Experiences with

Visual impairment and blindness

Good morning all, Next Tuesday 8th April from 12:00-1:00pm, we are delighted to be hosting a webinar on the topic of 'Ovarian cancer and Diet: Mythbusting' with dietitian Rachel White. In this webinar, Rachel will give an overview on the current nutrition recommendations and research. The session

I have been taking Ibrance and Letrozole for approx 3 years. I am healthy and active and lead a healthy lifestyle but my cholesterol levels have skyrocketed. They were never monitored by my oncologist. This came about from getting a new general practitioner. I have been doing some research and have

Hey folks I've been researching and meeting with different doctors to get their recommendations for treatment. I'm zeroing in on a plan, but I'd like to get some feedback from you all. I was diagnosed in 2017 and have been on AS since. Recent testing (MRI, Biopsy, PET/CT scan) shows 3+4 with about

Underwent HDR BT October 2020 to treat 6(3+3), 7(3+4), and one unknown tumor missed by TRUS. Late 2024 PSA doubles from 1.51 ng/ml to 3.28 in 4 months, then to 5.08 four months later. Last Thur/Fri underwent PSMA PET and MRI at Roswell Park, Buffalo, NY. Major worry of metastasis is off the table

I need to decide. Urgency? Been on Lupron for 3 treatments now9months. Aware 5 - 10 year results similar. Where radiation much less side effects up front. long term +10 years rp has better recurrence free %. I would go radiation knowing I can do rp later if recurs, psa goes up. problem surgery

TTX-MC138, an RNA-based therapeutic targeting microRNA-10b, implicated in metastatic cancers is currently in Phase 1 clinical trial. The trial has progressed to its fourth cohort, administering a dose approximately 50% higher than the previous cohort, with no significant safety issues or dose-limiting

I have already written about this, it is, in a nutshell, a drug that prevents or reverses resistance to existing ARSIs. The safety lead-in phase of a Phase 2 trial for ENV105, an innovative therapy for metastatic, castration-resistant prostate cancer (mCRPC), has been successfully completed. The

Hi Im from nz and am 71yrs young a retired nurse and fit and healthy.. well thort I was. In 2020 right on covid lockdown i was,diagnosed with grade 1 lobular breast cancer. Told on the Monday biopsy wed op following Monday.. so quick..had 1,breast off recovered well then on anatrozole tabs..in 2022 following

OK....currently metachronous oligometastatic prostate cancer diagnosed this past Fall (2024). I had SBRT (MR-Linac)to the 2 positive iliac lymph nodes in early March and I am on 3 month shots of Erleada (started Mid January) and daily 2000mg of Abiraterone (Started Mid February). PSA at start of treatment

What's best for ostoepenia: LIFTMORE Study-type exercises, prolia, zometa, or something else?I have mild osteopenia. The oncologist offered Prolia but it has a 2.7/10 rating on webmd and drugs.com. Zometa has a 4.8/10 rating. Most people gave 1/10 ratings for Prolia. Zometa wasn't much better. I

Completed 5 months of Taxotere 1/10/25 and stopped Orgovyx and Prednisone (iADT) on 1/23. PSA dropped from 15.5 to 0.07 on 2/20 but rose to 0.17 on 3/20. Don't like the doubling time. MO appt is 4/27 following 4/20 blood test. Assuming continued PSA rise I expect to be back on ADT and also getting a

Frequent infections, rising CRP, and constant fever for several months. This is about my mom. She has metastasis in the liver and bones, and is on IV vinorelbine, which often gets interrupted because of the issues mentioned. Usually, no infection is confirmed, but she’s treated with various antibiotics

hi everyone, My mom recently got diagnosed with hormone positive breast cancer, with metastasis to the bones. She is currently on ibrance(125mg) and letrozole … anyone who has been through similar treatment, can you please guide any dietary or lifestyle changes that are to be made or any if anyone benifited

Ten days ago I believed that my husband aged 73 just had a really bad cough, two days later he had an emergency operation to save his life which meant a stent was implanted in his windpipe and the following day I was told he has aggressive lung cancer. We wil not know anything further for a few days

Hi all. I was diagnosed with HGSOC 3c at the end of January 2025. My Ca 125 was originally 7497 but went up to 9838 prior to my treatment starting. I had 2 drains for ascites before my first treatment of Bevacizumab, followed by Paclitaxel and then Carboplatin. At the end of the bag of Paclitaxel (3

I am a 44 year old female. Diagnosed Nov 2024 after months of heartburn/reflux.Did 3 rounds of FLOT. It was grueling and symptoms reached a peak at the end We thought might have to cancel our wedding-pre planned before diagnosis, but -miraculously I came right! We had a beautiful day, and honeymoon by

Hi there , I have read a few posts and find you all very caring , inspiring and helpful . I was wondering if anyone had the same issue as me . I had pneumonia and pleurisy in November 23 and had antibiotics and finally chest X-ray. This showed a pleural effusion so got sent for cat scan . This showed

Godt folk, I have moved on from Xtandi due to a new tumour development. My plots show that this one is slower to develop than the one that issued in my castrate resistance phase (see plot). I am now 5 years into this game and still symptom free. My main problem has been fatigue - which was markedly

I’m on watch and wait. My haematology appointment was yesterday. Tuesday I had very bad pain in my rib cage and the ambulance crew took me to A&E. Doctor sent me for a CT scan saying it could be a kidney stone. When he came back to see me he shut the door and sat on my bed. I knew something must be wrong

I am writing for my sister who is reluctant to communicate with anything other than facebook. Hopefully she will see the value in this forum. I have been subscribed to the advanced prostate cancer forum and have found it very useful. My sister was having all sorts of symptoms including postural orthostatic