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Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
6 days ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
10 days ago
Elevated liver enzymes
Hello everyone, I'd like to share that my father experienced an increase in liver enzymes due to abiraterone usage. Doctor made the decision to halt the medication twice, each break lasting for a month. Notably, his liver enzyme levels decreased when he ceased taking the medication, but unfortunately
Hello everyone, I'd like to share that my father experienced an increase in liver enzymes due to abiraterone usage. Doctor made the decision to halt the medication twice, each break lasting for a month. Notably, his liver enzyme levels decreased when he ceased taking the medication, but unfortunately
worrywaffle
in
Advanced Prostate Cancer
9 months ago
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hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my FCR treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper. My blood counts were good, and I felt fine, but a relapse
steve5441
in
CLL Support
5 months ago
CYSTOSCOPY NEGATIVE August 2023
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Sharp5Flat13
in
Lung Conditions Community Forum
9 months ago
Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
13 days ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
13 days ago
Touchpoint Solutions for ADHD/Focus
My 8 yo daughter was diagnosed with ADHD last year. After a several month wait due to insurance and availability limitations, she is now in therapy and I think it will be very helpful for her. She continues to struggle in school. I hoping to avoid medication if I can, but I also know it will be some
My 8 yo daughter was diagnosed with ADHD last year. After a several month wait due to insurance and availability limitations, she is now in therapy and I think it will be very helpful for her. She continues to struggle in school. I hoping to avoid medication if I can, but I also know it will be some
Otter1313
in
CHADD's ADHD Parents Together
14 days ago
Does kidney function get affected by this?
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
FormulaRob
in
Advanced Prostate Cancer
9 months ago
Today's Rabbit Hole has ended in ThyForlife - a new(ish) thyroid health tracking app
I was looking into apps and bluetooth enabled digital thermometers on another post. As I went further I came across this app ThyForlife, developed by a Canadian Thyroid Cancer survivor. It is still an ongoing and developing project. It sets out to enable the user to track a variety of thyroid-related
I was looking into apps and bluetooth enabled digital thermometers on another post. As I went further I came across this app ThyForlife, developed by a Canadian Thyroid Cancer survivor. It is still an ongoing and developing project. It sets out to enable the user to track a variety of thyroid-related
Sneedle
in
Thyroid UK
9 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
7 months ago
Help getting B12 injections
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
Flowers2
in
Pernicious Anaemia Society
7 months ago
Metastatic Bone Cancer
Hello again, I started using Google to find out this info but then I recalled the community here telling me to NOT do that - I understood when I started reading the first post - ugg. Anyways, my question to you today is why can't we zap or otherwise kill the prostate cancer that has spread to the
Hello again, I started using Google to find out this info but then I recalled the community here telling me to NOT do that - I understood when I started reading the first post - ugg. Anyways, my question to you today is why can't we zap or otherwise kill the prostate cancer that has spread to the
Yzinger
in
Advanced Prostate Cancer
9 months ago
stressor after stressor
I went to the er last night because my heart rate was 153 and everything came back ok. They gave me medicine to lower my hr and sent me home. I’ve felt so anxious and my chest has been hurting ever since. I can’t seem to shake it. I just feel jittery and weird feeling under my ribs
I went to the er last night because my heart rate was 153 and everything came back ok. They gave me medicine to lower my hr and sent me home. I’ve felt so anxious and my chest has been hurting ever since. I can’t seem to shake it. I just feel jittery and weird feeling under my ribs
anonleo
in
Anxiety and Depression Support
5 months ago
Caffeine and Anxiety
I had an extra pot of coffee yesterday and noticed my anxiety was way worse than today, when I had only one cup. I did some research and see that there is a link between caffeine and anxiety/panic attacks. Does caffeine make your symptoms worse? I might have to stop consuming it altogether, or in
I had an extra pot of coffee yesterday and noticed my anxiety was way worse than today, when I had only one cup. I did some research and see that there is a link between caffeine and anxiety/panic attacks. Does caffeine make your symptoms worse? I might have to stop consuming it altogether, or in
davidthecoder
in
Anxiety and Depression Support
5 months ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
21 days ago
Belittling your Anxiety
I use to fear getting my anxiety attacks! Then something I read that has helped me over the years has been to belittle my Anxiety. Now, I have not fixed my problem but it did help. I used to hide that I had anxiety or intrusive thinking from everyone! Then I read a book that taught me to not
I use to fear getting my anxiety attacks! Then something I read that has helped me over the years has been to belittle my Anxiety. Now, I have not fixed my problem but it did help. I used to hide that I had anxiety or intrusive thinking from everyone! Then I read a book that taught me to not
Coolvibes311
in
Anxiety Support
5 months ago
Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
25 days ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
26 days ago
WHY ???????????
Like i have said, Pluvicto is the new method in fighting my long-time prostate cancer. I was diagnosed in 1999. This disease is so hard on the body and mind that it makes you want to throw in the towel, and scream, "Fights Over". " I was sitting in the television room , slouched down in my chair with
Like i have said, Pluvicto is the new method in fighting my long-time prostate cancer. I was diagnosed in 1999. This disease is so hard on the body and mind that it makes you want to throw in the towel, and scream, "Fights Over". " I was sitting in the television room , slouched down in my chair with
Kian28
in
Advanced Prostate Cancer
9 months ago
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