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Can you help? If you have any vascular disease, what would you like researchers to look at?
This is from the website: “Please tell us about what questions you have about the prevention, diagnosis, or treatment of
vascular
conditions
you would like to see answered by research. You can ask as many or as few questions as you wish.
This is from the website: “Please tell us about what questions you have about the prevention, diagnosis, or treatment of
vascular
conditions
you would like to see answered by research. You can ask as many or as few questions as you wish.
Azathioprine as preventive measure for 20 year stable lung fibrosis in SS??
I stopped immunosuppression 2001 and have no progression of my pulmonary fibrosis at all. Now my new doc wants to put me back on a low dose of azathioprine as a preventive measure, to slow down future progression. I have high titre 1:1280 but remain asymptomatic. My lung tests and TAC show no changes
I stopped immunosuppression 2001 and have no progression of my pulmonary fibrosis at all. Now my new doc wants to put me back on a low dose of azathioprine as a preventive measure, to slow down future progression. I have high titre 1:1280 but remain asymptomatic. My lung tests and TAC show no changes
Strange poop
Hi Everyone. I've joined on behalf of my husband who has IBS. He's getting quite worried about his toilet trips. His poo looks fine but the water is sort of murky everytime he goes. I don't think worrying about this is helping his IBS so it would be great to know if anyone else experiences this too.
Hi Everyone. I've joined on behalf of my husband who has IBS. He's getting quite worried about his toilet trips. His poo looks fine but the water is sort of murky everytime he goes. I don't think worrying about this is helping his IBS so it would be great to know if anyone else experiences this too.
Anxiousness
I do not do well around crowds; usually I become anxious and nervous about surroundings. Tonight is the first time I have been around a large crowd and it seems like my spasticity in my legs is tremendously worse. Has anyone had this occurrence? Or is it just me?
I do not do well around crowds; usually I become anxious and nervous about surroundings. Tonight is the first time I have been around a large crowd and it seems like my spasticity in my legs is tremendously worse. Has anyone had this occurrence? Or is it just me?
Well, this is weird!
Took my evening tablets, & you know that odd feeling when you feel one has got stuck at the back of your throat? Just drank some extra water & carried on preparing dinner, but got a horrible stinging sensation in the back of my nose/pharynx tried gargling & even sniffing some water 😖🤧. Half an hour
Took my evening tablets, & you know that odd feeling when you feel one has got stuck at the back of your throat? Just drank some extra water & carried on preparing dinner, but got a horrible stinging sensation in the back of my nose/pharynx tried gargling & even sniffing some water 😖🤧. Half an hour
Lupus Has Nerve Shows Large International Study
January 6, 2020 New research published in Arthritis and Rheumatology shows that peripheral nervous system (PNS) disease is an important part of neuropsychiatric lupus with significant effects on quality of life. The peripheral nervous system is the network that sends signals between the brain and spinal
January 6, 2020 New research published in Arthritis and Rheumatology shows that peripheral nervous system (PNS) disease is an important part of neuropsychiatric lupus with significant effects on quality of life. The peripheral nervous system is the network that sends signals between the brain and spinal
Hydrea Query
Just wondering if anyone has had abnormal liver function resuls while being on Hydrea? My platelets quickly dropped, but liver function enzymes elevated
Just wondering if anyone has had abnormal liver function resuls while being on Hydrea? My platelets quickly dropped, but liver function enzymes elevated
Ongoing RLS sufferer
I have been a sufferer of RLS for ten years and more and currently on increasing dose of Ropinirole which has been more successful than pramixepole and gabapentin for me. I have noticed if I get ill with cold/flu the RLS disappears. Not a good exchange though but it helps me to sleep through illness
I have been a sufferer of RLS for ten years and more and currently on increasing dose of Ropinirole which has been more successful than pramixepole and gabapentin for me. I have noticed if I get ill with cold/flu the RLS disappears. Not a good exchange though but it helps me to sleep through illness
Trajectory....upwards~!
So many of you wrote such encouraging and wise words....the last few days have been appointments to get to and people coming in. Everything seems to be such a 'big deal' and when I get back home and stretch out...I fall asleep for a few hours. I think 'I'm such a big deal and so tough and capable' and
So many of you wrote such encouraging and wise words....the last few days have been appointments to get to and people coming in. Everything seems to be such a 'big deal' and when I get back home and stretch out...I fall asleep for a few hours. I think 'I'm such a big deal and so tough and capable' and
Avascular Necrosis of femoral head (AVN)
Dx with GCA in March/19, never had a single symptom of arthritis/pmr/or any joint problem of any sort in my life. Have now tapered to 13mg prednisone, now quite suddenly over the last 2 wks, terrible hip pain on left side only. Did not injure it that I know of. Routine scan in Sept showed -2.5 of femoral
Dx with GCA in March/19, never had a single symptom of arthritis/pmr/or any joint problem of any sort in my life. Have now tapered to 13mg prednisone, now quite suddenly over the last 2 wks, terrible hip pain on left side only. Did not injure it that I know of. Routine scan in Sept showed -2.5 of femoral
Rivaroxaban
Dear all. My mother had a stroke 18 months and was on apixaban until recently. The apixaban caused chronic constipation so she was finally swapped to rivaroxaban in November. Since then she has had far more a-fib episodes than before and has been passing out frequently and ended up in A & E four
Dear all. My mother had a stroke 18 months and was on apixaban until recently. The apixaban caused chronic constipation so she was finally swapped to rivaroxaban in November. Since then she has had far more a-fib episodes than before and has been passing out frequently and ended up in A & E four
Feeling of fluid in my head
Hi! I just had a rushing feeling of liquid in the top left side of my head and I think it felt warm. I’ve never experienced this before and worried it something in my head. I have a brain aneurysm that’s small but I’ve been what it would feel like if it burst and the pain. It was weird and I know I didn
Hi! I just had a rushing feeling of liquid in the top left side of my head and I think it felt warm. I’ve never experienced this before and worried it something in my head. I have a brain aneurysm that’s small but I’ve been what it would feel like if it burst and the pain. It was weird and I know I didn
May Be of Interest
Corticosteroids and risk of gastrointestinal bleeding: a systematic review and meta-analysis. I came across this when I had need to look for info on the matter re OH having some problems as well as his PMR/GCA and daughter plus her OH were anxious. It's on the BMJ open website and also PubMed. https
Corticosteroids and risk of gastrointestinal bleeding: a systematic review and meta-analysis. I came across this when I had need to look for info on the matter re OH having some problems as well as his PMR/GCA and daughter plus her OH were anxious. It's on the BMJ open website and also PubMed. https
sulfamethoxazole I’m taking this medicine along with other meds my stomach hurts so bad I’m going to see my Gastroenterologist on Monday
Any suggestions
Any suggestions
RA & Chest Pains "Costochondritis"
Hi everyone, hope you all had a reasonable holiday season to say the least. I have asked this question before I think about chest pains or heart problems while taking methotrexate. I have read a report about RA effecting the bone structure around the chest area. It states "Costochondritis tends to be
Hi everyone, hope you all had a reasonable holiday season to say the least. I have asked this question before I think about chest pains or heart problems while taking methotrexate. I have read a report about RA effecting the bone structure around the chest area. It states "Costochondritis tends to be
Pain in ribs , pale stools with blood ,
Hi all I’m secretly getting worried but not telling anyone so I knew could talk to you all on here for advice , I have started to get slight pain under my right side ribs again , which is where I first had pain before got diagnosed with pbc .. I am also getting very pale solid stools now and for the
Hi all I’m secretly getting worried but not telling anyone so I knew could talk to you all on here for advice , I have started to get slight pain under my right side ribs again , which is where I first had pain before got diagnosed with pbc .. I am also getting very pale solid stools now and for the
Lupron
Yes I did all of that I had radiation for 4 weeks and I had Tomo therapy the five weeks and Bone scans been good there was no chemotherapy this was done at the Cancer treatment center of America they also started me on lupron while I was going through treatment when I was done with treatment my numbers
Yes I did all of that I had radiation for 4 weeks and I had Tomo therapy the five weeks and Bone scans been good there was no chemotherapy this was done at the Cancer treatment center of America they also started me on lupron while I was going through treatment when I was done with treatment my numbers
Head ache's on Anticoagulants
Had this constant head aches for 4 years since been on warfarin, and then rivarbraxaban any one else get the same, keep thinking about stopping them for a month, but then i could have a stroke so its a bit risky
Had this constant head aches for 4 years since been on warfarin, and then rivarbraxaban any one else get the same, keep thinking about stopping them for a month, but then i could have a stroke so its a bit risky
Newly diagnosed
Hi there, I have been a lurker for a while and decided to come out of my cupboard. I am just coming down from the roller coaster of diagnosis of limited cutaneous systemis scleroderma. It was found following an emergency hospital admission for pericardial effusion, four months of tests showing up further
Hi there, I have been a lurker for a while and decided to come out of my cupboard. I am just coming down from the roller coaster of diagnosis of limited cutaneous systemis scleroderma. It was found following an emergency hospital admission for pericardial effusion, four months of tests showing up further
Apixaban for antithrombin iii deficiency
I have antithrombin iii deficiency and I’ve been on Warfarin for 20 years to prevent DVT. I have never had DVT but my mother and my two aunties had pulmonary embolism. I recently experienced abnormally heavy period and I had to have blood transfusion. My doctor suggested to stop taking warfarin as I
I have antithrombin iii deficiency and I’ve been on Warfarin for 20 years to prevent DVT. I have never had DVT but my mother and my two aunties had pulmonary embolism. I recently experienced abnormally heavy period and I had to have blood transfusion. My doctor suggested to stop taking warfarin as I
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