help. Dizzy and nauseous most of the day

[ayeaye]

hello, perhaps someone can help. I am at my wits end. one and a half years ago i suddenly got huge damage in left eye which was diagnosed as myopic macular degeneration late stage. Despite Avastin injections it slowly worsened and after changing to Eylea it continues to slowly worsen. 2 months ago macular degeneration started in my good right eye but after 2 eylea injections it is now back to normal. Having different images from each eye makes me dizzy and sick, already for more than a year. My specialist had never had anyone complain about this before and said I would get used to it in 6 months, which didnt happen. A second opinion specialist said I would get used to it in one and a half years, which hasnt happened. A help group told me I probably just am sensitive to dizziness in general, which is true. It is a huge problem as my work is drawing. But any kind of visual concentration makes me even sicker. How can I fight the dizziness so I can feel better and lead a more normal life? I tried in the morning drinking water with lemon and ginger and chewing ginger all day. i think it helps a bit. Trouble is, because the vision keeps deteriorating i dont have enough time to get used to one situation.Feeling sick all the time I am getting quite miserable. The worst is from getting up in the morning till about 3 in the afternoon. After that its doable. Does anyone else have this? or know some idea to help? thanks, sorry to whine

[Hidden]

Hi, the only thing I can think of is to wear an eye patch so your brain is only dealing with input from one eye.Maybe smart glasses would help ( eg my hubby's IrisVision headset balances his vision, I think it's to do with something called summation). Why don't you ask for a free demo of a few types like we did? VisionAid UK was the company we used, I would happily recommend them. No pressure, excellent after sales support.

The tech isn't cheap but over the years you would use it works out OK I think.

[ayeaye in reply to Hidden]

hello eyesright, thanks for your helpful reply. I was also thinking of smart glasses but there are so many i didnt know how to begin. Indeed I think summation sounds like the crux of the matter. I am in the Netherlands , and nobody at the hospital has mentioned that balancing vision might help. I didnt know that its possible to try products at home, that is excellent. There are equivalent organizations here to VisionAid UK so I can contact them. Did your husband find it easy to adjust to the smart glasses, or does it take time ?

[Hidden in reply to ayeaye]

He could see better immediately. He does find them tiring though so doesn't wear them all the time. Everyone will be different though. He has the fully enclosed VR style headset. There were other types of smart glasses less bulky which he didn't find good as they projected the image but he could 'see' around it which his vision wasn't compatible with but you may well like them. Again, his vision wasn't suitable for the Oxsight ones either.I'm just about to enquire about the new Eyedaptic smart glasses which look like a possible intermediary style between the two.

Good luck.

[Bluegreensea]

Blimey aye aye - never apologise, or refer to your issues as whining. This sounds dreadful, and I am sorry it is happening.

Is acupuncture something you would consider? Several people have reported success with this on here for various conditions.

I am a big believer in herbal medicine, Chinese medicine included. Is this an avenue worth exploring? (I am now off the books at my Eye Clinic for the foreseeable future, excuse the pun - coincidence? Who knows...)

Pinhole glasses may be worth trialling to give your eyes a rest from looking through a powerful lense. I bought a pair online for around £10 last spring.

Good luck

BSG

[ayeaye in reply to Bluegreensea]

thanks for your kind reply bluegreen sea,

I dont fancy acupuncture because of the needles but i will look into it for dizziness. If nothing else helps I would certainly have a go. Chinese medicine is also a good idea, one I hadnt thought of it. I know it can be effective because I used for something else once.

I bought pinhole glasses to try. They are very interesting, but I dont think they can help.

But thanks for the chinese medicine idea, hope they are open in lockdown (i am in Netherlands). thanks