Firstly apologies for the long post --
I had a hip replacement 2 months ago, since then I have felt really dreadful. After surgery I was quite ill with severe fibromyalgia symptoms, hurting everywhere particularly bad rib pain and also had trouble with my breathing/tight chest etc., as well as the pain from the actual operation ! After seeing several doctors my named doctor diagnosed costocondritis and prescribed Naproxfen (with a tablet to take to avoid gastric problems ). I cannot usually tolerate NASAIDS as cause problems with diverticulitis.
I also had to see a respiratory consultant follow up appt for my sleep apnea and CPAP machine. I explained the continuing chest pain/breathing problems and he examined me and said I had undiagnosed chronic asthma! Yet another health problem to contend with!! He prescribed a preventer puffer twice a day and ventolin to use as required.. He said NOT to take the Naproxfen as this would make the asthma worse (so go back to Codrydamol for pain!).
My dr also referred me to a Pain Management consultant for the ongoing severe pain (Ive had for over 12 yrs and it has got progressively worse ). He felt that I was doing everything possible to help my symptoms -(I have had to learn to pace myself -use TENS machine, gentle exercising, heat pads, ice pads, rest when my body tells me and take pain killers when nothing else works etc.,) But has recommended 6 Hydrotherapy sessions and presecribed Pregabalin for the pain starting with 25mg at night increasing by 25mg each week (am & pm) to a maximum dose of 300mg daily?!!
So last 2 weeks I've used the puffer twice a day and taken Pregabalin 25mg at night and then another 25mg in the morning this last week. I have felt even worse !!
The puffer gives me a horrid taste in my mouth and my chest still feels tight and painful - and I still get breathless after hardly any movement. I cannot sleep and keep waking throughout the night feeling really hot, throbbing all over burning sensations in my legs and feet and muscles in chest and sometimes arms and hands. I feel really exhausted most of the time and the pain continually seems to flare on and off throughout the day.
I just dont know what to do for the best, whether to take these pills or not - or use the puffers as I really feel deadful on and off all the time - My left breast feels sore to the touch and both seem to have got bigger too -(I cant bear even the pressure of my bra on my ribs or shoulders either) have pulsing under my arms and sometime wake with my neck glands feeling swollen. My muscles each side of my spine are very painful too.
I am about to ask the dr to refer me to the rhematologist again as I feel these symptoms need to be looked at again - maybe Lupus related I'm thinking???
Im sorry for the long long post - but all sorts of things are going through my mind - at the moment - all i want is to have a day or a few days when I feel relatively normal without pain or horrid sensations. (also headaches on and off too!)
I now have recent blood test results - so could someone please try to explain to me what they think is going on ? Many many thanks in anticipation!
22nd May 2014 - by endocrinologist - no longer seeing him.
24 hr urine volume (XE2mw) -------- 2340 mL
Serum C reactive protein level (XaINL) 5 mg/L (0.0-10.0)
Erythocythe sedimentation rate (XE2m7) 17 mm/hr (1.0-15.0) above range
Chromogranin A 2.6 nmol/L (0.0-6.0)
21st November 2014 - doctor
(Ive posted only the abnormal results as there are so many)
Mean cell haemoglobin concentration (429..) 314g/l (320-350.0) below range
( all other blood counts were in range)
International normalised ration (42QE) 1.1. -outside reference range
(at this time I was on anti coagulants following surgery- now finished)
Serum alkaline phosphatase level (XE2px) 140 iu/L (35.0-104.0) Above range
Thyroid function test TSH 0.80 mIU/L 0.3-3.94)
On T4 adequate replacement suggest repeat in 1yr
FT3 is not indicated when on T4 replacement !!!!!!!
Serum free T4 Above range 22.4 pmol/L (12.3-20.2) Outside reference range
Serum free triiodothyronine level 5.0 pmnol/L (3.7-6.7)
Vit B12 level 615ng/L (191.0-663.0)
Any thoughts would be greatly appreciated - thank you all - hoping youve all managed to have a Happy Christmas without too much pain or discomfort!!