Have just been diagnosed with bronchomalacia on top of asthma and adrenal insufficiency

[McMD]

Hi, I was wondering if anyone else has the same conditions as me. Over the last 14 months I've been hospitalised 5 times and treated with 300mls of hydrocortisone and antibiotics intravenously. As I have acquired adrenal insufficiency my poor body takes ah awful blow and when I come down from the steroids I seem to go into shock with terrible sweats and fatigue. During my last admission to hospital I was put under a very thorough Dr who diagnosed me with bronchomalacia and as there's no cure I've to take a lot of steroid inhalers and several other drugs to keep my airways clear.

[eleanordigby]

Snap! I have severe asthma and adrenal insufficiency (bronchiectasis and aspergillosis too 🙄). It’s been a miserable year. My consultant also thinks I have bronchomalacia, but it can only be confirmed with a bronchoscopy, and as there’s no treatment for it he says it’s pointless taking the risks associated with it. It’s miserable isn’t it. When I’m weaning off steroids I do it VERY slowly, 5mg per week, which seems to avoid the withdrawal symptoms. What do you do?

[eleanordigby]

Hi again, McMD. There’s another post about this on the Lung Conditions forum today, thought you’d be interested healthunlocked.com/asthmalu...

[Lysistrata Administrator Community Ambassador]

Hi, that does sound miserable! I can't help much with the rest but if you have adrenal insuffiency I hope that's being treated properly and you still have some steroids on board?

I wrote a post a while back about this which you may find helpful (and/or the replies and links): healthunlocked.com/asthmauk...