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A quick update for those that remember my recent posts about the Ablation complications!
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
AmandaLouise77
in
Atrial Fibrillation Support
5 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
5 months ago
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Nebivolol and cold toes/fingers?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
kitenski
in
Atrial Fibrillation Support
5 months ago
Pre-diabetic. Related?
Been feeling really draggy and have had a cold which will not go away for a month. So got a physical. Only abnormality was fasting glucose at pre-diabetes level. Blood sugar has always been low. Diabetes in my family so I am very careful. I am probably 10 lbs overweight, not a lot ( 5' 3" size 8).
Been feeling really draggy and have had a cold which will not go away for a month. So got a physical. Only abnormality was fasting glucose at pre-diabetes level. Blood sugar has always been low. Diabetes in my family so I am very careful. I am probably 10 lbs overweight, not a lot ( 5' 3" size 8).
Sister65
in
PBC Foundation
5 months ago
Eye drops
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Waddy72
in
Macular Society
5 months ago
B12 Def + Porphyria possible connection!
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
GracePV
in
Pernicious Anaemia Society
5 months ago
Unilateral or bilateral procedure?
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
GreyhoundFriend
in
Glaucoma UK
6 months ago
Confusion! Help please! Ear plug in one ear/ Singer/ worse tinnitus
Hi guys, So, I'm a singer and am trying virtually every earplug/IEM/custom mould solution I can to try and get to s good place with it. I think my tinnitus was caused by loud singing gigs, one particular week 2 years ago where I really pushed the PA volume. I now always use hearing protection
Hi guys, So, I'm a singer and am trying virtually every earplug/IEM/custom mould solution I can to try and get to s good place with it. I think my tinnitus was caused by loud singing gigs, one particular week 2 years ago where I really pushed the PA volume. I now always use hearing protection
Fulltimemuso
in
Tinnitus UK
6 months ago
Ureter Restriction from Radiation Treatments?
While I don't have any symptoms (yet), a CT scan and ultrasound tests show that the lower part of my right ureter tube is very narrow and causing the kidney to swell, apparently from restricted flow of urine through the ureter. My University of Chicago Medicine urologist suspects scarring in the ureter
While I don't have any symptoms (yet), a CT scan and ultrasound tests show that the lower part of my right ureter tube is very narrow and causing the kidney to swell, apparently from restricted flow of urine through the ureter. My University of Chicago Medicine urologist suspects scarring in the ureter
Polaris1
in
Advanced Prostate Cancer
6 months ago
Hyperglycemia from levothyroxine
Has anyone had success coming off of levothyroxine after many years? Does the thyroid function come back around on its own? Can blood sugar be improved by stopping the levothyroxine?
Has anyone had success coming off of levothyroxine after many years? Does the thyroid function come back around on its own? Can blood sugar be improved by stopping the levothyroxine?
Dryski
in
Thyroid UK
6 months ago
Low eye pressure
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
Ella59
in
Glaucoma UK
6 months ago
Suddenly Urinary Leakage just walking around, then I have to push / strain to urinate, PSA rising, prostatectomy leakage resolved
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Sage Therapeutics scraps Parkinson's drug development after treatment fails mid-stage study
https://www.xm.com/research/markets/allNews/reuters/sage-therapeutics-scraps-parkinsons-drug-development-after-treatment-fails-midstage-study-53814940
https://www.xm.com/research/markets/allNews/reuters/sage-therapeutics-scraps-parkinsons-drug-development-after-treatment-fails-midstage-study-53814940
Farooqji
in
Cure Parkinson's
6 months ago
night time pains
I have posted a number of times about night time pain …which I am still getting! However by taking an enema each morning when waking I get rid of the wind and normally have a bowel movement and can have a good day. However at night when going to bed I get wind and two hours later I am awake. I get
I have posted a number of times about night time pain …which I am still getting! However by taking an enema each morning when waking I get rid of the wind and normally have a bowel movement and can have a good day. However at night when going to bed I get wind and two hours later I am awake. I get
Reindeer1
in
IBS Network
6 months ago
Bruising
Hello all- I have been on Hydroxyurea for my ET for 3 years and have recently started bruising quite a bit even though I have been on Plavix and aspirin for 3 years as well. None of my doctors have an answer which is really frustrating as I look like I have been beat up because the bruising is so bad
Hello all- I have been on Hydroxyurea for my ET for 3 years and have recently started bruising quite a bit even though I have been on Plavix and aspirin for 3 years as well. None of my doctors have an answer which is really frustrating as I look like I have been beat up because the bruising is so bad
Auggie17
in
MPN Voice
1 year ago
onset of symptoms after shot
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Jjjmmm
in
Pernicious Anaemia Society
6 months ago
A few questions about being a. ‘Glaucoma suspect’
Hi, first post for me. I’ve been reading your messages since February and they have been very helpful so thank you all!! This is the rather longwinded background: My husband was picked up at a routine eye test as having some changes suggestive of glaucoma. He was seen pretty quickly (within 2-3 weeks
Hi, first post for me. I’ve been reading your messages since February and they have been very helpful so thank you all!! This is the rather longwinded background: My husband was picked up at a routine eye test as having some changes suggestive of glaucoma. He was seen pretty quickly (within 2-3 weeks
NCFCfan
in
Glaucoma UK
6 months ago
Somebody asked why I take Berberine. I figured it something good to share.
Yeah, I need to write down why I take things (I forget why eventually).
So Berberine:
1: It suppresses viruses, including EBV. I think viruses may play some role in PD (I have not been diagnosed with PD. I have RBD and a sore shoulder and some other troubling symptoms): https://healthunlocked.com
Yeah, I need to write down why I take things (I forget why eventually).
So Berberine:
1: It suppresses viruses, including EBV. I think viruses may play some role in PD (I have not been diagnosed with PD. I have RBD and a sore shoulder and some other troubling symptoms): https://healthunlocked.com
Bolt_Upright
in
Cure Parkinson's
6 months ago
Iodine and Povidone - A Chemistry Lesson
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
helvella
Thyroid UK
in
Thyroid UK
6 months ago
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