Anyone with behcet's taking rinvoq?: I've been... - Behçet's UK

Behçet's UK

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Anyone with behcet's taking rinvoq?

FrancisB profile image
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I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants.

Basically nothing else was controlling the flares, tried aza, colchicine, plaquenil, methotrexate, mercaptopurine, humira and probably others that I've forgotten.

My steroid use was getting a little out of hand and the higher doses have a pretty negative impact on my mental health. Since starting rinqov I've successfully reduced my steroids to a low level 2.5mg daily. Hopefully will come off completely soon but I'm really feeling the tapering drops even by 0.5 mgs every 4 weeks.

Interested to hear if anyone else is on it!

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