Experiences with

Vascular conditions

My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones

hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all

Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now

As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without

I painted three versions of this mixed media work, being drawn repeatedly to the reference photograph. It is a place called Cwmtudu (pronounced Coom-ti-di to my American and, I imagine, most of my English friends here), and here we are looking down jnto the valley from a rocky outcrop on some clifftops

Hi Everyone need some information please. Going into week 6 of recovering from Pace Maker operation on 27th October. Its no picnic is it! Anyway still lots of bruising from being on warfarin I believe. Prior to op I had fallen over several times broke my wrist etc. Hence decision by cardiologist to

Age piles the years on one by one Yet we try to do as we've always done The body gets weak but the mind stays strong Maybe that's where we all went wrong We should perhaps throw caution out And rid ourselves of those fears and doubt Unshield ourselves and put it about Get really drunk and rage

Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA

Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep

I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send

I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am

Surprise, surprise, after having a MRI scan of my legs, an echocardiogram, an ECG and a twenty four hour heart monitor, no trace of blockages except what the consultant called a 'pinch' in a leg artery, suspected of causing a blood clot and the purple toe. But, on my last appointment with the consultant

How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going

Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by

A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press

Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol

Dear fellow vascies, can I ask you to complete this very short survey? I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA. The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life

I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends

Hello everyone, I realise this may not be relevant on this site, but I’ve been struggling with palpitations and anxiety for a few months. I had put this down (see previous posts) to the adrenals not wanting to play ball after their nice long holiday, due to Pred, but it suddenly dawned on me that this

having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for