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Roflumilast/Daxas
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
PaulineHM
in
Lung Conditions Community Forum
9 months ago
A sensible rheumatologist
I have an excellent rheumatologist but it’s the first time I have seen her since before Covid. Earlier this year I saw a kindly nurse practitioner who wanted me to take methotrexate which I refused. My rheumatologist had a different view which I am sharing for general information. She said had I been
I have an excellent rheumatologist but it’s the first time I have seen her since before Covid. Earlier this year I saw a kindly nurse practitioner who wanted me to take methotrexate which I refused. My rheumatologist had a different view which I am sharing for general information. She said had I been
Thelmarina
in
PMRGCAuk
9 months ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
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I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
7 months ago
Is it back? 🙈
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Croft9232
in
PMRGCAuk
2 months ago
inflammation in eyes
I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.
I have an inflammatory eye condition either episcleritis or anterior uveitis. I’ve been on steroid drops for this which have given me cataract. On top of this inhave 2 stoma bags for a perforated bowel ( which triggered the eye inflammation). It’s been a horrendous time and I’ve become very down.
Groundhog
in
NRAS
9 months ago
Angina and arthritis pain.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
graemeparsons
in
British Heart Foundation
2 months ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
2 months ago
vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
2 months ago
Rheumy Appointment
Hi I have a rheumy appointment today . I’m really concerned that she will fob me off about my ‘PMR’ . I’ve seen her once before , in June . She confirmed I didn’t have GCA , which I was treated for due to symptoms of GCA . I was in on a high dose of pred - 40mg per day , she tapered me over 8weeks
Hi I have a rheumy appointment today . I’m really concerned that she will fob me off about my ‘PMR’ . I’ve seen her once before , in June . She confirmed I didn’t have GCA , which I was treated for due to symptoms of GCA . I was in on a high dose of pred - 40mg per day , she tapered me over 8weeks
TedTheMaineCoon
in
PMRGCAuk
9 months ago
Covid causing Asthma flare
I had Covid nearly two weeks ago and I've been left with this lingering cough and occasional breathlessness and I've also been finding that I'm using my Ventolin inhaler more, my chest doesn't feel tight but sometimes i just get very out of breath and it's hard to catch my breath. I've found that box
I had Covid nearly two weeks ago and I've been left with this lingering cough and occasional breathlessness and I've also been finding that I'm using my Ventolin inhaler more, my chest doesn't feel tight but sometimes i just get very out of breath and it's hard to catch my breath. I've found that box
Lilmix03
in
Asthma Community Forum
9 months ago
eczema
morning everyone, can I ask does anyone get bother with their skin. I get what I call a fibro rash on my chest sometimes but it usually goes after a few days. Now I have eczema like symptoms on my face,it’s awful. Steroid cream helps but it just keeps coming back especially on my eyelids. I know I can
morning everyone, can I ask does anyone get bother with their skin. I get what I call a fibro rash on my chest sometimes but it usually goes after a few days. Now I have eczema like symptoms on my face,it’s awful. Steroid cream helps but it just keeps coming back especially on my eyelids. I know I can
Purplelife123
in
Fibromyalgia Action UK
1 year ago
Covid Vaccination Study
COVID-19 Vaccines 'May Trigger' Rheumatic Inflammatory Diseases: Study https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.theepochtimes.com%2Fhealth%2Fcovid-19-vaccines-may-trigger-rheumatic-inflammatory-diseases-study-5508547%3Futm_source%3Dref_share%26src_src%3Dref_share%26utm_campaign%3Dmb-cc
COVID-19 Vaccines 'May Trigger' Rheumatic Inflammatory Diseases: Study https://healthunlocked.com/redirect?url=https%3A%2F%2Fwww.theepochtimes.com%2Fhealth%2Fcovid-19-vaccines-may-trigger-rheumatic-inflammatory-diseases-study-5508547%3Futm_source%3Dref_share%26src_src%3Dref_share%26utm_campaign%3Dmb-cc
noslak
in
PMRGCAuk
9 months ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
3 months ago
Puzzled
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
I went for a Rheumatology appointment yesterday as I’d had to stop Etanercept for the 2nd time due to tonsillitis, itchy rash sore eyes, blurred vision etc. I saw a nurse practitioner who said I didn’t need a steroid injection and because and I have another appointment with my new Consultant in November
Blackwitch
in
NRAS
3 months ago
signposting please
can someone point me towards posts on PMR/steroids and effect on Thyroid? I have been a HU member for some 8/9 years in regard to my AI hypothyroidism and had a diagnosis of PMR in June. I need to understand the impact of the combination of the two. Thanks a lot
can someone point me towards posts on PMR/steroids and effect on Thyroid? I have been a HU member for some 8/9 years in regard to my AI hypothyroidism and had a diagnosis of PMR in June. I need to understand the impact of the combination of the two. Thanks a lot
Jayneywales
in
PMRGCAuk
9 months ago
MRI's
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
Hi all, I will post this elsewhere later but I thought ( just for a start ) many of you AF'ers have other medical conditions beyond AF and many have joint issues. Mine is a left shoulder issue, I have been prescribed rest, prescribed pain killers, have had a steroid injection ......... and there is
BenHall1
in
Atrial Fibrillation Support
3 months ago
eventful consultants visit.
after getting wonderful advice from the forum as always, I went to my consultants visit armed with everything I needed …and …..hopeful …..always hopeful. Well what a visit. What an obnoxious prat . Asked why I’d come…..asked how I charge my phone, is it in a socket or on the electricity pylon outside
after getting wonderful advice from the forum as always, I went to my consultants visit armed with everything I needed …and …..hopeful …..always hopeful. Well what a visit. What an obnoxious prat . Asked why I’d come…..asked how I charge my phone, is it in a socket or on the electricity pylon outside
Rowing2
in
Thyroid UK
9 months ago
Hyperbaric oxygen therapy
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Topsy-Turvey
in
Lung Conditions Community Forum
9 months ago
PMR - need to take back control - GP call tomorrow
I have a follow up call with the nice lady GP tomorrow morning, after I had the neck scan on Wednesday. I've just been reading some of the posts here and it highlighted for me the importance of staying in control of this journey and how careful you need to be in what you say during consultations to
I have a follow up call with the nice lady GP tomorrow morning, after I had the neck scan on Wednesday. I've just been reading some of the posts here and it highlighted for me the importance of staying in control of this journey and how careful you need to be in what you say during consultations to
Gimme
in
PMRGCAuk
9 months ago
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