The Brain Tumour Charity | HealthUnlocked

My husband has just been diagnosed with a brain tumour aged 32. He had a seizure back in March and they didn’t do a CT, and then no symptoms until now, which...

Hi Brain Tumour Charity community It seems I've resisted sharing about myself and my journey. So, this is a first step to open up and connect with this...

My name is Carole. My partner Kristy has had brain cancer for 12 years. Three surgeries during that time. Our team in the Hunter is not prepared to operate on...

I have appointment with neurosurgeon in a few weeks feeling anxious and would some suggestions on what questions I should be asking

Hi All, I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024. I had surgery but the doctor could only remove 10 To 15 % because of the...

I have recently been diagnosed with 2 meningiomas one is pressing on my trigeminal nerve and the other a small one in temperature area have appointment...

Hello, its a first time joining a forum like this and to be honest I feel like a bit of an imposter, as my tumour is located in my pituitary gland, so not...

Greetings & Blessings all! Been dealing with my Oligodendroglioma (stage 2 >>> stage 3 Anaplastic mixed) since 2003…all good things & to be honest can not...

Hey all! First off I’m new to the group but also I’m new to my brain tumour! (Well 10 months new!!) last June I was diagnosed with a hypothalamic/optic pathway...

Hi, My sister in her early 30th was diagnosed with a brain tumor a couple of months ago and I would like to know how you and your family dealt with similar...

Any advice on what to expect post surgery? My husband is having his op this Wednesday

hi there, I’m wondering if I can apply for my driving licence earlier as it may take a while to come through. i had my operation last October and I was told...

Hello, my partner underwent a temporal lobe resection 5 days ago to remove a 3cm tumour from her brain. The surgery itself was a success and they believe they...

Hi everyone Hope you’re all doing OK. Is there anyone out there who has a DNET that can’t be removed? I know that only treatment/cure is total surgical...

So I had my craniotomy on Wednesday afternoon to remove a 4.5cm low grade Glioma in my right temporal lobe that I was diagnosed with in October. My surgeon was...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

A brain tumour diagnosis can mean that you need to consider adjusting your working arrangements, hours and sometimes the type of work you do. If a partner is...

Hi, I'm looking for others who have this rare type of benign brain tumour. What are some of your symptoms and what has been your journey in getting help. I...

I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease -...

G33 YO male patient diagnosed in 2019 with Anaplastic Astrocytoma - Grade III - IDH Mutant. Tumor size was reduced following treatment. IVOSIDENIB is being...

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

Hi, Looking for input on a new suggested drug for patients with Anaplastic Astrocytoma. Anyone here familiar with this condition? T

Hi, my partner has recently been diagnosed with a 3cm, Grade 2 Low Grade Tumour of the temporal lobe. She had an MRI for other reasons, so it was picked up by...

Hey guys, Can anyone recommend a government scheme or grant that we could turn to, to help take the pressure off our struggle in making our mortgage payments...

I have this loud noise in my head from my acoustic neuroma and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background...

Hello everyone I am a 65 year old woman,diagnosed with a small epodrmoid cyst/tumor 3 years ago,last MRI said it is unchanged, does it ever not need...

Hi all, Around 18 months ago I was referred to ENT by my GP because I’d been having headaches daily for around 9 years or so. My GP suspected chronic...

Hello all...I'm trying to deal with all the information and various choices of Operations being offered to me!..Obviously the option of having one surgery to...

I had a metastatic melanoma from brain removed here in Spain on 22nd august. Lost movement in right hand side body totally and had severe problems with...

I’ve recently been diagnosed with a brain tumour and will be having it removed in about 6 weeks time. I do not know what type of tumour it is yet until it is...