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Vitamin B12 / Folic acid
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Update
Well been a while since I personally posted something about my health, why ? Because to be honest it hasn't really changed. We've dropped the Tranexamic Acid tablets but kept going with the Fostamatinib tablets the consultant has tried with alternating the Romoplosim injections to 250mcg one week 500mcg
Well been a while since I personally posted something about my health, why ? Because to be honest it hasn't really changed. We've dropped the Tranexamic Acid tablets but kept going with the Fostamatinib tablets the consultant has tried with alternating the Romoplosim injections to 250mcg one week 500mcg
Mesd
in
ITP Support Association
5 months ago
Sourcing Hydroxocobalamin, help please
Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in spite of several indications. I now need to buy more hydroxocobalamin but haven't kept a note of where I've previously bought from, in Germany.
Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in spite of several indications. I now need to buy more hydroxocobalamin but haven't kept a note of where I've previously bought from, in Germany.
JMN2017
in
Pernicious Anaemia Society
7 months ago
Where can I order B12 Hydroxocobalamin ampules from 🤔
Hey all - where do y’all order your B12 ampules from - I always ordered from Versandapo in Germany but when I checked out it said the shipping address is not permitted. Thank you ☺️
Hey all - where do y’all order your B12 ampules from - I always ordered from Versandapo in Germany but when I checked out it said the shipping address is not permitted. Thank you ☺️
Mandymoos8
in
Pernicious Anaemia Society
7 months ago
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Help with latest results please.
Hi.Just had my latest results and would be grateful for input. Currently taking 100 micro of levothyroxine. Not taking any B12 supplements as I've not been able to tolerate due to stomach upset (tried Thorne B complex three different times and a sublingual one). Fasting blood test taken at 9am. I normally
Hi.Just had my latest results and would be grateful for input. Currently taking 100 micro of levothyroxine. Not taking any B12 supplements as I've not been able to tolerate due to stomach upset (tried Thorne B complex three different times and a sublingual one). Fasting blood test taken at 9am. I normally
CarnelianT
in
Thyroid UK
7 months ago
Feeling awful a week after jab.
Hi, I was diagnosed with b12 deficiency 2 years ago . I have 10 weekly injections. Usually I am ok after my jab and only need to SI occasionally inbetween.I had my jab a week ago then the following day had an accident with a kitchen blender. I was really shaken up. Since then I have felt really tired
Hi, I was diagnosed with b12 deficiency 2 years ago . I have 10 weekly injections. Usually I am ok after my jab and only need to SI occasionally inbetween.I had my jab a week ago then the following day had an accident with a kitchen blender. I was really shaken up. Since then I have felt really tired
Mrsmr
in
Pernicious Anaemia Society
7 months ago
Chronic kidney disease
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
MaggieSylvie
in
MPN Voice
7 months ago
dr Chris woolams
I have locally advanced prostate cancer t3b no mo finished treatment rt/ht and now I have severe osteoporosis because my testosterone has never recovered I have had 1 infusion of zoledronic acid for my bones, and now I have been reading dr Chris woolams bio-chemist on canceractive that bishonates make
I have locally advanced prostate cancer t3b no mo finished treatment rt/ht and now I have severe osteoporosis because my testosterone has never recovered I have had 1 infusion of zoledronic acid for my bones, and now I have been reading dr Chris woolams bio-chemist on canceractive that bishonates make
Radars
in
Advanced Prostate Cancer
5 months ago
Exercise for this winter.
I needed to design a new exercise method for this winter. The 5 weeks of 5K on the week-end needed to be abandoned due to needing to get more sun energy. I use having a go to concept so I do not have to make decisions. A plan to deviate from. I also want to stay away from a regiment that I accomplish
I needed to design a new exercise method for this winter. The 5 weeks of 5K on the week-end needed to be abandoned due to needing to get more sun energy. I use having a go to concept so I do not have to make decisions. A plan to deviate from. I also want to stay away from a regiment that I accomplish
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Eye problems
Ok So, I woke up this morning with a fairly large posey-shaped vitreous floater along with a flashing light that darts across the same eye when I move my head suddenly or am in the dark. Has anyone experienced this and could it be b12 def related? I'm a bit concerned it may get worse. I haven't hurt
Ok So, I woke up this morning with a fairly large posey-shaped vitreous floater along with a flashing light that darts across the same eye when I move my head suddenly or am in the dark. Has anyone experienced this and could it be b12 def related? I'm a bit concerned it may get worse. I haven't hurt
brenanddave
in
Pernicious Anaemia Society
7 months ago
Oh dear! it's that 'senior moment' time again
Oooops. Yesterday I posted asking if anyone had issues with long term use of Lisinopril, but what I really wanted was feedback on long term usage of Lansoprozole! (Take your pick: brain fog, senility etc.) I was prescribed Lansoprozole to minimise the risk of stomach damage from Clopidogrel, following
Oooops. Yesterday I posted asking if anyone had issues with long term use of Lisinopril, but what I really wanted was feedback on long term usage of Lansoprozole! (Take your pick: brain fog, senility etc.) I was prescribed Lansoprozole to minimise the risk of stomach damage from Clopidogrel, following
Ovingite
in
MPN Voice
7 months ago
Dental work and alendronate
I need a tooth extraction after a tooth has completely collapsed and became infected. The dentist has tried root canal treatment with the hope of adding a crown but it is still infected in the gum and he says it must come out due to a sepsis risk. He sent me to my consultant for permission as I have
I need a tooth extraction after a tooth has completely collapsed and became infected. The dentist has tried root canal treatment with the hope of adding a crown but it is still infected in the gum and he says it must come out due to a sepsis risk. He sent me to my consultant for permission as I have
Pawscat11
in
PMRGCAuk
5 months ago
QoL to the World
Day 2 in Hawaii Got half moons, Pork Hash, baked Char siu Baos, and Chow mein from Royal Kitchen. Goodwill shopping Poke run at Foodland Chillin at Ala Moana Beach Bulgogi dinner for Mom from Mama Woo's BBQ https://photos.app.goo.gl/cwKvJTpPvCkTzRv98
Day 2 in Hawaii Got half moons, Pork Hash, baked Char siu Baos, and Chow mein from Royal Kitchen. Goodwill shopping Poke run at Foodland Chillin at Ala Moana Beach Bulgogi dinner for Mom from Mama Woo's BBQ https://photos.app.goo.gl/cwKvJTpPvCkTzRv98
dockam
in
Advanced Prostate Cancer
5 months ago
T3 Help!
Hi everyone, I need some help. I am newly started on T3. Finely got to see an endo 7/9/23 and he said my T4 was too high and my T3 low. I have never been well on T4 and was diagnosed with ME/CFS. I have been on T4 for 20 years. I also had low B12. I self inject for that. I have enlarged red blood
Hi everyone, I need some help. I am newly started on T3. Finely got to see an endo 7/9/23 and he said my T4 was too high and my T3 low. I have never been well on T4 and was diagnosed with ME/CFS. I have been on T4 for 20 years. I also had low B12. I self inject for that. I have enlarged red blood
Katherine123
in
Thyroid UK
7 months ago
Use-by dates for B12
I posted recently about a three month decline and symptom return as my B12 batch approached its December expiry date. When I tealised what the problem might be I began injecting EOD with a new batch with a 2025 expiry and I'm feeling much better already. Just a cautionary tale about expiry dates. In
I posted recently about a three month decline and symptom return as my B12 batch approached its December expiry date. When I tealised what the problem might be I began injecting EOD with a new batch with a 2025 expiry and I'm feeling much better already. Just a cautionary tale about expiry dates. In
Orchard33
in
Pernicious Anaemia Society
7 months ago
Writing a lot here.
I am aware I am writing a lot here. I am also aware others are doing the important work of disseminating information to those who are suffering and I am not doing that work. I mean no disrespect to those in the throes of B12 deficiency. I write as it is helpful to me and others indicate it may be helpful
I am aware I am writing a lot here. I am also aware others are doing the important work of disseminating information to those who are suffering and I am not doing that work. I mean no disrespect to those in the throes of B12 deficiency. I write as it is helpful to me and others indicate it may be helpful
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Sweating
Hi also does anyone sweat at night after injecting B12
Hi also does anyone sweat at night after injecting B12
Mozza127
in
Pernicious Anaemia Society
7 months ago
Medichecks advanced thyroid rest
Hi all, The instructions for my medichecks test says to stop B12 for two whole weeks before testing! Do others follow this advice? I know from this forum that I have to stop any biotin containing supplements for 7 days before any blood test.
Hi all, The instructions for my medichecks test says to stop B12 for two whole weeks before testing! Do others follow this advice? I know from this forum that I have to stop any biotin containing supplements for 7 days before any blood test.
Cassav
in
Thyroid UK
7 months ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
6 months ago
Evaluating
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which led to consistent improvement weekly. Evaluating the effects of
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which led to consistent improvement weekly. Evaluating the effects of
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Clunking, Fading and Sleep
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
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