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Re hospital bed
I've fibro . Polymyalgia rheuma and just suffering with GCA in hospital on 1000mg of steroids throw IV . For 3 days. I'm just wondering if any one gets any relief for using a hospital bed at home ,
I've fibro . Polymyalgia rheuma and just suffering with GCA in hospital on 1000mg of steroids throw IV . For 3 days. I'm just wondering if any one gets any relief for using a hospital bed at home ,
Mouse61
in
PMRGCAuk
14 days ago
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Wendy39
in
LUPUS UK
14 days ago
Advice please....
I was diagnosed with mild Bronchietasis reflux and possibly Asthma 3 years ago after having Covid and have been struggling ever since. The latest problem started with a very croaky voice about 4 weeks ago. I saw the Consultant 2 weeks ago and he has referred me to ENT for investigation. Since then
I was diagnosed with mild Bronchietasis reflux and possibly Asthma 3 years ago after having Covid and have been struggling ever since. The latest problem started with a very croaky voice about 4 weeks ago. I saw the Consultant 2 weeks ago and he has referred me to ENT for investigation. Since then
spinonemum
in
Lung Conditions Community Forum
15 days ago
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Omeprazole/cramps/headaches and bones
3.5 weeks in to treatment with prednisalone and omeprazole. Reduced after 3 weeks from 20 to 17.5mgs of pred. I am experiencing cramps in my hands, feet and hamstrings. On researching the side effects of omeprazole it seems that it could be the culprit. I also noted that long term use can impact bone
3.5 weeks in to treatment with prednisalone and omeprazole. Reduced after 3 weeks from 20 to 17.5mgs of pred. I am experiencing cramps in my hands, feet and hamstrings. On researching the side effects of omeprazole it seems that it could be the culprit. I also noted that long term use can impact bone
Fatsiajaponica
in
PMRGCAuk
15 days ago
Asthma flare ups
I am on Fostair, 2 puffs twice a day and up to 8 puffs a day as per asthma plan as required. I have been prescribed Prednisolone several times after flare ups. I do get perfect relief from the steroids, but after a couple of weeks the asthma rears it`s ugly head again. I wonder if the inhaler could
I am on Fostair, 2 puffs twice a day and up to 8 puffs a day as per asthma plan as required. I have been prescribed Prednisolone several times after flare ups. I do get perfect relief from the steroids, but after a couple of weeks the asthma rears it`s ugly head again. I wonder if the inhaler could
alvariam
in
Asthma Community Forum
15 days ago
Newly Diagnosed
Hi, I'm new on here . I received a diagnosis of Osteoporosis from results of Dexa scan last week and was surprised Lumbar T Score -2.2 .Femoral Neck T Score -2.8 moderate to left hip moderate to sever osteoarthritis . I have been on steroids since March 2024 for (PMR) and tapering, currently at 10mg
Hi, I'm new on here . I received a diagnosis of Osteoporosis from results of Dexa scan last week and was surprised Lumbar T Score -2.2 .Femoral Neck T Score -2.8 moderate to left hip moderate to sever osteoarthritis . I have been on steroids since March 2024 for (PMR) and tapering, currently at 10mg
FiddleFern
in
Osteoporosis Support
15 days ago
Child diagnosed with hypothyroidism
Hello, My daughter who is 9 years old has just been diagnosed with hypothyroidism. I am really shocked because she has no obvious symptoms other than her growth has slowed a bit, which we thought might be connected to her use of inhaled steroids for asthma. Has anyone else got a child with an underactive
Hello, My daughter who is 9 years old has just been diagnosed with hypothyroidism. I am really shocked because she has no obvious symptoms other than her growth has slowed a bit, which we thought might be connected to her use of inhaled steroids for asthma. Has anyone else got a child with an underactive
figster
in
Thyroid UK
16 days ago
Another visit to Rheumatologist…
Hi, I had a face to face appointment with my Rheumatologist yesterday. My ESR has increased to 97 and CRP 38. He said he’s very concerned about this 🙄. I’ve had 8 injections of Adalimumab since I last saw him for Ankylosing Spondylitis. He has stopped the jabs because he says they aren’t working
Hi, I had a face to face appointment with my Rheumatologist yesterday. My ESR has increased to 97 and CRP 38. He said he’s very concerned about this 🙄. I’ve had 8 injections of Adalimumab since I last saw him for Ankylosing Spondylitis. He has stopped the jabs because he says they aren’t working
Bramble2000
in
PMRGCAuk
16 days ago
I'm worried, no one to chat with. Pacemaker box change
I posted about my pacemaker box change this Friday 5th. I'm on my second course of antibiotics and now steroids and inhaler. Doctor says op will still go ahead but how can I be wheezing and coughing from a chest infection while they do there surgery.I phoned the day unit and they said I've still to go
I posted about my pacemaker box change this Friday 5th. I'm on my second course of antibiotics and now steroids and inhaler. Doctor says op will still go ahead but how can I be wheezing and coughing from a chest infection while they do there surgery.I phoned the day unit and they said I've still to go
Piggy2
in
British Heart Foundation
17 days ago
Upper Airway Disorders
I’ve just gotten back from a weekend stay at hospital for my chest. It was a bit of a mixed bag to be honest with one doc wanting to send me home nearly straight away because “it’s all in your throat and you are panicking” to “yes so your chest X-ray showed some white shadows at the bottom of your lungs
I’ve just gotten back from a weekend stay at hospital for my chest. It was a bit of a mixed bag to be honest with one doc wanting to send me home nearly straight away because “it’s all in your throat and you are panicking” to “yes so your chest X-ray showed some white shadows at the bottom of your lungs
Beth_19
in
Asthma Community Forum
17 days ago
Flare or hiccup or stress?
I have been on 7mg Pred since mid May (I had got down to 6mg but had to increase) and now seem unable to reduce any further. There are times I've felt good and thought now could be the time, but then something happens to increase the fatigue, the vision is not quite as clear (one eye is weaker than
I have been on 7mg Pred since mid May (I had got down to 6mg but had to increase) and now seem unable to reduce any further. There are times I've felt good and thought now could be the time, but then something happens to increase the fatigue, the vision is not quite as clear (one eye is weaker than
Miserere
in
PMRGCAuk
17 days ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
18 days ago
Increased inflammation-flare?
In September last year my rheumatologist asked if while I was at Mayo Clinic I could see an endocrinologist about a possible testosterone issue. That was ok but I mentioned y long term prednisone, and getting off of them. I was put on 20mg hydrocortisone 10 in am and 10 at 3pm. Reduce to 15 after a month
In September last year my rheumatologist asked if while I was at Mayo Clinic I could see an endocrinologist about a possible testosterone issue. That was ok but I mentioned y long term prednisone, and getting off of them. I was put on 20mg hydrocortisone 10 in am and 10 at 3pm. Reduce to 15 after a month
1951grumpa
in
PMRGCAuk
18 days ago
Cyclosporine
I have primary sjogrens syndrome which is affecting my eyes terribly. I am now having to have my tear ducts permanently closed and I have been prescribed cyclosporine eye drops with steroid drops. The dr said the drops hurt for a few minutes with each use but the steroids will taper the discomfort.
I have primary sjogrens syndrome which is affecting my eyes terribly. I am now having to have my tear ducts permanently closed and I have been prescribed cyclosporine eye drops with steroid drops. The dr said the drops hurt for a few minutes with each use but the steroids will taper the discomfort.
Treesha
in
NRAS
18 days ago
tomwills0420@gmail.com
Hi All, I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024. I had surgery but the doctor could only remove 10 To 15 % because of the location and several nerves surrounding the mass. I had radiation but after completion there was no change. Didn’t shrink but also didn’t grow.
Hi All, I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024. I had surgery but the doctor could only remove 10 To 15 % because of the location and several nerves surrounding the mass. I had radiation but after completion there was no change. Didn’t shrink but also didn’t grow.
WillsT63
in
The Brain Tumour Charity
18 days ago
following ophthalmology
(Hi MEGS) For those of you who know my journey ive had a real struggle, and still am but have had some help with a steroid trial but no healthcare. Finally I got to see ophthalmologist last week who again thinks I have myasthenia or myasthenia syndrome with other autoimmune possibly mctd.(on first impression
(Hi MEGS) For those of you who know my journey ive had a real struggle, and still am but have had some help with a steroid trial but no healthcare. Finally I got to see ophthalmologist last week who again thinks I have myasthenia or myasthenia syndrome with other autoimmune possibly mctd.(on first impression
stiff19
in
LUPUS UK
18 days ago
New to group
Hi it’s taken six months of agony however today after last round of blood tests I am starting steroids tomorrow. I am very nervous especially as I have glaucoma, the doctor said I have no choice I must take the steroids. Anyone else taking meds with glaucoma? He also warned I could feel very strange
Hi it’s taken six months of agony however today after last round of blood tests I am starting steroids tomorrow. I am very nervous especially as I have glaucoma, the doctor said I have no choice I must take the steroids. Anyone else taking meds with glaucoma? He also warned I could feel very strange
Sunshine8888
in
PMRGCAuk
20 days ago
Forum
Dear friends, I am delighted to be part of this forum I was diagnosed of glaucoma in 2020 and since then I have been on eye drop. I suspected the prolong used of steroids for keloid was responsible for my glaucoma, facial cosmetic concern for keloid on my face contributed to this this problem but my
Dear friends, I am delighted to be part of this forum I was diagnosed of glaucoma in 2020 and since then I have been on eye drop. I suspected the prolong used of steroids for keloid was responsible for my glaucoma, facial cosmetic concern for keloid on my face contributed to this this problem but my
Tuwodakuka
in
Glaucoma UK
20 days ago
My asthma is really improving
Ok so i tried the quacks i tried a healer and i persuaded myself i was getting better i end up in HOSPITAL for 3 days, Before i tell my story i never leave the house with my symbicort and if i am out of town i have my symbicort and ventolin. This stuff saves your life dont ever forget it . So i
Ok so i tried the quacks i tried a healer and i persuaded myself i was getting better i end up in HOSPITAL for 3 days, Before i tell my story i never leave the house with my symbicort and if i am out of town i have my symbicort and ventolin. This stuff saves your life dont ever forget it . So i
picboy
in
Asthma Community Forum
21 days ago
IVIG and prednisone luck with PGS tested embryos after Multiple failed implantation
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
Poop84
in
Fertility Network UK
21 days ago
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