Experiences with

Vascular conditions

Hypothyroidism since 2024 Coronary Heart disease - stent since 2009 Pulmonary fibrosis since 2022 Vascular conditions - Carotid operation 2023

I have been prescribed Rivaroxaban 20mgms daily since October 2020 after a trip to A&E with a pulse rate that was immeasurable! Atrial fibrillation was diagnosed. I did have some minor nose bleeds initially when it was cold weather, but haven't noticed any other problems.It is reassuring to know that

I'm lying in my hospital bed, all thoughts of pt 2 of my AVN ablation on the back burner. I was out in the garden last Thursday pottering about and enjoying the weather. Next thing I knew I had fallen backwards off a concrete step onto the stone patio. I thought I was paralysed. Longer story short...2

I have been on apixaban for over 5 years. Over the past 4 months I've been experiencing bleeding in one eye. After many scans, an angiogram and even an ultrasound, the Drs have been unable to locate the source of the bleed.This condition causes me to lose complete vision in one eye. Has anyone else

Since Autumn last year I changed from Rivaroxaban to Apixaban which I understood to have a marginally safer profile. I have, however noted a greater degree of indigestion and gas which is hard to shift and acts as a trigger to my AF. I wondered if anyone else has encountered such symptoms. I do also

Hi I have posted a few times about my daughter (6) who has been diagnosed with systemic scleroderma. She has been taking mmf for the last 6 months but now the professor working with her is suggesting she has cyclophosphamide once a month for 6 months. I just wondered if anyone had any experiences of

Since Jan 2025 I have been prescribed Apixaban for AF but suffered very severe joint pain.....mainly feet, hands, hips. After 3 months prescription was changed to Rivaroxaban but with identical side effects. Now unable to walk without severe pain, to drive, to hold a pen, to cook, etc I am re4fusing

I’ve posted before about self-advocating and after reading Kendrew’s recent post about her long battle for a sound diagnosis I’m prompted to relate part of my own recent experience. First of all I will mention that the rheumatology clinic I am with has had some changes over the past few years (enough

Good morning, I’m shortly about to start the process of switching from a DOAC (Apixaban) to Warfarin. I would like to go to self-testing as soon as I achieve a stable INR level. My surgery have very mixed views on self-testing but my research seems to suggest it produces better and more consistent

I was diagnosed with ET in November 2019 after being diagnosed with a blood clot on my brain and JAK 2 + result, I take 500mg of Hydroxycarbamide daily, however my platelets are steadily rising and are now at 450, my haematologist has said that we may shortly have to increase the dosage, this has left

Ah, its the rotten appointment syndrome! I had a respiratory clinic yesterday - follow up to lung function tests. I saw a registrar I'd not seen before. He was chatty but I thought a bit full of himself. Anyway, the good news is that I dont seem to have ILD, just a lot of stable TB fibrosis that was

It’s all going ahead! I had my Hickman line inserted today and will be starting conditioning tomorrow with a dose of Melphalan. Feeling a mix of emotions, but mostly grateful to be moving forward. Thank you all so much for your kind and supportive posts – they really do mean a lot. Just to update on

I was told after a stroke that I had af ... oh joy... and that af was probably the cause due to blood pooling in the Atrium and clots forming and travelling to my brain. After that there was no information given about the pathology of that. Now that my af events are reducing due to lifestyle improvements

Hi allHave been on Warfarin for about 4 months now and still having lots of fluctuations with my INR and warfarin dosages. My reading has dropped the last two times I have been - and the last one went slightly below range - it was 2.4 (target is 2.5-3.5). So have to go back this week. I am doing ok

I recently had a ‘Medication review blood test’ which came back with the unwelcome news that my ‘bad cholesterol’ is too high and I have Stage 2 kidney disease. So I was booked a phone call with lovely Pauolo the surgery pharmacist who talked me slowly through the lead up to informing me that I should

hi everyone, I’m new today so forgive me if something like this has been on plenty times before. A couple of months ago I was diagnosed with bacterial pneumonia, luckily I didn’t need to stay in hospital. I went back for another chest x-ray and the dr has said it hasn’t cleared up as much as was expected

Ive been on Apixaban for a couple of years with no problem. This week I started noticing dark red blood in my poos! No pain anywhere - but known to have haemorrhoids which occassionally show streaks od bright red blood. I read that apixaban can cause bleeding - anyone else had the problem?

following on from my last post , my PETscan is next Thursday…. I still don’t know what I’m doing….Im pretty sure I’m having the scan but not sure what I’m going to do with the results…I’ve been on pred 14 months , am at 3.75 mg , starting dose 15mg. Am happy with how it’s going. I am having the PETscan

hi I was diagnosed with a massive saddle pulmonary embolism 9th March, I am worried as when I start to move around for a few minutes my o2 levels drop and my heart rate goes really high , I’m worried this won’t fix itself and i won’t be able to have a shower even again , has anyone else experienced

I have GCA and after 18 months of prednisone and Actemra I have noticed my neck is really looking awful. I am looking for a Doctor for a neck lift or whatever they can do, but I wonder if I have another flare after June when I will complete my current course of prednisone would another round of prednisone