mile 23 ...

dockam

•2 years ago

23 Replies

Zytiga. How long?

With the exception of a year-long holiday from treatment, I have been on Zytiga since October 2013. I am closing in on 10 years of this medication. Has...

With the exception of a year-long holiday from treatment, I have been on Zytig...

Todd1963

•2 years ago

71 Replies

Aerobic Activity can Reduce Risk of Metastatic Cancer by 72%

Aerobic Activity can Reduce Risk of Metastatic Cancer by 72% A new study at Tel Aviv University found that aerobic exercise can reduce the risk of...

Aerobic Activity can Reduce Risk of Metastatic Cancer by 72% A new study at T...

Scout4answers

•2 years ago

35 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for November 2022

Cleveland Clinic and UCSF (more to follow) have started charging insurance for answering patient questions on patient portals

White count lower 3 1/2 weeks after final chemo than 1 week after - WTF?

Enzalutamide may have synergistic effect on Lu-177 Pluvicto treatment

When you take Meds that impact other meds....

First month on Xtandi - the good and the not so good

Lu177 Not Working

Lupron and High Dose Brachytherapy

Pseudo-science means pain and suffering for those who need to think critically about the remedies presented below.

Zytiga advise on best time to take.

casadex use

fenbendazole treatment for Prostate cancer

Pleasant PSA surprise

Magnesium glycinate

Studies about Suppression of IL 17 and IL 23, Why aren’t biologics used to suppress these proteins in Prostate Cancer?

Exercise for those of you that may be more challenged

QOL spa day at home. Some days we just can’t get out to go places ( appointments at Kaiser , not feeling well , bad weather ).

Wondering about a member who was in a clinical trial, doing great and as he stated brashly ended the treatment to see what would happen.

One more reason to avoid Covid

Prostate Biopsy

You can't get an erection if you see a bear (animal)

SPLASH Study using Lu-PNT2002 PSMA after second line hormonal treatment

PSA 0,7

Good news among the bad Over 6 months . Stage ONE TRIAL WORKING, .😊 NO CANCER PROGRESSION HUMC NEW JERSEY

AN UPDATE POST STARTING A VACATION: PT3bN1M0 STG 4A

Bladder clots after SRT

PSA <0.04 to exactly 0.05

Plain English for a layman please!

5 years ago at the NYC Marathon

Zytiga. How long?

Aerobic Activity can Reduce Risk of Metastatic Cancer by 72%

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