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Newbie
Hi I’ve been checking this site out for awhile. I am currently 200 lbs. I started at 232. I have been up and down with my weight all my life. I never was too heavy until I started battling depression. My weight got worse when I had multiple health issues and had to go on oxygen and steroids. My health
Hi I’ve been checking this site out for awhile. I am currently 200 lbs. I started at 232. I have been up and down with my weight all my life. I never was too heavy until I started battling depression. My weight got worse when I had multiple health issues and had to go on oxygen and steroids. My health
Bobbi6
in
Weight Loss Support
1 year ago
Antihistamines
Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ? He says no but I don't like
Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ? He says no but I don't like
cartwheels
in
Vasculitis UK
1 year ago
Two Questions
My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before breakfast. Is she right? It says nothing on the information leaflet and my GP never told me that either. Question no. 2 is about sugar.
My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before breakfast. Is she right? It says nothing on the information leaflet and my GP never told me that either. Question no. 2 is about sugar.
caftan
in
PMRGCAuk
1 year ago
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Donor eggs/embryos and reproductive immunology did you need/do both for success?
Those of you who finally had success with donor eggs or embryos did you also need a reproductive immunology protocol (eg did you have steroids , hydroxychloroquine, intralipids neupogen, lit treatment anything like that) or did donor option work all by itself???I have had many failed rounds including
Those of you who finally had success with donor eggs or embryos did you also need a reproductive immunology protocol (eg did you have steroids , hydroxychloroquine, intralipids neupogen, lit treatment anything like that) or did donor option work all by itself???I have had many failed rounds including
Flora14
in
Fertility Network UK
1 year ago
Wrong diagnosis
Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago after raised infection markers at my previous doctors I was diagnosed with PMR and put on 40mg steroids, tapering dose. I was not referred to see
Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago after raised infection markers at my previous doctors I was diagnosed with PMR and put on 40mg steroids, tapering dose. I was not referred to see
Gyspysmum
in
PMRGCAuk
1 year ago
facial hair
Hi Any one have any tips on unwanted facial hair due to steroids
Hi Any one have any tips on unwanted facial hair due to steroids
Harry8388
in
Weight Loss Support
1 year ago
Bursitis and Tendonitis in hips, knees, shoulders and ankles
I saw a Rhumetologist yesterday for ongoing pains which got worse when I was diagnosed with Hypothyroidism 10 months ago. He is referring me for an ultrasound to check it's bursitis/ tendonitis and they will inject steroids into it (shoulders first) if it is. Has anyone else had this combination of
I saw a Rhumetologist yesterday for ongoing pains which got worse when I was diagnosed with Hypothyroidism 10 months ago. He is referring me for an ultrasound to check it's bursitis/ tendonitis and they will inject steroids into it (shoulders first) if it is. Has anyone else had this combination of
Noona123
in
PMRGCAuk
1 year ago
Oral steroids
Hi I'm still new to vasculitis DX 3 months ago at dermatology NHS after persistent skin rash mainly upper body,scalp,face groin area. Original I was started on Doxycycline ànd steroid ointment which worked but kept coming back . Then 10 course of oral steroids and antihistamines which again worked but
Hi I'm still new to vasculitis DX 3 months ago at dermatology NHS after persistent skin rash mainly upper body,scalp,face groin area. Original I was started on Doxycycline ànd steroid ointment which worked but kept coming back . Then 10 course of oral steroids and antihistamines which again worked but
cartwheels
in
Vasculitis UK
1 year ago
Anxiety hurting relationship
I’ve been suffering from anxiety and depression for the last 4 or 5 years. It started with work pressure and my late mothers dementia, but it got 1000 times worse with Covid to the point I took early retirement. I tried CBT and counselling but neither really helped. It’s now affecting my relationship
I’ve been suffering from anxiety and depression for the last 4 or 5 years. It started with work pressure and my late mothers dementia, but it got 1000 times worse with Covid to the point I took early retirement. I tried CBT and counselling but neither really helped. It’s now affecting my relationship
Alan7690
in
Anxiety Support
1 year ago
Bronchocentric Glanulomatosis?
We have literally had to fight to get a diagnosis of bronchocentric glanulomatosis for my Mum, after 5 weeks of steroids and her literally being reduced to a shell of a woman. She is currently battling with the terrible side effects of extreme depression, anxiety, insomnia and paranoia. I have been
We have literally had to fight to get a diagnosis of bronchocentric glanulomatosis for my Mum, after 5 weeks of steroids and her literally being reduced to a shell of a woman. She is currently battling with the terrible side effects of extreme depression, anxiety, insomnia and paranoia. I have been
Muddywater100
in
Vasculitis UK
1 year ago
Inhaler allergies
Hello, I have had asthma for many years, only recently I have found a few things out. I have been using clenil modulite inhaler, but I have periods of being well and periods of feeling ill and have skin issues at same time when unwell. My asthma has now got out of control with many exacerbations,
Hello, I have had asthma for many years, only recently I have found a few things out. I have been using clenil modulite inhaler, but I have periods of being well and periods of feeling ill and have skin issues at same time when unwell. My asthma has now got out of control with many exacerbations,
Vitali-ep
in
Asthma Community Forum
1 year ago
Test Results
Hi Everyone I would be grateful for any comments about my recent test results. I’m confused. Briefly I have been hypothyroid for 17 years, I was on Levo but for the last 10 years I have been taking NDT which has been great. I’ve received a text saying I must see the doctor, they say I’m over
Hi Everyone I would be grateful for any comments about my recent test results. I’m confused. Briefly I have been hypothyroid for 17 years, I was on Levo but for the last 10 years I have been taking NDT which has been great. I’ve received a text saying I must see the doctor, they say I’m over
moleland
in
Thyroid UK
1 year ago
Glaucoma eye drops and migraines
I am waiting for an appointment at eye hospital because spec savers say my pressure is too high. My eyes appeared healthy from the OTC scan and blood vessels ok. Sight not deteriorating. I suffer badly from migraines and wondered if anyone on the forum uses eye drops that don’t cause headaches or make
I am waiting for an appointment at eye hospital because spec savers say my pressure is too high. My eyes appeared healthy from the OTC scan and blood vessels ok. Sight not deteriorating. I suffer badly from migraines and wondered if anyone on the forum uses eye drops that don’t cause headaches or make
Hidden
in
Glaucoma UK
1 year ago
5mg lifelong dose of pred
My mum has been on pred for PMR (with two occurrences of GCA 5 yrs apart) for about 40 years. She had a break of 2 years in remission after being on pred for 3 years. Then it all started again and since then has never been able to go completely off the steroids. From her second start about 30 years
My mum has been on pred for PMR (with two occurrences of GCA 5 yrs apart) for about 40 years. She had a break of 2 years in remission after being on pred for 3 years. Then it all started again and since then has never been able to go completely off the steroids. From her second start about 30 years
Gottarelax
in
PMRGCAuk
1 year ago
Leflunomide or Tocilizumab
GCA/PMR since Dec 2018. Referred to rheumatologist in Feb 2020 because of repeated flares on prednisolone. Initially I resisted the offer of methotrexate and tried to reduce prednisolone gradually, however after more flares and unable to get below 12 mg prednisolone I opted to add Methotrexate as a
GCA/PMR since Dec 2018. Referred to rheumatologist in Feb 2020 because of repeated flares on prednisolone. Initially I resisted the offer of methotrexate and tried to reduce prednisolone gradually, however after more flares and unable to get below 12 mg prednisolone I opted to add Methotrexate as a
Talyfan
in
PMRGCAuk
1 year ago
lutetium 177
after exploring options in Germany and London my husband had his first treatment in London on 6 April, he had pain about day 10 to 14 as the steroids finished and then pain passed. We were not expecting g the continual bleeding that started on day 18. My husband has a Foley catheter so it’s is just continual
after exploring options in Germany and London my husband had his first treatment in London on 6 April, he had pain about day 10 to 14 as the steroids finished and then pain passed. We were not expecting g the continual bleeding that started on day 18. My husband has a Foley catheter so it’s is just continual
FionaElbourne
in
Advanced Prostate Cancer
1 year ago
Hot flashes?
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Merryfield
in
PMRGCAuk
1 year ago
Can you 'demand' Tocilizumab for GCA?
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
tweety_pie
in
PMRGCAuk
1 year ago
chesty cough
started February sinc then three lots of antibiotics including steroids, an X-ray and blood 🩸 test am told all is ok it’s now may and trying to get to sleep, walk with the dogs or anything reasonable that I WAS capable is now very tiring I just have no energy to want to do anything don’t know what the
started February sinc then three lots of antibiotics including steroids, an X-ray and blood 🩸 test am told all is ok it’s now may and trying to get to sleep, walk with the dogs or anything reasonable that I WAS capable is now very tiring I just have no energy to want to do anything don’t know what the
5040oliver
in
NRAS
1 year ago
asthma steroids hypo
hi, am about to be admitted to hospital fir asthma (1st time was two weeks ago so I really haven’t recovered). Doc is concerned I don’t seem to respond to oral prednisonol steroids - asked if i have issues absorbing meds usually. I Said maybe - low stomach acid with thyroid and am often low in b12 and
hi, am about to be admitted to hospital fir asthma (1st time was two weeks ago so I really haven’t recovered). Doc is concerned I don’t seem to respond to oral prednisonol steroids - asked if i have issues absorbing meds usually. I Said maybe - low stomach acid with thyroid and am often low in b12 and
JAmanda
in
Thyroid UK
1 year ago
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