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hi I will try and not write to much The nerve pain in my leg, I wrote about months ago, was caused by my hip Now going to have a hip replacement, followed by knee replacement and maybe other hip I am having these done at my local hospital and will bridge with clexane if still on Warfarin I am also
hi I will try and not write to much The nerve pain in my leg, I wrote about months ago, was caused by my hip Now going to have a hip replacement, followed by knee replacement and maybe other hip I am having these done at my local hospital and will bridge with clexane if still on Warfarin I am also
daisyd
in
Hughes Syndrome APS Forum
9 months ago
Cll and Statins - Thank you for your responses
Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol
Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol
TheFlyer
in
CLL Support
2 months ago
Palliative care, does it still exist?
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
I saw a consultant , for the first time since well before lockdown, on the 14th September. I'd never met him before but he was really great. He'd obviously read my notes as he asked about all my conditions, osteoporosis, swollen legs etc. He said my lung condition is now too far gone to put me through
wheezyof
in
Lung Conditions Community Forum
6 months ago
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Dental Problems
Hi All, I’m having increasing problems with skin tightening on my face, due to this my mouth has got tighter , making it difficult to open my mouth, smile (looks more like a grimace) chew and is having an effect on my speech now. My front teeth seem to have been pushed forward and one has overlapped
Hi All, I’m having increasing problems with skin tightening on my face, due to this my mouth has got tighter , making it difficult to open my mouth, smile (looks more like a grimace) chew and is having an effect on my speech now. My front teeth seem to have been pushed forward and one has overlapped
Bkart
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
anyone suffering from frequent Nausea
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
Dannyboy48
in
Advanced Prostate Cancer
9 months ago
Cholesterol
Where can I find reliable information regarding cholesterol levels. I am in the US and cardio specialist who is also a lipid specialist is confused due to so much conflicting info for people with PBC and cholesterol. My LDL is high, so is my HDL and my Triglycerides are normal. I don't have any heart
Where can I find reliable information regarding cholesterol levels. I am in the US and cardio specialist who is also a lipid specialist is confused due to so much conflicting info for people with PBC and cholesterol. My LDL is high, so is my HDL and my Triglycerides are normal. I don't have any heart
Lawyers
in
PBC Foundation
3 months ago
How do you take a double dose of desogestrel?
Hello, my gynaecologist has recommended I double the dose of my mini pill to try and reduce pain and stop my constant bleeding. I've struggled to find information on the best way of doing this - am I best taking one every 12 hours (eg. One at 9am and one at 9pm) or am I better off taking 2 at the same
Hello, my gynaecologist has recommended I double the dose of my mini pill to try and reduce pain and stop my constant bleeding. I've struggled to find information on the best way of doing this - am I best taking one every 12 hours (eg. One at 9am and one at 9pm) or am I better off taking 2 at the same
hangod
in
Endometriosis UK
3 months ago
Modafanil experiences?
Hi all. I am hoping to hear from people who have taken modafanil (Provigil) or armodafanil (Artvigil) for profound daytime sleepiness and fatigue associated with RLS. I am at the end of my options for RLS having taken pretty much everything except dipyridamole with limited success and I continue to
Hi all. I am hoping to hear from people who have taken modafanil (Provigil) or armodafanil (Artvigil) for profound daytime sleepiness and fatigue associated with RLS. I am at the end of my options for RLS having taken pretty much everything except dipyridamole with limited success and I continue to
Doctorplacebo
in
Restless Legs Syndrome
9 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
3 months ago
Blood Thinners for RSL Sufferers
hi Rls friends, I have managed to withdraw from Pramipexole and have been taking Targinact 4.5/ naloxone Successfully for several months However, I have been admitted to hospital with a stroke and finding that I am dispairat this point( after 2 weeks) My usual Targinate has been replaced with a
hi Rls friends, I have managed to withdraw from Pramipexole and have been taking Targinact 4.5/ naloxone Successfully for several months However, I have been admitted to hospital with a stroke and finding that I am dispairat this point( after 2 weeks) My usual Targinate has been replaced with a
Jose651
in
Restless Legs Syndrome
9 months ago
amlodipine and losartan
I have been taking 5mgs Amlodipine and 100 mgs Losartan in morning but after going into atrial fibrillation my blood pressure drops at lunch time. My GP has said to take losartan at night and amlodipine in morning. Has anyone take these medications at different times of day .
I have been taking 5mgs Amlodipine and 100 mgs Losartan in morning but after going into atrial fibrillation my blood pressure drops at lunch time. My GP has said to take losartan at night and amlodipine in morning. Has anyone take these medications at different times of day .
Caradomben
in
AF Association
9 months ago
red spots?
This is my showcase of the weird red spots I get on my fingers! I think I have posted one of the pics the first time it happened, but since then I get the exact same spots from time to time, so it wasn't a one off. Does anyone else get these? Anyone know what they are? Of course I've been googling
This is my showcase of the weird red spots I get on my fingers! I think I have posted one of the pics the first time it happened, but since then I get the exact same spots from time to time, so it wasn't a one off. Does anyone else get these? Anyone know what they are? Of course I've been googling
Brychni
in
NRAS
9 months ago
Sickle cell anemia
I'm a sickle cell anemia patient going through avascular necrosis of the hip I'll be needing total hip replacement surgery but I don't have two million naira to carry out the surgery can someone help me by telling how I can get to NGOs for support its super painful
I'm a sickle cell anemia patient going through avascular necrosis of the hip I'll be needing total hip replacement surgery but I don't have two million naira to carry out the surgery can someone help me by telling how I can get to NGOs for support its super painful
Cassyj
in
Pain Concern
9 months ago
Medication check
Hi everyone, I have a question for Sue and Jools as just left Doctors and wanted to check if the meds she's given me will be OK to take with RLS. I have had no choice but to go back on some tablets nd increase one, but have told her I did not want Statins again, she has given me Fenofibrate 200mg daily
Hi everyone, I have a question for Sue and Jools as just left Doctors and wanted to check if the meds she's given me will be OK to take with RLS. I have had no choice but to go back on some tablets nd increase one, but have told her I did not want Statins again, she has given me Fenofibrate 200mg daily
Cobobay
in
Restless Legs Syndrome
3 months ago
MRI and injuries
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
ritaandscooter1
in
MPN Voice
9 months ago
Short of breath
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
SLOJIM
in
Advanced Prostate Cancer
9 months ago
Warfarin - Arterial Calcification
I keep hearing that there is a risk of arterial calcification in the arteries when on Warfarin> Something about the relationship between Vitamin D, Vitamin K and the way Calcium should travel to the bones rather than remain in the blood stream. Now I have been advised to take vitamin D as I seem
I keep hearing that there is a risk of arterial calcification in the arteries when on Warfarin> Something about the relationship between Vitamin D, Vitamin K and the way Calcium should travel to the bones rather than remain in the blood stream. Now I have been advised to take vitamin D as I seem
gazaeee
in
Anticoagulation Support
9 months ago
Bruising
Hello all- I have been on Hydroxyurea for my ET for 3 years and have recently started bruising quite a bit even though I have been on Plavix and aspirin for 3 years as well. None of my doctors have an answer which is really frustrating as I look like I have been beat up because the bruising is so bad
Hello all- I have been on Hydroxyurea for my ET for 3 years and have recently started bruising quite a bit even though I have been on Plavix and aspirin for 3 years as well. None of my doctors have an answer which is really frustrating as I look like I have been beat up because the bruising is so bad
Auggie17
in
MPN Voice
9 months ago
B12 and raised blood pressure
This was recently raised as an issue on the forum. After a little research I found that there is a direct relationship, it seems, between B12d and raised blood pressure. Very recently I found that my blood pressure has fallen and this could be because I now have sufficient b12 in my system but also,
This was recently raised as an issue on the forum. After a little research I found that there is a direct relationship, it seems, between B12d and raised blood pressure. Very recently I found that my blood pressure has fallen and this could be because I now have sufficient b12 in my system but also,
Orchard33
in
Pernicious Anaemia Society
10 months ago
Tests
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
How do you all get these tests done. I've had IBS for over 10 years and no test has ever been offered to me . I suffer every other day . And even going to my GP all she said is take probiotics, mebeverine and cut down on fibre , as I have IBS (D) and sometimes mixed . Every morning is a battle going
Ceasersalad
in
IBS Network
15 days ago
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