Experiences with

Vascular conditions

Join me in registering to raise awareness of vascular conditions such as PAD for Vascular Awareness Month. We are walking the arterial tree which is 60,000 miles as a community effort. Funds raised will go to improve patient support and research.

Hello, Everyone. I'm one of the new kids on the block. Yes, it's the block across the Pond. Other details about my disease: SRSF2 and del(20Q) and platelets only in the 450-500 range, some brain fog, painful erythromelalgia in my fingers at times, some fatigue, mild itching, 72 years old, taking only

Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are

Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour

I have just had a phone call from the pharmacist at my GP surgery. Because recent blood test indicated that my kidneys are not functioning well, he is suggesting that I change from Apixaban to Edoxaban 30mg as this will ensure that there will not be an excess of anticoagulant in my body which could

I am Getting a little fed up with the public being told it's a coincidence. Whenever someone seems to be suffering 'effects' following the jab. They said the blood clots had little to do with the jab and now just a couple of weeks later i suspect we are all thinking ....crap ! I've had that particular

Whilst not a respiratory disease, it is caused through smoking and others might find it interesing. I have written before about having to push through the the excruciating pain whilst walking to improve the condition, here is a study about it. ---------------------------------------------------------

Hi everyone I hope you all had a happy, chocolate filled Easter. Sorry I am late but I have been very miserable. A prolonged bout of cellulitis, with phlebitis and then an accident. I slipped and twisted my knee getting into the car. I felt a ping and hot burning pain into my groin and down my ankle.

Does anyone have problems with lung capacity due to Parkinson's Disease, I have every medical exams you can think of, but after exerting myself for 5 minutes I have trouble breathing and mild chest pain.

I was diagnosed with UC about 20 years ago and have been in remission for a while but have constipation. I'm prescribed Mezavant XL and docusate sodium, when I remember to take them. I've also been taking slippery elm and psyllium husk more often as prefer to take this in an attempt to keep me regular

During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine

Has anyone else had bleeding problems when switching from warfarin to xarelto? My INR’s have been all over the map and my Dr. decided to put me on xarelto when my INR came down to 2.2. I stopped the warfarin and started taking 20mg of xarelto a day and after 2 doses I started seeing blood in my urine

In 2018 i started taking amlodipine and losartan for high blood pressure and ive only just noticed (2021) that soon after starting the Blood Pressure meds i started with IBS, has anyone else noticed this too?

I missed the earlier discussion on pip for anticoagulation too. I was advised 20 years ago to take warfarin but as my afib episodes are once twice a year I felt I was too young. I asked my GP last month if I could try Apixaban as PIP as I’ve had 3 episodes during lockdown all lasting 5/6 days - he said

Has anybody had there dna tested. I question this as mine was double stranded DNA. Now to family.... numerous family with b12. I believe this to be from mothers side. Gran, mother sister all crippled, all passed away, other sister dementia, legs swollen etc etc. Mothers 5 brothers all died from abdominal

Hi succumbed to the male ego and over did a charity cycle without adequate preparation. Upshot I ended up with DVT behind my knee joint. It’s been 6 months now and walking is fine but if I try to cycle it’s uncomfortable. So still taking the Rivaroxoban. Anybody had similar experience ? Just wondering

My right calf swells up when I've been working and now I have a small rash on to varicose veins should I go and see a a doctor

Hi everyone, am due for my prolia injection today but want to talk to my Dr. I have read MPN May increase risk of fractures but I hate this prolia as if you stop there is an increased risk of fracture! Being on clopidergrel, HU, Apixaban already feels like enough... am really tempted to just up the exercise

After my stroke in 2016 I fought back with Tom Balchin's book and was doing really well (2 mile walks etc); then heart failure, then op etc. Now I don't know whether I'm on foot or horseback! On good days I can walk quite fast on soft ground, then next day I'm very wobbly indeed, and slightly dropping

Warning: this is going to be TMI but I figure if I can’t share my worry here, where can I?! The last couple of days I’ve noticed blood in my stool - there’s occasionally been traces in the past which I’ve figured have been related to my post-childbirth haemorrhoids (thanks, kids! 🙄😂). This is definitely