Experiences with

Vascular conditions

Hypothyroidism since 2024 Coronary Heart disease - stent since 2009 Pulmonary fibrosis since 2022 Vascular conditions - Carotid operation 2023

Hi everyone, I was diagnosed with Interstitial lung disease in 2021 as a result of rheumatoid arthritis. My lung function has progressively deteriorated since. I saw the consultant this morning who has suggested I have a bronchoalveolar lavage. I am looking for a bit of reassurance as I am very anxious

This months Dr John Day’s newsletter about research into strokes and lifelong anticoagulation . There is an extract below but the gist is the suggestion that the stroke risk has been overestimated particularly in women and the elderly

I am currently on 4 mgs of pred since last April, which surgeon and anesthesiologist aware of, hip replacement in few days, usually take pred in morning with food, instructions prior to surgery at 8 am are no food after midnight, no water coffee etc after 5 am that morning, and after surgery no solid

I am into my 2nd week of reducing 9mg to 8mg of methylprednisolone. Doing the 5 week tapering plan. I have pain in my hips at 3.30am when I get up to take my steroids but when I awake at 8am I am comfortable with no pain the rest of the day . Is this normal to have pain at 3.30am . Is It advisable to

Has anyone on anticoagulants used a grounding/ earthing device, e.g mat or sheet that it is suggested grounds one as if walking barefoot in contact with the ground.It suggests lots of advantages BUT says if on medication, into hypertensive, diabetic meds or anticoagulants your doctor should be consulted

I want to share my recent experience in case it's helpful to others. I've had Raynaud's since I was in my late teens, 60 years ago. I was diagnosed with PV in 2019 and have been taking Hydrea ever since. Every winter, because of the Raynaud's, I get small painful sores that look like blood clots in

Blocked femoral arteries diagnosed 9/2023, PMR Jan 24 although I had had it since June 23. I also have controlled high BP. Since last year my rheumatologist has requested my GP does a 2 monthly blood test on my markers as they think the PMR may have inflamed my arteries. I have never had raised markers

Hi, Just wondered if folks here have had DVT's. My husband 9 years dx with PD..hes really active and eats great, but does fly often has developed a DVT in his right leg. Is there any connection to higher risk of blood clots with Parkinsons ? Or could that be a side effect of C/L ? Any helpful info

Hello everyone, I have a different insurance provider for 2025 and their first order of business was to flag big-ticket treatments. Of course Actemra made it onto their list. They've agreed to cover its FDA-approved biosimilar, called Tyenne. As a GCA/ PMR sufferer currently stable (on weekly Actemra

hello I am hoping someone can resolve something for me .I was diagnosed with ET plus Jak2 in 2022 treatment since then I have been on Hydroxycarbamide plus aspirin on the whole I manage it all fairly well and feel fortunate at 80yrs to enjoy a busy life . My question is on my NHS. GP record it states

I was diagnosed with PMR in December 2019. Up and down on prednison. Recently, I went to a new Rheumie. He reviewed my entire file and commented that i had an ANCA level that was "wildly positive" in 2020. Told me no one appears to have followed up. He went through lots of questions re symptoms like

I’m a 71-yr old female whose platelets have been elevated for 7+ years. They bounced around 400-450 for years, then went up to 450-500 in 2022-2023. A biopsy in Jan 2024 confirmed JAK2 mutation. My platelets moved as high as 550 in mid-2024 but are now down to 470-490. I have been advised to take hydroxyurea

My mother was on 18 weekly cycle treatment for 3c ca ovary. It's her third time recurrence in last 9 years. Her ca125 had come down to 43 on 16th cycle and then she got pulmonary embolism with right heart strain. Her both arteries were blocked. After treatment her Ca125 shot up to 200 and onco said her

Following a successful ablation I have not had Afib for two and one half years. I am 74 years old and prone to falls because of a balance problem. So, because I am taking Eliquis, I worry about bleeding from a fall. I am going to buy an Apple Watch which will alert me to an irregular heart beat and also

My husband has been taking hydroxyurea for ET for 2 weeks now with no ill effects. His recent blood test showed that his platelets were slightly lowered but has been told to take two tablets every other day and one on the others.How long does it take for the medication to make any significant effect

I’m Jak 2 positive diagnosed with ET. Currently taking hydroxycarbamide and aspirin. Does anyone take Methylated vitamin?

for a few months i have had problems with my hands. I am a online shopper in a supermarket. I only shop the 2 coldest parts of the store frozen and chilled. My fingers are getting very cold burning and numbness. I have just gone to pick my daughter up from work and had to wait 10 mins for her. By the

I developed undiagnosed PMR and blocked femoral arteries a few weeks apart in summer 2023. PMR Medics now pretty sure the PMR inflammation blocked my arteries, but likely not there now but scar tissue blocking them. Rheumy is requesting another pet scan to check. If the inflammation is still there

Switching from Lupron to Orgovyx due to bad reaction to Lupron. 18 months into Firmagon/ Eligard/Lupron and Abiraterone. PI for Orgovyx says loading dose of 3 pills. One pharmacist and one doctor said no need to take loading dose. Another pharmacist said loading dose is necessary. Does taking Lupron