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Uva Ursi
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all phos
hi, my alk phos started last year at 152. Went on urso and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
hi, my alk phos started last year at 152. Went on urso and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
Samanthaann
in
PBC Foundation
8 months ago
back pain with urso
my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced this? Not sure if it’s related or not. Thank you.
my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced this? Not sure if it’s related or not. Thank you.
Samanthaann
in
PBC Foundation
9 months ago
pain relief for rotator cuff injury
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
Donti
in
PBC Foundation
9 months ago
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itch and bilirubin, long covid
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
Artsy123
in
PBCers Organization
9 months ago
Newly diagnosed with PBC
Hi there! I just got my official diagnosis today and was started on Ursodiol. I have been feeling fatigued for about 13 years and no one could find a reason. In the last 3 years, my liver enzymes went up and I started getting even weirder symptoms. Neurological impairments, heart pain, muscle pain.
Hi there! I just got my official diagnosis today and was started on Ursodiol. I have been feeling fatigued for about 13 years and no one could find a reason. In the last 3 years, my liver enzymes went up and I started getting even weirder symptoms. Neurological impairments, heart pain, muscle pain.
Pawsandchoc
in
PBCers Organization
9 months ago
New symptoms?
Hi all, I am most grateful 🙏 that for the 10+ years since diagnosis I have not had any symptoms. I often wonder if I was mis-diagnosed but my Consultant has gone over my original notes and biopsy results and say the diagnosis is correct. I take Urso and can only imagine that this has prevented any
Hi all, I am most grateful 🙏 that for the 10+ years since diagnosis I have not had any symptoms. I often wonder if I was mis-diagnosed but my Consultant has gone over my original notes and biopsy results and say the diagnosis is correct. I take Urso and can only imagine that this has prevented any
KatherineM_PBC
in
PBC Foundation
10 months ago
new diagnosis of pbc
I have just had a new diagnosis of pbc, I am taking urso, I have had one telephone call with a gastro consultant, things are all up in the air I have lots of questions which I don’t feel have been answered. I felt rushed on the phone. I have got the pbc app which has helped greatly
I have just had a new diagnosis of pbc, I am taking urso, I have had one telephone call with a gastro consultant, things are all up in the air I have lots of questions which I don’t feel have been answered. I felt rushed on the phone. I have got the pbc app which has helped greatly
Cumbria7
in
PBC Foundation
10 months ago
urso capsules vs tablet
hi everyone, My insurance stopped paying for Urso 300 capsules. They will pay for Urso 250 tablets. Does anyone know the difference? Do they work the same? I hate to change if what I am taking works. Thanks.
hi everyone, My insurance stopped paying for Urso 300 capsules. They will pay for Urso 250 tablets. Does anyone know the difference? Do they work the same? I hate to change if what I am taking works. Thanks.
Samanthaann
in
PBC Foundation
10 months ago
Water consumption with Urso
The consultant explained how Urso works in the body, partly by making bile water soluble and expelling with urine. Does this necessitate increased water consumption? I have never been good at staying hydrated and wonder if this is something I need to watch more carefully.
The consultant explained how Urso works in the body, partly by making bile water soluble and expelling with urine. Does this necessitate increased water consumption? I have never been good at staying hydrated and wonder if this is something I need to watch more carefully.
Flid
in
PBC Foundation
10 months ago
PBC or fatty liver
Does this sound like fatty liver or PBC? I was diagnosed 9 years ago with mild fatty liver. They were checking for PBC because I had a ama m2 of 69 and a mildly elevated Alt. I lost weight and my Alt came down. US showed an enlarged liver and biopsy showed only mild fatty liver. I went back to Hepa last
Does this sound like fatty liver or PBC? I was diagnosed 9 years ago with mild fatty liver. They were checking for PBC because I had a ama m2 of 69 and a mildly elevated Alt. I lost weight and my Alt came down. US showed an enlarged liver and biopsy showed only mild fatty liver. I went back to Hepa last
Zelda5
in
British Liver Trust
10 months ago
Help new drug prescribed
My Gastro has just prescribed Ursodeoxycholic acid for bile gastritis.Im a bit hesitant to take it due to side effects .Is this urso???? When I've looked it up it says hair loss dry eyes etc am I getting these drugs confused or are they the same? I don't have PBC that I know of no ALP rises and negative
My Gastro has just prescribed Ursodeoxycholic acid for bile gastritis.Im a bit hesitant to take it due to side effects .Is this urso???? When I've looked it up it says hair loss dry eyes etc am I getting these drugs confused or are they the same? I don't have PBC that I know of no ALP rises and negative
Paula1710
in
British Liver Trust
11 months ago
urso weight gain or weight loss
hi I’ve been taking 1.250mg of urso for 5 weeks approx neither gained or lost weight.it would be wonderful if I got the weight loss 🤣 I’m 13 stone, Anyone actually lost weight on these meds
hi I’ve been taking 1.250mg of urso for 5 weeks approx neither gained or lost weight.it would be wonderful if I got the weight loss 🤣 I’m 13 stone, Anyone actually lost weight on these meds
Eternity6
in
PBC Foundation
11 months ago
joint pain
Hello, I am recently diagnosed. AMA positive, ANA negative, family history of Psoriasis and Psoriatic arthritis, father was HLAb27 positive with Ankylosing Spondylitis. This diagnosis was unexpected as my concerns were about my hands and fingers that now struggle to type and a nerve issue that is
Hello, I am recently diagnosed. AMA positive, ANA negative, family history of Psoriasis and Psoriatic arthritis, father was HLAb27 positive with Ankylosing Spondylitis. This diagnosis was unexpected as my concerns were about my hands and fingers that now struggle to type and a nerve issue that is
AutumnWind
in
PBCers Organization
11 months ago
primary billiary cirrhosis and blood tests
Hi Wondered if anyone could answer this question for me. I’ve been diagnosed with primary billary cirrhosis. Is that different to any other type of cirrhosis or is that the same ? I’m wondering if this is why they have prescribed me URSO acid. thank you
Hi Wondered if anyone could answer this question for me. I’ve been diagnosed with primary billary cirrhosis. Is that different to any other type of cirrhosis or is that the same ? I’m wondering if this is why they have prescribed me URSO acid. thank you
Hidden
in
British Liver Trust
11 months ago
serum Alkaline phospharase abnormally high
hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for the itch (which is still driving me to distraction) and I’m thinking it’s this that is affecting the SLT result. I’ve swapped how I take my dose
hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for the itch (which is still driving me to distraction) and I’m thinking it’s this that is affecting the SLT result. I’ve swapped how I take my dose
mrsreddave
in
PBC Foundation
11 months ago
joint pain
Hi all, I was diagnosed last Nov. over the past few months I have joint and muscle pain at different times. Some days are ok. My knees, thighs sometimes shins and shoulders. Taking urso. Has anyone else experienced this? If so how do you handle. Thanks.
Hi all, I was diagnosed last Nov. over the past few months I have joint and muscle pain at different times. Some days are ok. My knees, thighs sometimes shins and shoulders. Taking urso. Has anyone else experienced this? If so how do you handle. Thanks.
Samanthaann
in
PBC Foundation
11 months ago
Total mess
I've had the worst year ever I've have PBC with an overlsp of AIH since diagnosed in 2015 I am supposed to be getting a thoracic spine operation but can't get cleared because my blood keeps coming high on the APTT & PT which means I can't clot and if I can clot I can't have the surgery. My liver enzymes
I've had the worst year ever I've have PBC with an overlsp of AIH since diagnosed in 2015 I am supposed to be getting a thoracic spine operation but can't get cleared because my blood keeps coming high on the APTT & PT which means I can't clot and if I can clot I can't have the surgery. My liver enzymes
mjk98
in
PBC Foundation
11 months ago
low folate
I gave PBC for 15 years and I’m on urso. My levels are reasonable. I have acid reflux, and I’m on Nexium 10 daily. In the last few months my folate has dropped below the low end of the range. I’m wondering if anyone else has this and is it related to PBC or Nexium. I don’t have anaemia. Thank you
I gave PBC for 15 years and I’m on urso. My levels are reasonable. I have acid reflux, and I’m on Nexium 10 daily. In the last few months my folate has dropped below the low end of the range. I’m wondering if anyone else has this and is it related to PBC or Nexium. I don’t have anaemia. Thank you
Gwelos
in
PBC Foundation
11 months ago
foods I can’t tolerate since taking Urso
I’ve been taking Urso for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now, when eaten I experience severe gas pain, indigestion and diarrhea. Has anyone else experienced this?
I’ve been taking Urso for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now, when eaten I experience severe gas pain, indigestion and diarrhea. Has anyone else experienced this?
Grams2020
in
PBC Foundation
11 months ago
AIH/PBC Overlap Anyone on urso & Mercap
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
Eternity6
in
British Liver Trust
1 year ago
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