Search
Search
About
Log in
Join
Experiences with
Topical steroids
Posts
Communities
16,885 public posts
Filter results
Anyone had to stop work on Heath grounds?
I am 61, had thought I’d work until I was at least 65. I’ve just had a year off during which I had a craniotomy and RT.( also taking steroids for GCA which isn’t helping!) I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don’t know if I can
I am 61, had thought I’d work until I was at least 65. I’ve just had a year off during which I had a craniotomy and RT.( also taking steroids for GCA which isn’t helping!) I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don’t know if I can
susieb627
in
Meningioma Support
9 months ago
ITP x Covid Vaccine
Hello all, I wanted to see if anyone else developed thrombocytopenia after taking the 1st dose of the vaccine back in 2021? I took AstraZeneca and I developed ITP after taking it and I’d love to connect with others who this has also happened too. I have had 4x flare ups since taking it all linked to
Hello all, I wanted to see if anyone else developed thrombocytopenia after taking the 1st dose of the vaccine back in 2021? I took AstraZeneca and I developed ITP after taking it and I’d love to connect with others who this has also happened too. I have had 4x flare ups since taking it all linked to
lottie296
in
ITP Support Association
9 months ago
Mum 86 treatment??
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hidden
in
The Roy Castle Lung Cancer Foundation
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
painful hip and knee SLE lupus
Good morning to you all, I have been suffering with problems with my hips and knees for a couple of years. I had a guided steroid injection in my right hip about a month ago. Initially gave me some relief but now after only a few weeks it has sadly worn off. The pain seems worse than before. My right
Good morning to you all, I have been suffering with problems with my hips and knees for a couple of years. I had a guided steroid injection in my right hip about a month ago. Initially gave me some relief but now after only a few weeks it has sadly worn off. The pain seems worse than before. My right
madgerac
in
LUPUS UK
2 months ago
appointment
yesterday I saw my new rheumatologist and her advice was for me to start reducing my steroids by 1 mg per month until I get down to 5 mg ( I am currently on 11 mg a day and have been reducing by half a mg each month) then 1 mg every 2 months. I have been told that they will increase my methotrexate to
yesterday I saw my new rheumatologist and her advice was for me to start reducing my steroids by 1 mg per month until I get down to 5 mg ( I am currently on 11 mg a day and have been reducing by half a mg each month) then 1 mg every 2 months. I have been told that they will increase my methotrexate to
Shaza123
in
PMRGCAuk
9 months ago
Lupus & Sjogrens with Rituximab Infusions
Good Morning, I have been on Rituximab Infusions since Jan 2021 ( 6 monthly)just had double Infusion 2 weeks apart. Also on 5mg maint steroids and Mepacrine also Helliocare photosensitivity tablets, blood pressure tablets, folic acid calcichew, Asprin. I had a really bad time this year with photosensitivity
Good Morning, I have been on Rituximab Infusions since Jan 2021 ( 6 monthly)just had double Infusion 2 weeks apart. Also on 5mg maint steroids and Mepacrine also Helliocare photosensitivity tablets, blood pressure tablets, folic acid calcichew, Asprin. I had a really bad time this year with photosensitivity
Haired
in
LUPUS UK
9 months ago
Steroid injection worn off?
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
hazelcats
in
NRAS
2 months ago
My GCA Update
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
Lenore58
in
PMRGCAuk
9 months ago
GCA Study Article
Hi all, In all my research and scouring of the Internet, I found this article (below my update) which is quite informative and also recent. I don’t know if it has been posted before but I thought some would be interested. An update on me: I was put on 60 mg of steroids a week ago because GCA symptoms
Hi all, In all my research and scouring of the Internet, I found this article (below my update) which is quite informative and also recent. I don’t know if it has been posted before but I thought some would be interested. An update on me: I was put on 60 mg of steroids a week ago because GCA symptoms
Lenore58
in
PMRGCAuk
9 months ago
Help Needed. Please
Good evening all. I'm here posting on behalf of my Wife who has had very mild asthma since 2013 which has took a real bad turn in the last 18 months. We are looking for a private appointment in the North West, preferably Manchester University Hospital (Wythenshawe). She has been to A&E 3 times in the
Good evening all. I'm here posting on behalf of my Wife who has had very mild asthma since 2013 which has took a real bad turn in the last 18 months. We are looking for a private appointment in the North West, preferably Manchester University Hospital (Wythenshawe). She has been to A&E 3 times in the
Breatheasier
in
Asthma Community Forum
9 months ago
Flare or steroid withdrawal? - the question is often asked so here's my two pen'orth
I've had PMR for nearly 12 years now so have had more flares than some people have had hot dinners (old Yorkshire saying). Touch wood, not had one for a while now, but here's how I personally can tell the difference: Have the symptoms I had
BEFORE
being diagnosed and put on Pred
returned[
I've had PMR for nearly 12 years now so have had more flares than some people have had hot dinners (old Yorkshire saying). Touch wood, not had one for a while now, but here's how I personally can tell the difference: Have the symptoms I had
BEFORE
being diagnosed and put on Pred
returned[
tangocharlie
in
PMRGCAuk
9 months ago
MSK Community Care
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Chockyuk
in
NRAS
2 months ago
GCA flare and eye sight
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
pmac22
in
PMRGCAuk
9 months ago
predinasolane and ivf weight gain? Side effects?
hi I’m due to cycle in a few months and wanted to get views on thyroid and taking steroids for ivf transfer. thanks!
hi I’m due to cycle in a few months and wanted to get views on thyroid and taking steroids for ivf transfer. thanks!
Poop84
in
Fertility Network UK
9 months ago
out of hospital after pneumonia
hello. I was on reducing plan of preds for PMR until 2 weeks ago 5.5 mg daily. I was taken into hospital two weeks ago with suspected adrenal crisis was given shot of hydrocortisol in the ambulance “to be on safe side” they said. Have been receiving antibiotics and 30-40 mg of pred daily during my
hello. I was on reducing plan of preds for PMR until 2 weeks ago 5.5 mg daily. I was taken into hospital two weeks ago with suspected adrenal crisis was given shot of hydrocortisol in the ambulance “to be on safe side” they said. Have been receiving antibiotics and 30-40 mg of pred daily during my
Pommygranny
in
PMRGCAuk
9 months ago
Marginal zone lymphoma
Hi all, I wondered if anyone has hone through what I have been going through, sorry for long post. Last october I stopped using Methotreaxte injections as they were making me feel ill. I had veen using them for about 8 years which was great until the adverse reaction. December I had an xray due to ongoing
Hi all, I wondered if anyone has hone through what I have been going through, sorry for long post. Last october I stopped using Methotreaxte injections as they were making me feel ill. I had veen using them for about 8 years which was great until the adverse reaction. December I had an xray due to ongoing
ush1401
in
Sjogren's Support
9 months ago
advice
I have been told I have Vasculitis not sure what type. Hospital sent for me as they were worried about my kidneys. After spending a worrying night in hospital I was told after a Anca blood test it was found it was only mild so was not put on steroids. Told just need routine blood test at GP surgery.
I have been told I have Vasculitis not sure what type. Hospital sent for me as they were worried about my kidneys. After spending a worrying night in hospital I was told after a Anca blood test it was found it was only mild so was not put on steroids. Told just need routine blood test at GP surgery.
Charliedo
in
Vasculitis UK
9 months ago
Allergy to prednisolone?
Hi everyone I have severe asthma and was diagnosed with adrenal insufficiency in 2020 after taking lots of Pred when Covid triggered my asthma. I was just left on 5mg Pred for two years with no endocrinology involvement. I was eventually transferred to an endocrinologist who tried me on hydrocortisone
Hi everyone I have severe asthma and was diagnosed with adrenal insufficiency in 2020 after taking lots of Pred when Covid triggered my asthma. I was just left on 5mg Pred for two years with no endocrinology involvement. I was eventually transferred to an endocrinologist who tried me on hydrocortisone
ccccc
in
Asthma Community Forum
9 months ago
Roflumilast/Daxas
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
PaulineHM
in
Lung Conditions Community Forum
9 months ago
Follow up to initial appt
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
hazelcats
in
NRAS
2 months ago
1
...
44
45
46
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
3634 results
Asthma Community Forum
2362 results
NRAS
2336 results
View top 10 communities
Sort by
Most Relevant
Newest