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Uva Ursi
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Ursodeoxycholic acid
Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has stopped working? Thank you for any help.
Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has stopped working? Thank you for any help.
Hidden
in
PBC Foundation
4 months ago
Please join!
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Hair loss from Urso
Hi all! Has anyone had hair loss from URSO that re-grew when/if you stopped? I seem to be thinning more + my eyebrows are thinning. I'm wondering also if TUDCA also causes hair loss. Or if that may be a good alternative.
Hi all! Has anyone had hair loss from URSO that re-grew when/if you stopped? I seem to be thinning more + my eyebrows are thinning. I'm wondering also if TUDCA also causes hair loss. Or if that may be a good alternative.
Pawsandchoc
in
PBCers Organization
5 months ago
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Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
5 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
ALT and AST
I have been URSO for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
I have been URSO for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
Gaspereaux
in
PBC Foundation
5 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
5 months ago
overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
5 months ago
delay..
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Urso Dosage
just wondering about Urso and the proper dosage by weight. I am 135 pounds, and am on 750 mg of Urso. By my calculations, i should be on about 930. Since the tablets only break into 250 g segments, would that dosage be correct or should it be topped up to 930?
just wondering about Urso and the proper dosage by weight. I am 135 pounds, and am on 750 mg of Urso. By my calculations, i should be on about 930. Since the tablets only break into 250 g segments, would that dosage be correct or should it be topped up to 930?
Gaspereaux
in
British Liver Trust
5 months ago
Palmar Erythema
Do red splotchy palms every go away or am i blessed with them forever? I have been on Urso four months……
Do red splotchy palms every go away or am i blessed with them forever? I have been on Urso four months……
Gaspereaux
in
British Liver Trust
5 months ago
Wednesday Words
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
curious capsules or tablets
Hello Friends, just curious what people in our group are taking urso capsules or tablets?
Hello Friends, just curious what people in our group are taking urso capsules or tablets?
Samanthaann
in
PBC Foundation
6 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Imviiku
in
Living with Fatty Liver and NASH
6 months ago
URSO and Fatigue
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Gaspereaux
in
British Liver Trust
6 months ago
Urso calculator
I've asked Robert to post the image of the Urso dosage calculator here. Please make sure you are on the right dose. This is so important! Dosage is ONLY based on body weight- never lab results or symptoms. The Urso calculator is in the PBC app as well. If someone needs the calculator in another language
I've asked Robert to post the image of the Urso dosage calculator here. Please make sure you are on the right dose. This is so important! Dosage is ONLY based on body weight- never lab results or symptoms. The Urso calculator is in the PBC app as well. If someone needs the calculator in another language
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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