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I have some questions that maybe someone can help me with.
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Willow7733
in
LUPUS UK
10 months ago
GCA and Vision update
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
Lenore58
in
PMRGCAuk
10 months ago
Post Pacemaker
Hi Everyone need some information please. Going into week 6 of recovering from Pace Maker operation on 27th October. Its no picnic is it! Anyway still lots of bruising from being on warfarin I believe. Prior to op I had fallen over several times broke my wrist etc. Hence decision by cardiologist to
Hi Everyone need some information please. Going into week 6 of recovering from Pace Maker operation on 27th October. Its no picnic is it! Anyway still lots of bruising from being on warfarin I believe. Prior to op I had fallen over several times broke my wrist etc. Hence decision by cardiologist to
CHRISAF18
in
AF Association
10 months ago
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Any Tips/Advice for Vascular Surgery Appointment coming up…?
I have been referred to see Vascular Surgery and my appointment is in a few weeks. The physio I am seeing for neck and shoulder pain asked my GP to refer me due to frequent left sided pain in my neck arm and shoulder blade and also facial symptoms on left side. She wants to make sure there isn’t anything
I have been referred to see Vascular Surgery and my appointment is in a few weeks. The physio I am seeing for neck and shoulder pain asked my GP to refer me due to frequent left sided pain in my neck arm and shoulder blade and also facial symptoms on left side. She wants to make sure there isn’t anything
MsWhistledown
in
Thyroid UK
9 days ago
Ruminating.
Age piles the years on one by one Yet we try to do as we've always done The body gets weak but the mind stays strong Maybe that's where we all went wrong We should perhaps throw caution out And rid ourselves of those fears and doubt Unshield ourselves and put it about Get really drunk and rage
Age piles the years on one by one Yet we try to do as we've always done The body gets weak but the mind stays strong Maybe that's where we all went wrong We should perhaps throw caution out And rid ourselves of those fears and doubt Unshield ourselves and put it about Get really drunk and rage
Donald_1931
in
Lung Conditions Community Forum
10 months ago
microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
10 months ago
What doesn't mix well with Coumadin?
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Corporal_Canada
in
Hughes Syndrome APS Forum
10 months ago
The Dreaded MR
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
ArtfulLyricist
in
Fibromyalgia Action UK
10 months ago
Needing some suggestions to sitting for hours in hospital
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
Pefki
in
Anticoagulation Support
10 months ago
The continuing saga of the purple toe
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant
KatyB
in
Cholesterol Support
11 months ago
QoL: Moonrise at a liminal place No. 2
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops
BrentW
in
Advanced Prostate Cancer
5 months ago
Feeling a bit like a train wreck !!
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
adnewg73
Graduate
in
Couch to 5K
11 months ago
For patients with GCA vasculitis
Dear fellow vascies, can I ask you to complete this very short survey?
I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA.
The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life
Dear fellow vascies, can I ask you to complete this very short survey?
I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA.
The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life
zoe69
in
PMRGCAuk
11 months ago
PALB2 genetic defect-Lynparza
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
Azores1
in
Advanced Prostate Cancer
11 months ago
Amlodipine
Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this
Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this
Mrsd12f
in
PMRGCAuk
11 months ago
APS or sticky blood syndrome
having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for
having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for
pj1954
in
Pernicious Anaemia Society
11 months ago
Flare up
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Jocelyn344
in
PMRGCAuk
11 months ago
3 years Runniversary
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
Yesletsgo
Graduate
in
Couch to 5K
7 months ago
Cll and Statins - Thank you for your responses
Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol
Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol
TheFlyer
in
CLL Support
7 months ago
Tests
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
Ceasersalad
in
IBS Network
6 months ago
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