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Vitamin B12 / Folic acid
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still low energy & weak arm/leg
Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision, hallucinations) I’m still experiencing very low energy on some days, I’ve gone from working full time and being very active to some days being
Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision, hallucinations) I’m still experiencing very low energy on some days, I’ve gone from working full time and being very active to some days being
Karenedawson
in
Pernicious Anaemia Society
4 months ago
Please advise re results.
I have a TSH of 0.005 ( 0.27-4.2) T3 of 5.9 ( 3.1-6.8) and T4 of 10.5 ( 12 -22). My pulse is 79. I am losing weight slowly with fasting from dawn till dusk twice a week but I am constipated, have little stamina ( I can only really do one thing a day eg if I go for a swim in the morning I am wiped
I have a TSH of 0.005 ( 0.27-4.2) T3 of 5.9 ( 3.1-6.8) and T4 of 10.5 ( 12 -22). My pulse is 79. I am losing weight slowly with fasting from dawn till dusk twice a week but I am constipated, have little stamina ( I can only really do one thing a day eg if I go for a swim in the morning I am wiped
Hectorsmum2
in
Thyroid UK
4 months ago
How overcome a high B12 test from when I must supplement to function?
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Pamelayne
in
Pernicious Anaemia Society
4 months ago
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Wrong time to reduce SSRIs?
I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms, nausea, tired, bit shaky, upset tummy, etc. Which I expected. Nothing too bad, but I’m just wondering if I would be better to wait until I have started
I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms, nausea, tired, bit shaky, upset tummy, etc. Which I expected. Nothing too bad, but I’m just wondering if I would be better to wait until I have started
Chickens44
in
Pernicious Anaemia Society
4 months ago
dark shadows in inside corners of eyes
what could cause these dark shadows in my granny's eyes, it's on both sides, it appears every few months and can last for months sometime. She gets b12 injections but her levels are fine and she had her last injection a week ago. Any thoughts are much appreciated
what could cause these dark shadows in my granny's eyes, it's on both sides, it appears every few months and can last for months sometime. She gets b12 injections but her levels are fine and she had her last injection a week ago. Any thoughts are much appreciated
MissyMe2
in
PMRGCAuk
4 months ago
Imbibe B12 Ampoules ?
hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful stinging. Give me pain injecting anytime over this. There is no way I m going to inject even 1 ampoule. So rather than waste them I can either
hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful stinging. Give me pain injecting anytime over this. There is no way I m going to inject even 1 ampoule. So rather than waste them I can either
Wheat
in
Pernicious Anaemia Society
4 months ago
Has anyone tried Neovos for an MMA urine test please?
Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them about current testing. Meanwhile these came up as offering a b12 urine test for £63,which is for MMA considerably cheaper than others available
Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them about current testing. Meanwhile these came up as offering a b12 urine test for £63,which is for MMA considerably cheaper than others available
Jo5454
in
Pernicious Anaemia Society
4 months ago
Quick Update
Still doing the work to find how to thrive and adjusting to improved suplimentation. I embrace not letting my neurological system languish in the smoldering that results in the current understanding of how to treat my neurological system by supplementation. Less must be the best. Elliot Overton's
Still doing the work to find how to thrive and adjusting to improved suplimentation. I embrace not letting my neurological system languish in the smoldering that results in the current understanding of how to treat my neurological system by supplementation. Less must be the best. Elliot Overton's
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Pascoe B12 in the USA?
Is it possible to buy the Pascoe B12 in the USA? Last B12 shot I had, one my insurance would allow, gave me an allergic reaction. Was told by some friends that I might be able to tolerate the Pascoe.
Is it possible to buy the Pascoe B12 in the USA? Last B12 shot I had, one my insurance would allow, gave me an allergic reaction. Was told by some friends that I might be able to tolerate the Pascoe.
highlandcottage8
in
Pernicious Anaemia Society
4 months ago
Help with Blood Results
Good Afternoon i have just received some blood results back and i am slightly miffed that my FT3 is out of range and that my TSH has increased. (bloods were taken at 8.30am with just having water that morning) i am on 100mg of levothyroxine (i always have the same brand which is mercury) and have been
Good Afternoon i have just received some blood results back and i am slightly miffed that my FT3 is out of range and that my TSH has increased. (bloods were taken at 8.30am with just having water that morning) i am on 100mg of levothyroxine (i always have the same brand which is mercury) and have been
Holeintheriver1
in
Thyroid UK
4 months ago
B12 injections - advice please
Hi, I have been diagnosed with hypothyroidism, but also have very low B12 levels (not clear if PA). I was prescribed B12 injections privately - Hydroxycobalamin. However, the pharmacy can issue me with the ampules, but no means to inject it so I’m into working out plan B. Possibly getting the ampules
Hi, I have been diagnosed with hypothyroidism, but also have very low B12 levels (not clear if PA). I was prescribed B12 injections privately - Hydroxycobalamin. However, the pharmacy can issue me with the ampules, but no means to inject it so I’m into working out plan B. Possibly getting the ampules
TheMudRunner
in
Pernicious Anaemia Society
4 months ago
B12 injections and holiday abroad
Hi, Just need some advice please on packing B12 ampoules and injection paraphernalia and going through security please. Thank you
Hi, Just need some advice please on packing B12 ampoules and injection paraphernalia and going through security please. Thank you
Fluffyone
in
Pernicious Anaemia Society
4 months ago
B12 - advice on injections please
Hi, can anyone tell me if there is a reason you should have Hydroxycobalbumin rather than Methylcobalbumin form of B12 injected..? Hydroxycobalbumin is the precursor of the other with Methylcovalbumin being the active form (from what I can tell) and both seem to be available in the UK for injection.
Hi, can anyone tell me if there is a reason you should have Hydroxycobalbumin rather than Methylcobalbumin form of B12 injected..? Hydroxycobalbumin is the precursor of the other with Methylcovalbumin being the active form (from what I can tell) and both seem to be available in the UK for injection.
TheMudRunner
in
Thyroid UK
4 months ago
Understanding Thyroid Test Results
This is the first time I have posted on this site. I have had hypothyroidism for 17 years now and had yearly blood tests. I must admit I have never understood what the result has meant other than the GP saying it's satisfactory. My recent test was Serum TSH level 2.14 mu/1. This means nothing to me and
This is the first time I have posted on this site. I have had hypothyroidism for 17 years now and had yearly blood tests. I must admit I have never understood what the result has meant other than the GP saying it's satisfactory. My recent test was Serum TSH level 2.14 mu/1. This means nothing to me and
Hidden
in
Thyroid UK
4 months ago
warning re gastroscopy and gastrografin for ME/CFS sufferers . Plus neuropathy ?
I saw a very nice colorectal surgeon who arranged a CT colonography - as I thought this would be physically less demanding than a full colonoscopy. Two days after the scan I spent the whole day throwing up violently. You can get a ‘rare’ delayed reaction to Gastrografin, the iodine contrast medium.
I saw a very nice colorectal surgeon who arranged a CT colonography - as I thought this would be physically less demanding than a full colonoscopy. Two days after the scan I spent the whole day throwing up violently. You can get a ‘rare’ delayed reaction to Gastrografin, the iodine contrast medium.
Applethorpe
in
Pernicious Anaemia Society
4 months ago
numb fingers while asleep
hi , I had a HA end of nov last year , while returning from an off-road motorbike session, rushed to hospital in Tenerife as we have a holiday home there, I received one stent and sent home after 5 days , at first all was good then after a while had anxiety and didn’t feel good , went back to hospital
hi , I had a HA end of nov last year , while returning from an off-road motorbike session, rushed to hospital in Tenerife as we have a holiday home there, I received one stent and sent home after 5 days , at first all was good then after a while had anxiety and didn’t feel good , went back to hospital
Jas4321
in
British Heart Foundation
4 months ago
Elderly mum exhausted, overweight, unmotivated, yellow tinge skin on sides of face
Hello, I'm really struggling trying to get the GP to sort my mum out. She's nearly 88yrs old and in the last few years has put on an excessive amount of weight, she was a size 12, now she is almost a 20! She is absolutely exhausted, just says she has no energy at all and barely gets dressed each day
Hello, I'm really struggling trying to get the GP to sort my mum out. She's nearly 88yrs old and in the last few years has put on an excessive amount of weight, she was a size 12, now she is almost a 20! She is absolutely exhausted, just says she has no energy at all and barely gets dressed each day
Pinkpetite
in
Thyroid UK
4 months ago
High Cholesterol
My doctor thinks I should take meds for high cholesterol. My levels have been just into abnormal for several years. When I read the side effects of statins, I am concerned. My PBC is stable, but I have hypertension in the doctors office, rarely at home. I am currently taking Urso, Synthroid, Gabapentin
My doctor thinks I should take meds for high cholesterol. My levels have been just into abnormal for several years. When I read the side effects of statins, I am concerned. My PBC is stable, but I have hypertension in the doctors office, rarely at home. I am currently taking Urso, Synthroid, Gabapentin
JubileePenny
in
PBC Foundation
2 days ago
Alpha Lipoic Acid.
Hi all, Has anyone tried Alpha Lipoic Acid for nerve pain? I am on Apixaban and can't find any contraindications with this supplement. The best formula is apparently R-Alpha Lipoic Acid, but this is very expensive. One reputable company sells a 50/50 mix of R-Alpha Lipoic Acid and the synthetic S-Alpha
Hi all, Has anyone tried Alpha Lipoic Acid for nerve pain? I am on Apixaban and can't find any contraindications with this supplement. The best formula is apparently R-Alpha Lipoic Acid, but this is very expensive. One reputable company sells a 50/50 mix of R-Alpha Lipoic Acid and the synthetic S-Alpha
Eddie49
in
Atrial Fibrillation Support
2 days ago
Generic Ursodiol brands
Hello everyone, I've been taking ursodiol for 8 years, since diagnoses in September 2016. All this time, I've been taking 500 mg, two tabs a day, generic brand called Actavis. My pharmacy (Cigna-Express Scripts) was able to supply me this generic brand every time. This year my insurance Medicare Plan
Hello everyone, I've been taking ursodiol for 8 years, since diagnoses in September 2016. All this time, I've been taking 500 mg, two tabs a day, generic brand called Actavis. My pharmacy (Cigna-Express Scripts) was able to supply me this generic brand every time. This year my insurance Medicare Plan
iagra
in
PBC Foundation
3 days ago
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