Hi All,
I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024. I had surgery but the doctor could only remove 10 To 15 % because of the location and several nerves surrounding the mass. I had radiation but after completion there was no change. Didn’t shrink but also didn’t grow. I have several symptoms which have taken me out of work. Constant vertigo, occasional nausea/vomiting,headaches, and fatigue. I get MRI’S regularly. I am on on several meds,Hydrocortisone, Tramadol, Ondansetron, Promethazine and Lorazapam. I’m concerned about the Tramadol I heard it is very addictive and hard to discontinue. I have been on it for several months. I have also been trying to wean off the steroids for about 7 to 8 months now. My body reacts badly when I get to a low dosage. I did go from Dexamethasone to Hydrocortisone a weaker steroid but can’t seem to completely get off it.
