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Flummoxed and in a Pickle 🙃🙂
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Freckle1000
in
My Breast Cancer Community
5 months ago
chest infection symptoms
hi, I have a diagnosis of bronchiectasis which doesn’t usually cause me any problems. I’ve just had a cold which has left me with a slight cough but nothing major. However, after starting to feel better I feel like my chest is tight and have found myself getting breathless when walking my dog. I’ve
hi, I have a diagnosis of bronchiectasis which doesn’t usually cause me any problems. I’ve just had a cold which has left me with a slight cough but nothing major. However, after starting to feel better I feel like my chest is tight and have found myself getting breathless when walking my dog. I’ve
disney75
in
Lung Conditions Community Forum
4 months ago
I have mutations, What is better ATM Frameshift Mutation Keytruda or Lymparza? Other? Liver Mets and Lung Nodules
Starting Chemotherapy with I think Docetaxel and Cisplatin MO suggesting Immunotherapy
Starting Chemotherapy with I think Docetaxel and Cisplatin MO suggesting Immunotherapy
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
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Dana Farber 2nd opinion?
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
TammyCross
in
SHARE Metastatic Breast Cancer
5 months ago
ALC doubling time
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
Shangonmom
in
CLL Support
5 months ago
Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
5 months ago
Peeing , what to do?
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
positive-thinking
in
Advanced Prostate Cancer
5 months ago
Flu A/scarred lungs/coughing
I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given
I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given
Dolphinsandwales
in
ICUsteps
4 months ago
vaginal bleeding post bowel motion
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
PopcornPJ
in
Endometriosis UK
5 months ago
Mild TI inflammation
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Sunita77
in
Bowel Disease Support
5 months ago
immunotherapy for OVCA
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
Leniko
in
My Ovacome
5 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
7 months ago
How to say it
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
5 months ago
sct update so far
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
Leighcox85
in
MPN Voice
5 months ago
liver lesions
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
BluHydrangea
in
SHARE Metastatic Breast Cancer
5 months ago
Recurrent vaginal thrush- need urgent help
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
Rita89
in
Women's Health
7 months ago
dienogest - shivers and cold
Hi everyone. Am on day 3 of taking dienogest and since yesterday I have been feeling freezing cold and shivery, also getting numb hands, and the veins on my arms and legs very visible (like a circulatory problem). Otherwise feel ok. Anyone else had this as a side effect? Wondering if it is related or
Hi everyone. Am on day 3 of taking dienogest and since yesterday I have been feeling freezing cold and shivery, also getting numb hands, and the veins on my arms and legs very visible (like a circulatory problem). Otherwise feel ok. Anyone else had this as a side effect? Wondering if it is related or
TandE
in
Endometriosis UK
4 months ago
"Gasoline" Source
I have been trying to find the source for the observation? that "Testosterone to prostate cancer is like gasoline on a fire". I finally asked Bing Copilot and ChatGPT-- who came up with the answer. Me: What is the source of the "gasoline on a fire" theory in prostate cancer? ChatGPT: Dr. Patrick
I have been trying to find the source for the observation? that "Testosterone to prostate cancer is like gasoline on a fire". I finally asked Bing Copilot and ChatGPT-- who came up with the answer. Me: What is the source of the "gasoline on a fire" theory in prostate cancer? ChatGPT: Dr. Patrick
VoxHope
in
Advanced Prostate Cancer
5 months ago
My Father died
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Ornate2001
in
CLL Support
5 months ago
ibrance
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
Jewelyn
in
SHARE Metastatic Breast Cancer
5 months ago
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