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Vitamin B12 / Folic acid
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Some help
While not a cure I have found that vitamin B12 helps. My feet are less painful since I started taking it in spite of not really believing in it!
While not a cure I have found that vitamin B12 helps. My feet are less painful since I started taking it in spite of not really believing in it!
Shonkie
in
NRAS
7 months ago
severe osteoporosis and op drugs
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
Radars
in
Bone Health and Osteoporosis UK
6 months ago
Deteriorating
Hi all. I've learned the term ataxia from the internet. In recent months I've dislocated and fractured my shoulder and on another occasion broke a bone in my foot. A few years ago i toppled and broke my wrist. I have autoimmune thyroiditis but not sure if this is related. My sister also has balance
Hi all. I've learned the term ataxia from the internet. In recent months I've dislocated and fractured my shoulder and on another occasion broke a bone in my foot. A few years ago i toppled and broke my wrist. I have autoimmune thyroiditis but not sure if this is related. My sister also has balance
Shenka
in
Ataxia UK
7 months ago
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Update: Tooth Extraction delayed because of risks while on Alendronic Acid
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
Thiago1396
in
PMRGCAuk
6 months ago
high levels
I did have very low levels of b12 under 100. i now hear injections every 3 months. And my levels are around 800 Is this normal?
I did have very low levels of b12 under 100. i now hear injections every 3 months. And my levels are around 800 Is this normal?
Hidden
in
Pernicious Anaemia Society
8 months ago
I found this helpful.
https://my.clevelandclinic.org/health/diseases/22722-malabsorption Absorption issues exist. The term is often used as a general explanation without a specific diagnosis being made. This led me to believe that I had to consider absorption issues when taking oral supplements. I over reacted to the term
https://my.clevelandclinic.org/health/diseases/22722-malabsorption Absorption issues exist. The term is often used as a general explanation without a specific diagnosis being made. This led me to believe that I had to consider absorption issues when taking oral supplements. I over reacted to the term
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Revisiting the Zoledronic acid pros & cons
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
strawclutching
in
PMRGCAuk
6 months ago
Functional B12 diagnosis query
Hi, Can anyone advise me what kind of specialist is needed in the UK to diagnose Functional B12 deficiency? My GP practice doesn’t seem to know. After a frustrating few months waiting weeks for phone appointments, we are still no further on with being able to access B12 injections under medical supervision
Hi, Can anyone advise me what kind of specialist is needed in the UK to diagnose Functional B12 deficiency? My GP practice doesn’t seem to know. After a frustrating few months waiting weeks for phone appointments, we are still no further on with being able to access B12 injections under medical supervision
Zmalp
in
Pernicious Anaemia Society
8 months ago
worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
6 months ago
Tributes to Dr Joseph Chandy, RIP ... ☹️ 😥 😢- the PEOPLE'S B12d identifying, & treating CHAMPION.
There are MANY ways in which tributes may be paid to celebrate the life & notable dedication to patient/service user care, of the late Dr JC. His funeral details are on another recent thread, that being on 12noon on Friday 12 January 2024: https://healthunlocked.com/pasoc/posts/150369759/dr-chandys-funeral-friday
There are MANY ways in which tributes may be paid to celebrate the life & notable dedication to patient/service user care, of the late Dr JC. His funeral details are on another recent thread, that being on 12noon on Friday 12 January 2024: https://healthunlocked.com/pasoc/posts/150369759/dr-chandys-funeral-friday
Sid_Arthur
in
Pernicious Anaemia Society
8 months ago
Hevert B12 ampoules
Hi everyone and Happy New Year. I have recieved the above B12 ampoules which are Hydroxocobalamine 1000 ug however the volume inside the ampoule is 2ml , I usually inject just 1ml Panpharma is it safe to inject the 2ml and does this equate to 1000ug, thank you
Hi everyone and Happy New Year. I have recieved the above B12 ampoules which are Hydroxocobalamine 1000 ug however the volume inside the ampoule is 2ml , I usually inject just 1ml Panpharma is it safe to inject the 2ml and does this equate to 1000ug, thank you
Helliborous
in
Pernicious Anaemia Society
8 months ago
Duty Reclaim - Ongoing Saga!
Hi All 26 days ago I posted about my shock at receiving a charge from customs. I made a reclaim based on that the B12 was for personal use and I received this reply: "[i]I am currently assessing your BOR286 refund request for your shipment of Vitamin B12 injectable Hydroxocobalamin. This shipment
Hi All 26 days ago I posted about my shock at receiving a charge from customs. I made a reclaim based on that the B12 was for personal use and I received this reply: "[i]I am currently assessing your BOR286 refund request for your shipment of Vitamin B12 injectable Hydroxocobalamin. This shipment
Wwwdot
in
Pernicious Anaemia Society
8 months ago
3 Months of EOD B12 Injections
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
FancyPants54
in
Pernicious Anaemia Society
8 months ago
HNY!... and a warning for those who lead busy lives (aka all of us)
Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member being diagnosed with cancer at the start of the year and much of my life for the next 6 months revolving around that. It's not why I'm here, but
Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member being diagnosed with cancer at the start of the year and much of my life for the next 6 months revolving around that. It's not why I'm here, but
ottiliefloyd
in
Pernicious Anaemia Society
8 months ago
Drug combinations
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
tempusfugi
in
PMRGCAuk
6 months ago
ongoing issues
it’s been a tough month this weather is making the fibro non stop but in turn my RA has also kicked in within the joints so I am creaking away like an unoiled motor and even hubby went you need some calm weather! Trip to GP yesterday and he looked at me and said I know you have a lot going on what’
it’s been a tough month this weather is making the fibro non stop but in turn my RA has also kicked in within the joints so I am creaking away like an unoiled motor and even hubby went you need some calm weather! Trip to GP yesterday and he looked at me and said I know you have a lot going on what’
Deeb1764
in
NRAS
8 months ago
Loading doses
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
Lilian15
in
Pernicious Anaemia Society
8 months ago
Hele36
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
36Hele
in
Pernicious Anaemia Society
8 months ago
Borderline B12 Deficiency
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Attic
in
PMRGCAuk
8 months ago
How to inject Hevert ampoules
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
3rdNettydoon
in
Pernicious Anaemia Society
8 months ago
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