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Uva Ursi
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portland oregon
Hi, I was diagnosed with PBC 10 years ago was taking Urso for 5 yrs, I have been doing okay š
Hi, I was diagnosed with PBC 10 years ago was taking Urso for 5 yrs, I have been doing okay š
susanashworth
in
PBCers Organization
5 months ago
Ursofalk
Years ago I had generic Urso and was quite poorly. I changed to Ursofalk and have been happy with it for over 20 years. Today the generic was dispensed and I was told it was the same and cheaper and with the state the NHS was in I should have it. I have a few other problems at the moment and the idea
Years ago I had generic Urso and was quite poorly. I changed to Ursofalk and have been happy with it for over 20 years. Today the generic was dispensed and I was told it was the same and cheaper and with the state the NHS was in I should have it. I have a few other problems at the moment and the idea
Oidra
in
PBC Foundation
5 months ago
interesting convo with Rheumatologist
Been sent to new rheumatologist to determine if I have any overlap A/I conditions on top of PBC. Was talking to her generally about symptoms getting more frequent and intense, with stronger āflaresā. Follow up in 2 weeks. But the interesting part of the conversation was when I kept saying āI MUST
Been sent to new rheumatologist to determine if I have any overlap A/I conditions on top of PBC. Was talking to her generally about symptoms getting more frequent and intense, with stronger āflaresā. Follow up in 2 weeks. But the interesting part of the conversation was when I kept saying āI MUST
CeeCee101
in
PBC Foundation
5 months ago
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Taking Urso
Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests. I have found a former student who
Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests. I have found a former student who
Gaspereaux
in
PBC Foundation
5 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
6 months ago
Gabapentan/neurotonin
i am having a real time with lower back pain. It feels like it is a nerve as it really hurts after five minutes of sitting. I am fine walking, standing, and not too bad sleeping on my back. I have had spinal issues before and was on gabapentan. I know it does not cause liver issues and does not react
i am having a real time with lower back pain. It feels like it is a nerve as it really hurts after five minutes of sitting. I am fine walking, standing, and not too bad sleeping on my back. I have had spinal issues before and was on gabapentan. I know it does not cause liver issues and does not react
Gaspereaux
in
PBC Foundation
6 months ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Sandpiperx
in
PBC Foundation
6 months ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
6 months ago
Travel insurance with PBC. UK
Hi Everyone I think Iām like the majority of us with PBC. My liver is fine, responding well to URSO etc. However, finding travel insurance has been āinterestingā. Most companies (including the ones listed on the Liver Trust site) are charging almost Ā£2000 for 12 months for me and my husband!! So, we
Hi Everyone I think Iām like the majority of us with PBC. My liver is fine, responding well to URSO etc. However, finding travel insurance has been āinterestingā. Most companies (including the ones listed on the Liver Trust site) are charging almost Ā£2000 for 12 months for me and my husband!! So, we
Jacqui0112
in
PBC Foundation
6 months ago
Terrible joint pains
Hi guys as diagnosed with PBC a couple of months ago but not started Urso yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? Whatās the best thing to take to alleviate the pain? eleni xx
Hi guys as diagnosed with PBC a couple of months ago but not started Urso yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? Whatās the best thing to take to alleviate the pain? eleni xx
Elkol
in
PBC Foundation
7 months ago
Fibroscan Results with PBC
I had a private fibroscan today which was surprisingly normal and even healthy! CAP198 and Kpa5.5. I say surprised as my LFT's are off the scale high. Over the past month they have dropped by half but still high. PCB was flagged over 7 years ago after a routine blood test and I have never had any symptoms
I had a private fibroscan today which was surprisingly normal and even healthy! CAP198 and Kpa5.5. I say surprised as my LFT's are off the scale high. Over the past month they have dropped by half but still high. PCB was flagged over 7 years ago after a routine blood test and I have never had any symptoms
Becks880
in
PBC Foundation
7 months ago
Carvedilol and Urso bowl changes
Iāve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago Iāve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
Iāve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago Iāve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
anonymous987656384
in
British Liver Trust
7 months ago
Double Dosing Cholestyramine
I have been taking a single dose of cholestyramine for several months but now my itching is severe again. Taking a double dose means staying up late to time it with Urso as I have to wait hours between each. My internist says I can take two cholestyramine doses at once. The packaging and everything on
I have been taking a single dose of cholestyramine for several months but now my itching is severe again. Taking a double dose means staying up late to time it with Urso as I have to wait hours between each. My internist says I can take two cholestyramine doses at once. The packaging and everything on
Carly92
in
PBC Foundation
7 months ago
Newly diagnosed with PBC
Hello This is my first post - I was told I had markers for PBC way back in 2017 after a routine blood test flagged up elevated liver enzymes. I was referred to a liver consultant who monitored my liver yearly. My GGT was always hovered around 120 but last month after a routine blood test it was raised
Hello This is my first post - I was told I had markers for PBC way back in 2017 after a routine blood test flagged up elevated liver enzymes. I was referred to a liver consultant who monitored my liver yearly. My GGT was always hovered around 120 but last month after a routine blood test it was raised
Becks880
in
PBCers Organization
7 months ago
Urso stopped working
hi everyone Can anyone help Urso has stopped working and being put onto Ocaliva. i have been on Urso since diagnosed in 2012. Not sure what to expect ?? Thank you
hi everyone Can anyone help Urso has stopped working and being put onto Ocaliva. i have been on Urso since diagnosed in 2012. Not sure what to expect ?? Thank you
MrsFlee
in
PBC Foundation
7 months ago
Sore throat on urso
Hi Has anyone experienced a constant sore throat when starting urso? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Hi Has anyone experienced a constant sore throat when starting urso? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Misn
in
PBC Foundation
7 months ago
urso / stomach issues
hi friends, I have been taking urso for a year. In the past month I have experienced stomach issues. Has anyone else taken urso for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
hi friends, I have been taking urso for a year. In the past month I have experienced stomach issues. Has anyone else taken urso for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
Samanthaann
in
PBCers Organization
7 months ago
Hypereosinofilia with Pbc,ursofalk side effects.
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Alina8004
in
PBC Foundation
8 months ago
urso non responder
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
Samanthaann
in
PBC Foundation
8 months ago
Help confused with diagnosis of pbc
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start urso 2 weeks ago still not started, could they get it wrong? Wil urso cause me many other problems as right now I feel fine only got noticed during random blood test for something
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start urso 2 weeks ago still not started, could they get it wrong? Wil urso cause me many other problems as right now I feel fine only got noticed during random blood test for something
Misn
in
PBC Foundation
8 months ago
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