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Uva Ursi
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Has any of you with PBC taken Sulfasalazine ( for RA). If so what has been your experience.? Thank you!
I was diagnosed with PBC in 2000 and am doing relatively well with PBC (just little deterioration ). I have been on Urso since.
I was diagnosed with PBC in 2000 and am doing relatively well with PBC (just little deterioration ). I have been on Urso since.
jnblack
in
PBC Foundation
3 months ago
Ankle and leg swelling on Urso
Hi everyone, has anyone had ankle and leg swelling as a side effect of taking urso? Any suggestions on what to do to help with this? Thanks
Hi everyone, has anyone had ankle and leg swelling as a side effect of taking urso? Any suggestions on what to do to help with this? Thanks
MSJT
in
PBC Foundation
3 months ago
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Take all Urso dose at once?
Prof Jones book arrived today - although my 1st impulse was to sit down and read from cover to cover real life restricted me to a quick flick through. He writes that it’s better to take all daily Urso dose at night. Advice on mine is twice a day with or after food. Any thoughts?
Prof Jones book arrived today - although my 1st impulse was to sit down and read from cover to cover real life restricted me to a quick flick through. He writes that it’s better to take all daily Urso dose at night. Advice on mine is twice a day with or after food. Any thoughts?
DebatDG9
in
PBC Foundation
4 months ago
Foundation services
PBC Foundation Patient Services I want everyone to be aware of all The PBC Foundation offers to its members. I strongly encourage everyone to not only join but utilize these amazing sites for information, answers, self care suggestions, and some just for fun. We are so much more than PBC! Helpline
PBC Foundation Patient Services I want everyone to be aware of all The PBC Foundation offers to its members. I strongly encourage everyone to not only join but utilize these amazing sites for information, answers, self care suggestions, and some just for fun. We are so much more than PBC! Helpline
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Foundation services
PBC Foundation Patient Services I want everyone to be aware of all The PBC Foundation offers to its members. I strongly encourage everyone to not only join but utilize these amazing sites for information, answers, self care suggestions, and some just for fun. We are so much more than PBC! Helpline
PBC Foundation Patient Services I want everyone to be aware of all The PBC Foundation offers to its members. I strongly encourage everyone to not only join but utilize these amazing sites for information, answers, self care suggestions, and some just for fun. We are so much more than PBC! Helpline
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Joint/Muscle Pain
i have been experiencing this ever since I began my Urso journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything. I am contemplating CBD…sublingual…
i have been experiencing this ever since I began my Urso journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything. I am contemplating CBD…sublingual…
Gaspereaux
in
PBC Foundation
4 months ago
Question about urso
hello, I’m starting to get many answers. But still have a little more to do. Diagnosed in past year with sjorgrens and pbc. I’ve been on urso 10 months. Neurology referral pending. Has urso affected anyone’s muscles with cramping, weakness or spasms? Mine may have been a bit worse but hard to tell.
hello, I’m starting to get many answers. But still have a little more to do. Diagnosed in past year with sjorgrens and pbc. I’ve been on urso 10 months. Neurology referral pending. Has urso affected anyone’s muscles with cramping, weakness or spasms? Mine may have been a bit worse but hard to tell.
Artsy123
in
PBC Foundation
4 months ago
Urso Side effect?
Hello, it is early morning here, but I wanted to share this. Ever since I started Urso (November 2nd), i have been experiencing terrible lower back pain, along with bone/mmuscle pain in the hips area. I have spent many hours with my heating pad! I just woke up, and the pain is definitely subsiding
Hello, it is early morning here, but I wanted to share this. Ever since I started Urso (November 2nd), i have been experiencing terrible lower back pain, along with bone/mmuscle pain in the hips area. I have spent many hours with my heating pad! I just woke up, and the pain is definitely subsiding
Gaspereaux
in
PBC Foundation
4 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Skypony
in
PBC Foundation
4 months ago
prescription
hi Every time I collect my prescription they give me my urso like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
hi Every time I collect my prescription they give me my urso like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
Lena2011
in
PBC Foundation
4 months ago
portland oregon
Hi, I was diagnosed with PBC 10 years ago was taking Urso for 5 yrs, I have been doing okay 👍
Hi, I was diagnosed with PBC 10 years ago was taking Urso for 5 yrs, I have been doing okay 👍
susanashworth
in
PBCers Organization
4 months ago
Ursofalk
Years ago I had generic Urso and was quite poorly. I changed to Ursofalk and have been happy with it for over 20 years. Today the generic was dispensed and I was told it was the same and cheaper and with the state the NHS was in I should have it. I have a few other problems at the moment and the idea
Years ago I had generic Urso and was quite poorly. I changed to Ursofalk and have been happy with it for over 20 years. Today the generic was dispensed and I was told it was the same and cheaper and with the state the NHS was in I should have it. I have a few other problems at the moment and the idea
Oidra
in
PBC Foundation
4 months ago
interesting convo with Rheumatologist
Been sent to new rheumatologist to determine if I have any overlap A/I conditions on top of PBC. Was talking to her generally about symptoms getting more frequent and intense, with stronger “flares”. Follow up in 2 weeks. But the interesting part of the conversation was when I kept saying “I MUST
Been sent to new rheumatologist to determine if I have any overlap A/I conditions on top of PBC. Was talking to her generally about symptoms getting more frequent and intense, with stronger “flares”. Follow up in 2 weeks. But the interesting part of the conversation was when I kept saying “I MUST
CeeCee101
in
PBC Foundation
4 months ago
Taking Urso
Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests. I have found a former student who
Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests. I have found a former student who
Gaspereaux
in
PBC Foundation
5 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
5 months ago
Gabapentan/neurotonin
i am having a real time with lower back pain. It feels like it is a nerve as it really hurts after five minutes of sitting. I am fine walking, standing, and not too bad sleeping on my back. I have had spinal issues before and was on gabapentan. I know it does not cause liver issues and does not react
i am having a real time with lower back pain. It feels like it is a nerve as it really hurts after five minutes of sitting. I am fine walking, standing, and not too bad sleeping on my back. I have had spinal issues before and was on gabapentan. I know it does not cause liver issues and does not react
Gaspereaux
in
PBC Foundation
5 months ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Sandpiperx
in
PBC Foundation
5 months ago
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