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End Stage wet AMD
I have had great results for 12 years with injections in my left eye. I have had Eyelea and Avastin and Lucentis. Currently on Lucentis and my vision was 20/25 2 weeks ago. I developed wet AMD in my right eye a year ago. I agreed to participate in a clinical trial for either Lucentis or Avastin.
I have had great results for 12 years with injections in my left eye. I have had Eyelea and Avastin and Lucentis. Currently on Lucentis and my vision was 20/25 2 weeks ago. I developed wet AMD in my right eye a year ago. I agreed to participate in a clinical trial for either Lucentis or Avastin.
MsDirecto
in
Macular Society
4 years ago
CD1 Baseline scan .... cycle cancelled!!
Hello , just wanted to give a quick update . After waiting for ages for my period to arrive it did finally last night 🤦🏼‍♀️ Consultant had already rang me earlier in the day said let’s look at re gigging the plan and start maybe again at the end Feb... but anyway it arrived and they squeezed me
Hello , just wanted to give a quick update . After waiting for ages for my period to arrive it did finally last night 🤦🏼‍♀️ Consultant had already rang me earlier in the day said let’s look at re gigging the plan and start maybe again at the end Feb... but anyway it arrived and they squeezed me
Daisyjulia
in
Fertility Network UK
4 years ago
help. Dizzy and nauseous most of the day
hello, perhaps someone can help. I am at my wits end. one and a half years ago i suddenly got huge damage in left eye which was diagnosed as myopic macular degeneration late stage. Despite Avastin injections it slowly worsened and after changing to Eylea it continues to slowly worsen. 2 months
hello, perhaps someone can help. I am at my wits end. one and a half years ago i suddenly got huge damage in left eye which was diagnosed as myopic macular degeneration late stage. Despite Avastin injections it slowly worsened and after changing to Eylea it continues to slowly worsen. 2 months
ayeaye
in
Macular Society
4 years ago
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Perhaps raising the head of our bed a few inches. From Ian Fritzell's (a PWP) vlog last week. Who knows?? A mixed bag.
I have not tried this myself, so I do not vouch for it, but I find Ian to be a reliable, objective source and a good guy, so I'll try it tonight. Vlog #154 My Progress With Glycine, Thiamine, nocturia and Inclined Bed Therapy 4 min VLOG https://www.youtube.com/watch?v=PJX318q7ang 5 min https://www.youtube.com
I have not tried this myself, so I do not vouch for it, but I find Ian to be a reliable, objective source and a good guy, so I'll try it tonight. Vlog #154 My Progress With Glycine, Thiamine, nocturia and Inclined Bed Therapy 4 min VLOG https://www.youtube.com/watch?v=PJX318q7ang 5 min https://www.youtube.com
MBAnderson
in
Cure Parkinson's
4 years ago
Terrible situation for me...
Really peed off...I have glaucoma in one eye...so I went to hospital for another problem and took all my meds with me but was sent home...the next day they just wanted in for a few checks...however they kept me in for 3 days with no meds...I asked for some drops but they just said you'll be ok...I saked
Really peed off...I have glaucoma in one eye...so I went to hospital for another problem and took all my meds with me but was sent home...the next day they just wanted in for a few checks...however they kept me in for 3 days with no meds...I asked for some drops but they just said you'll be ok...I saked
Noelhoney
in
Glaucoma UK
4 years ago
Alien limb or primitive hand to mouth reflex?
My mother who has PSP/CBD is affected on her right side which does not move much. Today her right hand slowly floated up and she put her index fingertip in her mouth between her teeth. Fortunately she didn’t actually bite it. I don’t think she has a toothache and nothing seems to be hurting on her finger
My mother who has PSP/CBD is affected on her right side which does not move much. Today her right hand slowly floated up and she put her index fingertip in her mouth between her teeth. Fortunately she didn’t actually bite it. I don’t think she has a toothache and nothing seems to be hurting on her finger
Martina_MP
in
PSP Association
4 years ago
Calling all Prontogest experts!
Hello lovely ladies, Following on from my progesterone blood test today after transfer I’m now on prontogest injections every other day. This isn’t my first rodeo with these awful injections but haven’t done them for a while. Any top tips from anyone on them? My husband just did my first of this cycle
Hello lovely ladies, Following on from my progesterone blood test today after transfer I’m now on prontogest injections every other day. This isn’t my first rodeo with these awful injections but haven’t done them for a while. Any top tips from anyone on them? My husband just did my first of this cycle
hifer
in
Fertility Network UK
4 years ago
Retina bleed
Hi, just wondered if anyone else has had something similar to hopefully put my mind at rest. I’m 57, very myopic. I had retinal detachments in both eyes 27 years ago and my eyesight has been good, considering. At Christmas I had a couple of bangs on the head. The first one was me walking along a pavement
Hi, just wondered if anyone else has had something similar to hopefully put my mind at rest. I’m 57, very myopic. I had retinal detachments in both eyes 27 years ago and my eyesight has been good, considering. At Christmas I had a couple of bangs on the head. The first one was me walking along a pavement
Hidden
in
Macular Society
4 years ago
Is this a rectal prolapse?
Can rectal prolapse cause flat stools? I have a GI appt. coming up and I don't know where to start. I just had my third child 13 weeks ago. I am a 30 yo F. During my pregnancy I developed and urgency to have BMs and it hasn't let up. I wake up in the morning to have a BM almost immediately and it takes
Can rectal prolapse cause flat stools? I have a GI appt. coming up and I don't know where to start. I just had my third child 13 weeks ago. I am a 30 yo F. During my pregnancy I developed and urgency to have BMs and it hasn't let up. I wake up in the morning to have a BM almost immediately and it takes
Mommy_of_2
in
Pelvic Pain Support Network
4 years ago
Could it be Hyper Thyroidism
Hi guys Im having all sorts of health problems so trying to get to the bottom of it. I have been tracking my bloods for about 6 months and TSH went from 1.26 to .47 while C3 to 13. I have not been sleeping well last few months, waking up 5 or 6 times a night, also dry mouth, I know those bloods are in
Hi guys Im having all sorts of health problems so trying to get to the bottom of it. I have been tracking my bloods for about 6 months and TSH went from 1.26 to .47 while C3 to 13. I have not been sleeping well last few months, waking up 5 or 6 times a night, also dry mouth, I know those bloods are in
Ruggerhead
in
Thyroid UK
4 years ago
Webinar to explore the latest in research and treatment for DMO
The first condition of our condition-specific Virtual Clinic of 2021 will take place later this month, focusing on diabetic macular oedema (DMO) DMO is the biggest cause of sight loss in diabetics and it is a complication of diabetic retinopathy. It results in a condition very similar to wet age-related
The first condition of our condition-specific Virtual Clinic of 2021 will take place later this month, focusing on diabetic macular oedema (DMO) DMO is the biggest cause of sight loss in diabetics and it is a complication of diabetic retinopathy. It results in a condition very similar to wet age-related
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Anxiety
Hi all I’ve noticed myself that when I don’t feel right I start to worry and panic which cause my heart palpitations, then it cause symptoms like lightheaded, shaky, floaters in my vision, etc I need to calm it down everytime I panic which is hard to control the brain Any help by you experts been
Hi all I’ve noticed myself that when I don’t feel right I start to worry and panic which cause my heart palpitations, then it cause symptoms like lightheaded, shaky, floaters in my vision, etc I need to calm it down everytime I panic which is hard to control the brain Any help by you experts been
Davola77
in
Anxiety Support
4 years ago
Eye pain
I’m light sensitive, occasional eye pain but fortunately not bad at the moment. But there’s time yet. As you know fibromyalgia moves around your body. My worst are my back hips groin. Though I found out I have a prolapsed womb now as well and it’s hard to know what pains what. I’d go to the opticians
I’m light sensitive, occasional eye pain but fortunately not bad at the moment. But there’s time yet. As you know fibromyalgia moves around your body. My worst are my back hips groin. Though I found out I have a prolapsed womb now as well and it’s hard to know what pains what. I’d go to the opticians
Hidden
in
Fibromyalgia Action UK
4 years ago
RETINA BLEED
IS ANYONE ELSE HAVING DISTORTED VISION AFTER RECEIVING AVASTIN INJECTION.? IF SO PLEASE DESCRIBE WHAT YOU ARE SEEING
IS ANYONE ELSE HAVING DISTORTED VISION AFTER RECEIVING AVASTIN INJECTION.? IF SO PLEASE DESCRIBE WHAT YOU ARE SEEING
ricebet
in
Macular Society
4 years ago
Glutamate triggers!
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
wantokporo
in
Restless Legs Syndrome
4 years ago
Interpreting the results
Despite having had AMD since 2017 I don’t actually understand some of the terminology. “OCT indicated right eye
[i]drusen[/i]
and
[i]pigment epithelial detachment[/i]
with no intraretinal or subretinal fluid and left eye pigment epithelial detachment with subretinal and intraretinal fluid
Despite having had AMD since 2017 I don’t actually understand some of the terminology. “OCT indicated right eye
[i]drusen[/i]
and
[i]pigment epithelial detachment[/i]
with no intraretinal or subretinal fluid and left eye pigment epithelial detachment with subretinal and intraretinal fluid
Catseyes235
in
Macular Society
4 years ago
Is there any relationship between Bulged Belly button with B12 deficiency?
Hi all. Anybody knows belly button bulging related to B12 deficiency since I was diagnosed in 2013 with low B12 but didn't seek proper treatment and had injection for three times only . Since then gradually many symptoms started to develop. At the beginning it was just losing muscle volume then problem
Hi all. Anybody knows belly button bulging related to B12 deficiency since I was diagnosed in 2013 with low B12 but didn't seek proper treatment and had injection for three times only . Since then gradually many symptoms started to develop. At the beginning it was just losing muscle volume then problem
Hamayeshguy
in
Pernicious Anaemia Society
4 years ago
Emdr for guilt and shame
Can Emdr help when one suffers from guilt and shame when they inadvertently harmed someone else? My friend’s son is bi polar and did something very foolish to someone.....did not cause physical harm....yet feels extreme guilt and shame. Thanks.
Can Emdr help when one suffers from guilt and shame when they inadvertently harmed someone else? My friend’s son is bi polar and did something very foolish to someone.....did not cause physical harm....yet feels extreme guilt and shame. Thanks.
Hidden
in
Heal My PTSD
4 years ago
Does anyone wear a medical bracelet or other form of medical information alert showing their RA, Fibro, AS, Sjogrens, etc status?
Medical Alert
Medical Alert
movinalong11
in
NRAS
4 years ago
Emdr
EMDR has helped me a bit although still having blackouts There is no wright or ring with emdr. Good luck
EMDR has helped me a bit although still having blackouts There is no wright or ring with emdr. Good luck
Mark_Stevens
in
Heal My PTSD
4 years ago
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