Nothing helps!

[hnakuru]

I have bronchiectasis in middle right lobe, left lingual and upper lobes, also eosinophilia & chronic allergic rhinitis,asthma & they think aspergillosis. Been seeing consultant for over 20 years and now everything seems to have stopped working ( antibiotics/steroids) I’m waiting on a bronchoscopy that was supposed to have happened this week but I’m in so much pain and have been ill since before Christmas. I saw specialist ( another new one) 2 weeks ago ( who didn’t even listen to my chest ) but sent me for CT angiography because I’d lost a third of my body weight in 12 months. They’ve made me stop all antibiotics & steroids because of my immunity but it’s just getting worse and nobody’s listening! What does anyone take for pain? I can’t take a lot of things as they either make me wheeze or pass out! Please share anything that helps

[Amelia2024]

I just know that steroids and antibiotics make you loose life, they work at the beginning but later they make conditions worst. The only thing I can tell you is go buy some good quality probiotics to recover your good bacteria, change diet, no sugar no carbs, vitamins and minerals may help to restore hour energy Push your GP to test everything because steroids damage your heart and kidneys, even if they are inhalers. I just pray for you to be better. I can advice you about a natural remedy to see is work for your plegms and cough. Blend half of a purple fresh onion, every day and squize the juice. Take a cup of hot water and add half teapoon of real honey, 2 tsp of the onion juice and a tsp of lemon juice. Take this tea 3 times a day, it is uggly flavor but it can help you a lot, drink it with food. Just to start you can add more onion juice later you will have to use only 1 or 2 tsp of that juice per tea.

[Amelia2024]

For pain, you have to see what kind of pain. A good quality magnesium will relax your muscles. Complex B will make your nervs better and give you hungry and gain weight. You also need zink and lots of vitamid d. I also recommend you onion because onion is antinflamtory plus add real turmeric. Maybe this thing wont kick in fast but they will make you improve in time, because you has lost to much weight and that is because steroids and antibiotics also depletes many vitamins and minerals. Add 2 tsp a day of good quality olive oil, Now that you are without steroid take sun bath. Pain killer will make your condition worst right now, because you are too week. ASK your Gp to check all your vitamins and minerals levels. There is natural strong pain killer is call white willow, is similar to aspirin but you have to visit a natural practioner. If you can not handle the pain there is a strong prescription call NAPROXEM 750 MG slow release that will last for a day.

[hnakuru in reply to Amelia2024]

Thanks Amelia. The weight loss has happened before the steroids and antibiotics but my body just couldn’t take them and I was literally throwing up soon after I’d taken them.

The pain is in my right middle lobe. It hurts constantly but is severe when I cough, laugh or breathe in sharply. It’s uncomfortable all the time whether I’m sat, stood or lay down so that’s exhausting in itself I suppose. I can’t take naproxen only paracetamol. Tried solpadol but can only do half the dose

Would love to sunbathe - unfortunately it’s not warm enough but now that would be my best tonic of all.

I am taking a wellness tonic,as well as vit d and vit b12. I eat lots of protein- eggs, tuna, meat, prawns; lots of fruit, not as much veg as I should but food doesn’t interest me anymore & I only eat because I have to. Not sure how this has happened as used to love food but now it’s just a necessity. I drink gallons of squash & hot water which I thought would help but doesn’t. Guess I just have to ride it out bit it’s having big impact on my life atm - to do anything is painful and exhausting

[Amelia2024 in reply to hnakuru]

I suffer so much when I see some else suffering, because I am too in the same corner. Are you taking Omeprazol slow release to reduce acidity or for vomit suck a little ginger root.For your stomach problem I will suggest you, lycorice root tea. Lycorice heal your stomach, believe me, it works really fast, I being there before and now. I just had antibiotics for a month, and now I am doing licorice tea 3 times a day, I have lost lots of weight also.

Please dont give up, your apetite will recover if you take vitamin b1 call thiamine, I am doing it right now, because I dont feel like eating nothing, plus it will reduce little by little your anxiety and depression.

Please please I suggest to find also lycorice herbal cough syrup, that will help you a lot for the lungs pain, it is then most strong antiinflamtory on the herbal side. The only set back of lycorice syrup is that you can not do it for long time because has heart side effects in some people, but it is an excellent option. Please read about lycorice root and you will see how potent is that herb.

I am in agony too, sometimes I would like to die, but we have to keep living, try to be busy even do the pain is there, do whatever you can do with the little strength you have.

I keep praying for you everyday.

[Amelia2024 in reply to hnakuru]

I forgot to tell you, check with your doctor if you have a broken or crack rib, because lung does not have to much pain receptor, so the pain can be in other area

[Patk1]

Hopefully Yr bronchoscopy has been rescheduled? Hopefully Yr appetite may return now a/b & steroids aren't making u sick.as u say u can tolerate paracetamol, I would be inclined to take it to make it more tolerable.do u do dedicated lung clearance sessions?I'm sure not vomiting + reduced pain should help you