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Diet and arthritis
Hi I was diagnosed with PMR in December 2019. I have tried to taper the steroids down but have never got below 2/3 mg a day. Last year I had a particularly trying time with considerable fatigue and very painful mouth ulcers. Slightly at the end of my tether I was given a book called Diet and Arthritis
Hi I was diagnosed with PMR in December 2019. I have tried to taper the steroids down but have never got below 2/3 mg a day. Last year I had a particularly trying time with considerable fatigue and very painful mouth ulcers. Slightly at the end of my tether I was given a book called Diet and Arthritis
Evamollie
in
PMRGCAuk
7 months ago
Steroid Injection
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hidden
in
PMRGCAuk
3 months ago
*sensitive* here we go again
Hi Everyone, So today is OTD and I’m heading into the clinic for my BETA. I’m 9dp5dt and was ecstatic to see those two lines this morning (at 4.30am!) I’ve been here before where it ended very early so trying not to get ahead of myself… this was our 3rd transfer.. it was a FET and we nearly cancelled
Hi Everyone, So today is OTD and I’m heading into the clinic for my BETA. I’m 9dp5dt and was ecstatic to see those two lines this morning (at 4.30am!) I’ve been here before where it ended very early so trying not to get ahead of myself… this was our 3rd transfer.. it was a FET and we nearly cancelled
CreateIVF
in
Fertility Network UK
7 months ago
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Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
7 months ago
Remission vs controlled disease
Hi, all. This isn’t as pressing or important as most posts, but if I may, I have a question regarding semantics. I think that remission means that one feels well-and doesn’t require ongoing drug treatments. If this is correct, I am not in remission, as I’m on Cimzia, but no steroids or other RA drugs
Hi, all. This isn’t as pressing or important as most posts, but if I may, I have a question regarding semantics. I think that remission means that one feels well-and doesn’t require ongoing drug treatments. If this is correct, I am not in remission, as I’m on Cimzia, but no steroids or other RA drugs
Mostmoses
in
NRAS
7 months ago
Enhertu side effect: pneumonitis (lung inflammation)
Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung inflammation), which is a known risk with Enhertu and can be dangerous if left untreated. The main intial symptom is a persistent dry cough, indicating
Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung inflammation), which is a known risk with Enhertu and can be dangerous if left untreated. The main intial symptom is a persistent dry cough, indicating
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
normality after PMR diagnosis
I was diagnosed with above at Christmas and am now on 20mg steroids a day and trying to get back to doing all the activities I usually enjoy like golf, aqua aerobics and walking. I’m wondering how other people manage to keep themselves pain free and healthy
I was diagnosed with above at Christmas and am now on 20mg steroids a day and trying to get back to doing all the activities I usually enjoy like golf, aqua aerobics and walking. I’m wondering how other people manage to keep themselves pain free and healthy
Saffronandblue
in
PMRGCAuk
7 months ago
Allergic to the sun?
Hi, I've had lots of things go wrong over time, but this is new. I was doing a little gardening, and I mean a little, on Saturday, I felt my feet tingling in the sunshine but didn't think anything of it. I thought i had prickly heat so sat with my feet in a bucket of icy water put some sudocrem on
Hi, I've had lots of things go wrong over time, but this is new. I was doing a little gardening, and I mean a little, on Saturday, I felt my feet tingling in the sunshine but didn't think anything of it. I thought i had prickly heat so sat with my feet in a bucket of icy water put some sudocrem on
Lulamay7
in
LUPUS UK
1 year ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
I Still haven’t been diagnosed but feel really bad
hello After lots of back and forth at the Dr’s and various hospital departments. haematology found me to have a raised eosinophilia level and asked for me to be referred to the allergy clinic they referred me back to ENT with a suspected fungal lung disease, ENT found my frontal and ethmoid sinus
hello After lots of back and forth at the Dr’s and various hospital departments. haematology found me to have a raised eosinophilia level and asked for me to be referred to the allergy clinic they referred me back to ENT with a suspected fungal lung disease, ENT found my frontal and ethmoid sinus
Sara128
in
Aspergillosis and Rare Fungal Infection Support
7 months ago
Anyone with behcet's taking rinvoq?
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
FrancisB
in
Behçet's UK
7 months ago
Severe SOB
Hi all, This is my first post. I have been reading a lot on here over the past 48 hours and can see a caring and helpful community. I am currently suffering with really severe SOB I can't breathe out. This is my 3rd attack in 6 months. I have had asthma since birth and been on reliever and preventer
Hi all, This is my first post. I have been reading a lot on here over the past 48 hours and can see a caring and helpful community. I am currently suffering with really severe SOB I can't breathe out. This is my 3rd attack in 6 months. I have had asthma since birth and been on reliever and preventer
wildblueboy
in
Lung Conditions Community Forum
7 months ago
Flare?
Hallo everyone. As some of you know I had a total knee replacement before Christmas and progress since has been well. I am due to see the surgeon again on Friday and hopefully he will clear me for driving. However, I have, over the last week or so, developed aches and pains in the shoulder, arms,
Hallo everyone. As some of you know I had a total knee replacement before Christmas and progress since has been well. I am due to see the surgeon again on Friday and hopefully he will clear me for driving. However, I have, over the last week or so, developed aches and pains in the shoulder, arms,
Miserere
in
PMRGCAuk
7 months ago
how long is a long time
hi everyone have been reading posts for a while and it seems to me that everyone's journey with PMR is different. so here is my story. I was diagnosed with PMR in march 2021 by my GP I have not got below 8mg of prednisolone every time I drop to 7.5mg much more discomfort. I have aches and a little
hi everyone have been reading posts for a while and it seems to me that everyone's journey with PMR is different. so here is my story. I was diagnosed with PMR in march 2021 by my GP I have not got below 8mg of prednisolone every time I drop to 7.5mg much more discomfort. I have aches and a little
bluenumbertwo
in
PMRGCAuk
7 months ago
help for cirrhosis
I’ve had high liver enzymes for a few years. No real answers as to why. I’ve now seen a new hematologist and he has me set up for a fibroscan and MRI. But he said I have cirrhosis from old notes. The new doc has put me on steroids for a few weeks for inflammation and another med. for inflammation
I’ve had high liver enzymes for a few years. No real answers as to why. I’ve now seen a new hematologist and he has me set up for a fibroscan and MRI. But he said I have cirrhosis from old notes. The new doc has put me on steroids for a few weeks for inflammation and another med. for inflammation
Addieann
in
Living with Fatty Liver and NASH
7 months ago
Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
3 months ago
montelukast
A few years ago I took montelukast for a while and although it made a great difference to my asthma and skin I stopped taking it due to dreams that felt so real I wasn’t sure what had happened and what hadn’t. I was also having what I can only describe as very dark thoughts. Fast forward to recently
A few years ago I took montelukast for a while and although it made a great difference to my asthma and skin I stopped taking it due to dreams that felt so real I wasn’t sure what had happened and what hadn’t. I was also having what I can only describe as very dark thoughts. Fast forward to recently
Gymbearo
in
Asthma Community Forum
7 months ago
anyone with Churg Strauss come off all medication?
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
Katie18
in
Vasculitis UK
7 months ago
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