Search
Search
About
Log in
Join
Experiences with
Temodal
Posts
Communities
1,095 public posts
Filter results
Round and round, hi!
Ever increasing/decreasing circles? Been suffering with coughs for around 3-4 years now. Around 1.5 years ago I was referred to ENT where I was diagnosed with nasal polyps, 1 septoplasty and polypectomy later and I get diagnosed with asthma!!! My symptoms start as a cough, leading to a crackle and wheeze
Ever increasing/decreasing circles? Been suffering with coughs for around 3-4 years now. Around 1.5 years ago I was referred to ENT where I was diagnosed with nasal polyps, 1 septoplasty and polypectomy later and I get diagnosed with asthma!!! My symptoms start as a cough, leading to a crackle and wheeze
m0bnd
in
Lung Conditions Community Forum
6 years ago
NICE are looking for patient experts for the NICE Scientific Advisory Panel for GCA
The experience we are looking for in these patient experts - It could also involve attending a meeting in London at some stage. We are looking for someone with Giant Cell Arteritis who is not yet in remission (but has relapsing disease) and has been on glucocorticoid-based treatment long-term and is
The experience we are looking for in these patient experts - It could also involve attending a meeting in London at some stage. We are looking for someone with Giant Cell Arteritis who is not yet in remission (but has relapsing disease) and has been on glucocorticoid-based treatment long-term and is
John_Mills
Vasculitis UK
in
Vasculitis UK
6 years ago
After op pain
Hi Guys, Has anyone every gotten pelvic pain after bilateral Oophorectomy and also bloated. It’s three weeks after surgery is this normal or should I be worried?
Hi Guys, Has anyone every gotten pelvic pain after bilateral Oophorectomy and also bloated. It’s three weeks after surgery is this normal or should I be worried?
Ramonasumi
in
My Ovacome
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ovary removal and the onset of menstruation
Hi Sorry if i am on the wrong forum or this has been covered before, but can't find any feedback anywhere. My daughter had a huge ovarian cyst which was removed when she was 10. Consultants said her fertility and menstruation would not be effected by only having one ovary. She is now nearly 14 and has
Hi Sorry if i am on the wrong forum or this has been covered before, but can't find any feedback anywhere. My daughter had a huge ovarian cyst which was removed when she was 10. Consultants said her fertility and menstruation would not be effected by only having one ovary. She is now nearly 14 and has
BopsiBaby
in
Endometriosis UK
6 years ago
NICE approves Tocilizumab for Giant Cell Arteritis!
PMRGCAuk is delighted to announce that today is a really big day! NICE, the National Institute of Health and Clinical Excellence, has approved the use of tocilizumab on the second round of consultation, subject to their final appraisal report on 22 March. It will only be available for relapsing and refractory
PMRGCAuk is delighted to announce that today is a really big day! NICE, the National Institute of Health and Clinical Excellence, has approved the use of tocilizumab on the second round of consultation, subject to their final appraisal report on 22 March. It will only be available for relapsing and refractory
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
6 years ago
Corticoid-sparing agents
Therapeutic Advances in Chronic Disease Update on the management of giant cell arteritis Janet Roberts, Alison Clifford First Published March 28, 2017 Review Article Review of corticoid-sparing agents.
Therapeutic Advances in Chronic Disease Update on the management of giant cell arteritis Janet Roberts, Alison Clifford First Published March 28, 2017 Review Article Review of corticoid-sparing agents.
LCHRISTOP10
in
PMRGCAuk
6 years ago
Article from the Memorial Sloan Kettering Cancer Center and Cornell Medical College about multi-modal treatment of advanced disease.
This pilot study may be of interest to most of us since it shows that even with distant metastasis patients can achieve a PSA of 0 (non evidence of disease) if a multi-modal treatment is used. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5468169/ ------------------------ A Pilot Study of a Multimodal
This pilot study may be of interest to most of us since it shows that even with distant metastasis patients can achieve a PSA of 0 (non evidence of disease) if a multi-modal treatment is used. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5468169/ ------------------------ A Pilot Study of a Multimodal
Hidden
in
Advanced Prostate Cancer
6 years ago
Looking for some advice and support
Long post.....sorry :) looking for support I was diagnosed with non alcoholic cirrhosis on 12/11/17 during gallbladder removal surgery (confirmed through biopsy). Since then I have been through vials of blood, an ultrasound, trans jugular biopsy, Endoscopy and I am having an MRI on Monday. We have
Long post.....sorry :) looking for support I was diagnosed with non alcoholic cirrhosis on 12/11/17 during gallbladder removal surgery (confirmed through biopsy). Since then I have been through vials of blood, an ultrasound, trans jugular biopsy, Endoscopy and I am having an MRI on Monday. We have
RobynD
Moderator
in
Living with Fatty Liver and NASH
7 years ago
Post op gallbladder removal
When I woke up from deep anesthesia I was pissed, my throat had a terrible taste and I was in pain so much so I was cursing the pain. The first night was pretty painful and laying down was very difficult and rolling around was even worse. The day after surgery I spent sitting in my recliner and my
When I woke up from deep anesthesia I was pissed, my throat had a terrible taste and I was in pain so much so I was cursing the pain. The first night was pretty painful and laying down was very difficult and rolling around was even worse. The day after surgery I spent sitting in my recliner and my
Hidden
in
Anxiety Support
7 years ago
Citalopram- has anyone taken it for hormonal imbalances?
Hi, I really need some help, has anyone tried taking Citalopram for the horrendous hormones with endometriosis. My gp prescribed them on Monday I have felt awful, tired, shaky, spaced out, forgetting things and no sex drive! Has anyone got any positive experience with taking this? Also I am on the waiting
Hi, I really need some help, has anyone tried taking Citalopram for the horrendous hormones with endometriosis. My gp prescribed them on Monday I have felt awful, tired, shaky, spaced out, forgetting things and no sex drive! Has anyone got any positive experience with taking this? Also I am on the waiting
Hidden
in
Endometriosis UK
7 years ago
New to GCA
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
viamonv
in
PMRGCAuk
6 years ago
Any idea what’s next?
So, I’ve been on hydroxychloroquine for approx 13 years, with methotrexate added in 6 months ago as flares started up after a really dormant time. Whilst I’ve not suffered side effects I also don’t think the methotrexate has helped me at all..... I’ve had steroid jabs to deal with flares during this
So, I’ve been on hydroxychloroquine for approx 13 years, with methotrexate added in 6 months ago as flares started up after a really dormant time. Whilst I’ve not suffered side effects I also don’t think the methotrexate has helped me at all..... I’ve had steroid jabs to deal with flares during this
girli1111
in
NRAS
7 years ago
Are these symptoms b12 deficiency please
Hi im new here too.. advice needed please as im hoping this is b12 deficiency symptoms & not something even worse.sorry its a bit long..in 2015 i suddenly had a dreadful depression hit me out of the blue literally so quick i had been on lansoperazole/omoperazole for years for heartburn indigestion i
Hi im new here too.. advice needed please as im hoping this is b12 deficiency symptoms & not something even worse.sorry its a bit long..in 2015 i suddenly had a dreadful depression hit me out of the blue literally so quick i had been on lansoperazole/omoperazole for years for heartburn indigestion i
cuddlywuddly
in
Pernicious Anaemia Society
7 years ago
Pain after laparoscopy
Had laparoscopy and hysteroscopy + polyp removal last week. All fine (tubes ended up being clear, so no removal), but since the op, I've been experiencing some bad pain down the left wall of my vagina, plus bacterial infection symptoms seem to be returning. Starting to think I have a cyst/abscess, that
Had laparoscopy and hysteroscopy + polyp removal last week. All fine (tubes ended up being clear, so no removal), but since the op, I've been experiencing some bad pain down the left wall of my vagina, plus bacterial infection symptoms seem to be returning. Starting to think I have a cyst/abscess, that
Tomorrow_1
in
Fertility Network UK
7 years ago
Looks like I need to watch what I say
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
JulianJ
in
PMRGCAuk
7 years ago
Emergency Total Hysterectomy
Hello again! Trying to see if there is any such procedure as an emergency total hysterectomy? Have YOU indeed had this as an EMERGENCY PROCEEDURE? I am signed onto the NHS waiting list for said oopherectomy since July 2017, it can't come soon enough. I've been to the A&E department twice since July.
Hello again! Trying to see if there is any such procedure as an emergency total hysterectomy? Have YOU indeed had this as an EMERGENCY PROCEEDURE? I am signed onto the NHS waiting list for said oopherectomy since July 2017, it can't come soon enough. I've been to the A&E department twice since July.
Hidden
in
Pelvic Pain Support Network
7 years ago
Websites - useful stuff, articles, resources
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
Insight329
in
PMRGCAuk
7 years ago
Feeling worse during loading shots, is this normal?
I'm new here and this is my first question/post and this may be answered elsewhere (though I've been looking) so my apologies if it is a repeat and also for the length. I been having all major symptoms of B12 deficiency, including neurological and vision. My PCP sent me to Opthamologist, who referred
I'm new here and this is my first question/post and this may be answered elsewhere (though I've been looking) so my apologies if it is a repeat and also for the length. I been having all major symptoms of B12 deficiency, including neurological and vision. My PCP sent me to Opthamologist, who referred
Kat7
in
Pernicious Anaemia Society
7 years ago
oophorectomy
I'm booked in for my oophorectomy on Thursday and I'm starting to get a bit nervous. The op itself doesnt bother me in the slightest, it's more the life changing impact of early menopause that I'm concerned about. I have been pushing for something to be done about my endo since I was 20 (now 36). I've
I'm booked in for my oophorectomy on Thursday and I'm starting to get a bit nervous. The op itself doesnt bother me in the slightest, it's more the life changing impact of early menopause that I'm concerned about. I have been pushing for something to be done about my endo since I was 20 (now 36). I've
TillyMint83
in
Endometriosis UK
7 years ago
Oophorectomy experiences?
Hello, I had a hysterectomy 2 and a half years ago and now I’m booked in for an oophorectomy to remove both ovaries laparoscopically and I just wondered if anyone else had had this done and what your experiences were like. I’m most interested in how long the recovery was and how you got on with starting
Hello, I had a hysterectomy 2 and a half years ago and now I’m booked in for an oophorectomy to remove both ovaries laparoscopically and I just wondered if anyone else had had this done and what your experiences were like. I’m most interested in how long the recovery was and how you got on with starting
Sylv_99
in
Healthy Happy Woman
7 years ago
1
...
33
34
35
...
55
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
274 results
PMRGCAuk
194 results
My Ovacome
116 results
View top 10 communities
Sort by
Most Relevant
Newest