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637elphaba profile image
637elphaba
β€’18 Replies

Hello group, I just received my test results back and need some help.

I have not been feeling well l, but I have been under a huge ball of stress due to my uncle's illness and passing.

I have been working to raise my iron and Vit. D and supplementing Vitamin B as well as my cortisol issues for the past 4 months. Right now I am having heart palps all the time and my sleep schedule is all off. I'm sure my cortisol levels have changed and will check them as soon as I am able to return home.

Now if I can just have some help with these to see if I should make any adjustments to meds.

I'm on a total of 1 NDT and 2 grains of T3 split thru the day and night.

Reverse T3. 7. (8-25)

Free T3. 3.2. (2.3 -4.2)

Free T4. 0.5. (0.8-1.5)

TSH. 0.0.2. (0.40-4.50

TPO. 543. . <9

Thyroglobulin. 17. <1

Since May and June my free T3 has come up. Reverse T3 about the same.

The TPO and thyroglobulin have risen though from 335 and 14.9.

I'm not sure at all how to interpret these results. All I know is I am exhausted around the clock and my heart seems to be pounding.

Thank you again. How many times can I say that before it gets old. πŸ™ŠπŸ™Š

πŸ’™πŸ™

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637elphaba profile image
637elphaba
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18 Replies
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Treepie profile image
Treepie

Think you may have to post again ,maybe its the time difference the UK experts are all asleep!

Sorry on traditional levo and no experience of what you are on .

637elphaba profile image
637elphabaβ€’ in reply toTreepie

Thank you for taking the time. I think with my crazy sleep pattern I must be in UK time too!!!

greygoose profile image
greygoose

What do you mean by 2 grains of T3? T3 is measured in mcg. NDT is in grains. So, is that 1 grain of NDT and 2 tablets of 25 mcg T3? If that's so then there's something wrong with your FT3 reading. It's under-range. What was it when you were diagnosed?

Is your TSH 0.02? There's one too many decimal points, the way you wrote it. lol That is amazingly low for such a low FT3. So, despite the high TPO antibodies, meaning you have Hashi's, it would appear you also have a pituitary problem.

Forget the rT3, it's not relevant at the moment.

637elphaba profile image
637elphabaβ€’ in reply togreygoose

Yes it's 2 tabs of the 25 of T3.

And the results of the TSH are 0.02

Hard to see when auto correct adds an extra decimal point.

I have not gone totally gluten free yet, working on it.

Besides that is there something I should do?

greygoose profile image
greygooseβ€’ in reply to637elphaba

But you do not appear to have Hashi's, your antibodies are very low. So, I'm not sure gluten-free is going to do anything for you.

I think you should be concerned about your low FT3. It is below range, which is rediculous when you are taking over 50 mcg of T3.

How do you take your thyroid hormone replacement? Do you swallow it with a large glass of water, one hour before eating or drinking anything else? Do you take any other supplements or medication close to your hormone? There seems to be an enormous problem with absorption.

I think the best thing you can do next is get your vit d, vit B12, folate and ferritin tested. Because, if your absorption is that bad, they are more than likely very low.

Do you have any stomach/digestion problems? Acid reflux? Are you taking PPIs?

637elphaba profile image
637elphabaβ€’ in reply togreygoose

I will go have those tested tomorrow. In May They were all low except for B12 but I've been supplementing since then. I was hoping they had come up.

I did have acid reflux but once I started on NDT it eased up and I stopped my nexium.

I thought my antibodies were high at 543 and 17. They increased since May.

Thank you for the help.

greygoose profile image
greygooseβ€’ in reply to637elphaba

Oh, yes! Sorry! Got that one wrong. I don't know what I was looking at but I didn't see 543 lol Yes, you do have Hashi's.

Ok, so, if you're supplementing Hashi's, there's no point in retesting because you will not get a true reading. Just carry on supplementing. Is it sublingual methycobalamin?

For the Hashi's, you could try taking selenium to lower the antibodies. You could also try taking some magnesium and vit C without testing.

But, the main problem is your poor absorption. When did you stop taking the Nexium? For how long were you taking it?

637elphaba profile image
637elphabaβ€’ in reply togreygoose

I had stop supplementing a week ago so I could retest. I was taking all of those except Selium because I heard it disrupts your adrenals.

I don't know what else to do to increase my energy. Get rid of headaches and aches in my bones.

Thank you again

So should I start supplementing again right now and out the testing off

I was on nexium for 4or5 years and have been of since about May 2016

greygoose profile image
greygooseβ€’ in reply to637elphaba

which supplement are we talking about? B12? A week's not long enough, so yu might as well start taking it again, and forget the test. But you need to test for the other things.

OK, so that's bad, for a start. Things like nexium are supposed to be for short periods only, something like 8 weeks, I think. And that probably explains why your nutrients were low. It will take them a while to build up again. And you've only been off it since May... Could account for your low FT3, I suppose, but it's a bit of a long shot. Why not try taking something like apple cider vinegar to raise your stomach acid, and there by increasing digestion and absorption?

637elphaba profile image
637elphabaβ€’ in reply togreygoose

Okay I'm going to go back with my supplements including the B12

My vitamin D back them was almost not even high enough to count.

ACV how to I take it to help. And do I take it with my meds or vits.

What do you suggest is the best timing to take my NDT and T3. That seems to be tripping me up.

πŸ’™πŸ™

greygoose profile image
greygooseβ€’ in reply to637elphaba

You take half a teaspoon of ACV in a glass of water with honey, just before a meal.

NDT and T3 can be taken together, on an empty stomach, with a large glass of water, one hour before food or any other beverage. Or, two hours after food. Two hours away from other supplements or medication. And four hours away from iron, calcium, magnesium and vit D3. You can take them any time of the day that is convenient for you, really. But most people take them either first thing, or at night.

637elphaba profile image
637elphabaβ€’ in reply togreygoose

I thought I asked a question again but it disappeared.

I was told to split my dosage up with 1/2ndt at am and pm and split up T3 4-5 times a day. It's driving me crazy trying to keep to that schedule. Especially with my sleep

Off. My cortisol was very low, very high, high and high.

It's tough for me to get to sleep till 4 am and then I sleep almost till 2 unless I pry myself up. I'm always exhausted or hyper.

Thank you for answering so many stupid questions. I'll get this figured out someday I hope.

πŸ’™πŸ˜±πŸ™

greygoose profile image
greygooseβ€’ in reply to637elphaba

You will! :) And they aren't stupid questions. You can't know all this stucf instinctively.

Who told you to split your hormone up into so many doses? It's hardly practical, is it? You'd have to give up eating and sleeping and all other supplements to fit all in!

But, there's no law that says you have to split it at all. Many people take it all in one go. Just work out wwhat's practical and doable for you, and see how it goes.

637elphaba profile image
637elphabaβ€’ in reply togreygoose

That sounds so much easier. Between taking those and the vitamins and iron and estradiol and progesterone it seems like I'm always trying to take something. Then I just get mixed up and I am all off

Another group, that I kind of stopped following, told me T3 only lasts a few hours so I had to break up the times I took it.

I followed this group at first along with this one. I somehow lost this group and couldn't find it. I stuck it out with the other one until I just seemed to be sent in to many directions.

I need to start afresh and clear my head.

Thank you again. You helped me months ago so glad I found you again. πŸ™

greygoose profile image
greygooseβ€’ in reply to637elphaba

lol You're welcome.

It's a mistake people often make with T3. Yes, it only stays in the blood for a few hours, but it stays in the cells a lot longer. But, we're all different and we have to find what suits us best. It's all trial and error, I'm afraid. There are no definitive answers.

Oh and estradiol should be taken 4 hours away from thyroid hormone!

637elphaba profile image
637elphabaβ€’ in reply togreygoose

Ah. That will make it easier taking it at one time. And my doc said an hour for estradiol. Another thing she was wrong about.

I'll make the changes tomorrow and hit restart.

Thanks much.

greygoose profile image
greygooseβ€’ in reply to637elphaba

You're welcome. :)

Katepots profile image
Katepots

I'd say you have Hashimotos. Are you gluten free??

If not you must be, it will make a big difference to how you feel.

Read everything by Dr Datis Khazzarian and also get the Immune System Recovery Plan by Susan Blum

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