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Vitamin B12 / Folic acid
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B12 - a hidden inflammation trigger
I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !..... https://www.eurekalert.org/news-releases/1004963#:~:text=A%20new%20study%20has%20identified,%2C%20diabetes%2C%20and%20neurodegenerative%20disorders. Added this one in case other
I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !..... https://www.eurekalert.org/news-releases/1004963#:~:text=A%20new%20study%20has%20identified,%2C%20diabetes%2C%20and%20neurodegenerative%20disorders. Added this one in case other
Jillymo
in
Pernicious Anaemia Society
4 months ago
B-12 Def in Mexico (no health insurance)
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
GracePV
in
Pernicious Anaemia Society
4 months ago
Frequency of Hydroxocobalamin injections in UK
Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue, endometriosis, now menopause, all good fun! I am lucky that for years I have had an understanding doctor, used to have my injections every 8 weeks
Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue, endometriosis, now menopause, all good fun! I am lucky that for years I have had an understanding doctor, used to have my injections every 8 weeks
MissPoshOxford
in
Pernicious Anaemia Society
4 months ago
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b12 deficiency and MRI scanner...
Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that, or the heightened stress of awaiting my results... So, thought I'd ask on here? It was 2 weeks after my first one that my whole body crashed
Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that, or the heightened stress of awaiting my results... So, thought I'd ask on here? It was 2 weeks after my first one that my whole body crashed
Suffering_sunny
in
Pernicious Anaemia Society
4 months ago
Your thoughts on this will be appreciated, please
This post is being created on behalf of someone who is unable to post for herself at this time.
I may not be able to give answers to specific questions quickly, but your opinions will be appreciated and passed on.š ----------- 41 year old female, has been ill for a long time with long covid
This post is being created on behalf of someone who is unable to post for herself at this time.
I may not be able to give answers to specific questions quickly, but your opinions will be appreciated and passed on.š ----------- 41 year old female, has been ill for a long time with long covid
RedApple
Administrator
in
Thyroid UK
4 months ago
Diagnosis
Hi, I'm perimenopausal and my hormone dips have thrown up digestion, hyperosmia, brain fog issues and because of lack of appetite I have become malnourished and very low on ferritin despite trying the super heme from 3 Arrows. I've had some private bloods done. Notable results are:- T3 2.97 T4
Hi, I'm perimenopausal and my hormone dips have thrown up digestion, hyperosmia, brain fog issues and because of lack of appetite I have become malnourished and very low on ferritin despite trying the super heme from 3 Arrows. I've had some private bloods done. Notable results are:- T3 2.97 T4
Probiotic
in
Thyroid UK
4 months ago
bad batch?
I bought three boxes of b12 (not Pascoe, the brand thatās impossible to get now). The first two boxes, once my body had got used to it, I always had the same reaction - tired but a feeling of well being and warmth, particularly in my back. when I started the third box I felt freezing cold and shaky,
I bought three boxes of b12 (not Pascoe, the brand thatās impossible to get now). The first two boxes, once my body had got used to it, I always had the same reaction - tired but a feeling of well being and warmth, particularly in my back. when I started the third box I felt freezing cold and shaky,
Pepperpots302
in
Pernicious Anaemia Society
4 months ago
My Stuffy Head
Current Trial (4 Days-Positive); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. I observed that currently I
Current Trial (4 Days-Positive); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. I observed that currently I
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
elevated b12
HI All. I am 2 years into my GCA journey. Has anyone else had elevated b12 blood levels from GCA ? Thanks
HI All. I am 2 years into my GCA journey. Has anyone else had elevated b12 blood levels from GCA ? Thanks
Lovemocha
in
PMRGCAuk
4 months ago
B12 frequency
I've SI EOD for just over a year. I know that some on this forum may have decreased their frequency after a period of time. I'd like to try decreasing so any suggestions would be gratefully received.
I've SI EOD for just over a year. I know that some on this forum may have decreased their frequency after a period of time. I'd like to try decreasing so any suggestions would be gratefully received.
Orchard33
in
Pernicious Anaemia Society
4 months ago
Baffling results on T4&T3!
Morning all, Iām awake early feeling like total rubbish so thought Iād jump on and share in the hope that someone can shed light on my baffling blood test results which came through on Friday! Iāve been on 75mcg Levothyroxine and 15mcg T3 for the last 6 weeks (having slowly increased T3 from nothing
Morning all, Iām awake early feeling like total rubbish so thought Iād jump on and share in the hope that someone can shed light on my baffling blood test results which came through on Friday! Iāve been on 75mcg Levothyroxine and 15mcg T3 for the last 6 weeks (having slowly increased T3 from nothing
underact15
in
Thyroid UK
4 months ago
early pregnancy -Hydroxy33
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
AstiSP
in
Pernicious Anaemia Society
4 months ago
Active B12 tests
Does anyone know why no active B12 blood tests (such as Holo) are available in the USA?
Does anyone know why no active B12 blood tests (such as Holo) are available in the USA?
Greeneyecolor
in
Pernicious Anaemia Society
4 months ago
Panpharma B12 depot is now out of stock already unfortunately.
I was worried that this would happen . Just fill in yout email address in the box on the right underneath the announcement in red which says ā. DIESER ARTIKEL IST ZUR ZEIT NICHT LIEFERBARā and you will be informed when they are next in stock l
I was worried that this would happen . Just fill in yout email address in the box on the right underneath the announcement in red which says ā. DIESER ARTIKEL IST ZUR ZEIT NICHT LIEFERBARā and you will be informed when they are next in stock l
wedgewood
in
Pernicious Anaemia Society
4 months ago
Help with blood test results
I was diagnosed with Hashimotos over 40 yrs ago following removal of thyroid gland due to large goitre. Had some blood tests requested by my private Endo and just seen the result of one in particular in my GP app (even tho surgery said they couldnāt carry out the blood tests for private patients!). They
I was diagnosed with Hashimotos over 40 yrs ago following removal of thyroid gland due to large goitre. Had some blood tests requested by my private Endo and just seen the result of one in particular in my GP app (even tho surgery said they couldnāt carry out the blood tests for private patients!). They
Lottyplum
in
Thyroid UK
4 months ago
Unbelievable
I emailed my concerns about B12 prescribing to my local NHS board ;Integrated care board ICB) in October 2023. My concern mainly describing my B12 prescription being stopped/ challenged and on what grounds . Also asking on what evidence / papers were the 2-3 monthly regimes set from. Patients individual
I emailed my concerns about B12 prescribing to my local NHS board ;Integrated care board ICB) in October 2023. My concern mainly describing my B12 prescription being stopped/ challenged and on what grounds . Also asking on what evidence / papers were the 2-3 monthly regimes set from. Patients individual
Nackapan
in
Pernicious Anaemia Society
4 months ago
Achy feet
For the last 4 or 5 weeks my feet have been feeling so achy. Keep feeling like when you've spent a full day walking even when I've not walked very much at all, done 4000 steps today and I feel like I've been on my feet for hours. Not changed shoes or anything so wondering if it is to do with b12 or
For the last 4 or 5 weeks my feet have been feeling so achy. Keep feeling like when you've spent a full day walking even when I've not walked very much at all, done 4000 steps today and I feel like I've been on my feet for hours. Not changed shoes or anything so wondering if it is to do with b12 or
Clare184
in
Pernicious Anaemia Society
4 months ago
So difficult to pin it down
I have just completed seven weeks on Sertraline (Anti Depression meds) and after a rocky couple of weeks I gradually felt better. Iād would now say that mentally Iām back to my old self which is great. I decided that it was a good time to try to improve my acid reflux using lanzoprazole which I had
I have just completed seven weeks on Sertraline (Anti Depression meds) and after a rocky couple of weeks I gradually felt better. Iād would now say that mentally Iām back to my old self which is great. I decided that it was a good time to try to improve my acid reflux using lanzoprazole which I had
RoniB
in
IBS Network
4 months ago
Question about Celiac or NCGS...
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
I am wondering if anyone with NCGS gets neurological symptoms? I am also wondering about Celiac; if you test negative - does that mean you definitely are not Celiac? Last tests I got was when I was off gluten - blood and endoscope. So found nothing... Took a private finger prick one the other day, awaiting
Suffering_sunny
in
Gluten Free Guerrillas
4 months ago
B complex without biotin?
Hi - does a B complex without biotin exist? I am currently on 3 times a week B12 injections - long term - so I want to keep taking a B complex to keep the other Bs in balance, but I would also like to do a thyroid test soon. Any suggestions? Thanks
Hi - does a B complex without biotin exist? I am currently on 3 times a week B12 injections - long term - so I want to keep taking a B complex to keep the other Bs in balance, but I would also like to do a thyroid test soon. Any suggestions? Thanks
GW1000
in
Thyroid UK
4 months ago
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