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Hello everyone I have been away for 4 weeks so am catching up at the moment. I have had PMR for 7 yrs am on 10g pred, propranolol , thyroxin
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
lucky12
in
PMRGCAuk
10 years ago
Why do doctors keep refering to 'temporal' arteritis instead of using the term 'giant cell' arteritis?
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
Hidden
in
PMRGCAuk
10 years ago
Is it IBS
Just wanted to let everyone know that its not always what doctors say! I have been quite ill for over 18 months now and been to a&e 3 times,presenting with a huge stomach, like nine months pregnant with twins, this happened suddenly, feeling like vomiting, urgent loose bowels, looked very sick, doctors
Just wanted to let everyone know that its not always what doctors say! I have been quite ill for over 18 months now and been to a&e 3 times,presenting with a huge stomach, like nine months pregnant with twins, this happened suddenly, feeling like vomiting, urgent loose bowels, looked very sick, doctors
denvajade
in
IBS Network
10 years ago
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Mid month bleeding
In April I had a laparoscopy, polyp removal and a cyst drained. When my next perio came I started on time as I generally do every month at 34 days. So iv been monitoring for ovulation this month and iv started to bleed, was spotted it at first which I thought may be signs of ovulation, but am bleeding
In April I had a laparoscopy, polyp removal and a cyst drained. When my next perio came I started on time as I generally do every month at 34 days. So iv been monitoring for ovulation this month and iv started to bleed, was spotted it at first which I thought may be signs of ovulation, but am bleeding
claremarie
in
Endometriosis UK
10 years ago
Ovary removal 6cm in older women
Hi all In older ladies is it more likely to be cancer? I have a mass in my left ovary and today was told at my appointment that both ovaries need to be removed but only a 5 -10 %chance it is cancer, and only looking under microscope can anyone know unti then. Major operation and can not do keyhole because
Hi all In older ladies is it more likely to be cancer? I have a mass in my left ovary and today was told at my appointment that both ovaries need to be removed but only a 5 -10 %chance it is cancer, and only looking under microscope can anyone know unti then. Major operation and can not do keyhole because
CHEL1103
in
My Ovacome
10 years ago
colonoscopy
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
kingharold11
in
PMRGCAuk
10 years ago
Daughter and ovarian cysts at 20 years of age
Im in quite a state today about my Daughter. She has had a brown discharge continuously for 1 year. She went to the doctors who put her on the pill for 3 months. This lessened it but it didnt go away. She went back to the doctor and they ordered a scan which of course she had to wait for. Once that
Im in quite a state today about my Daughter. She has had a brown discharge continuously for 1 year. She went to the doctors who put her on the pill for 3 months. This lessened it but it didnt go away. She went back to the doctor and they ordered a scan which of course she had to wait for. Once that
Numberone1
in
Endometriosis UK
10 years ago
I have a severe case of Endometriosis and I've been thinking of getting an Oophorectomy and I'm only 20yo
I have tried so much to get my pain to settle down (herbals, medication, birth control, surgery) and nothing is helping. The birth control makes me worse. The surgery didn't keep the pain away. Herbals did nothing. And now I'm desperate to be pain-free. It's hard to live life because my Endometriosis
I have tried so much to get my pain to settle down (herbals, medication, birth control, surgery) and nothing is helping. The birth control makes me worse. The surgery didn't keep the pain away. Herbals did nothing. And now I'm desperate to be pain-free. It's hard to live life because my Endometriosis
Waves_05
in
Endometriosis UK
10 years ago
Have you had a Hysterectomy with ovary removal and Endo has returned?
Hi As the title says: Have you had a Hysterectomy and endo and pain has returned? I had a Radical Hysterectomy in June 2012 - which included womb and both ovary removal etc. I didn't start taking HRT - Livial until after a year later. The last 3 days I've been having the old familiar burning pains in
Hi As the title says: Have you had a Hysterectomy and endo and pain has returned? I had a Radical Hysterectomy in June 2012 - which included womb and both ovary removal etc. I didn't start taking HRT - Livial until after a year later. The last 3 days I've been having the old familiar burning pains in
Paper_Butterfly
in
Endometriosis UK
10 years ago
Gallbladder surgery
Not sure if this is the right place to post but I cant find a relevant group! I started having attacks a few months ago which I initially thought was indigestion!! I ended up being admitted to hospital for 5 days as I was very jaundiced. They did an ultrasound which confirmed it was gallstones and quite
Not sure if this is the right place to post but I cant find a relevant group! I started having attacks a few months ago which I initially thought was indigestion!! I ended up being admitted to hospital for 5 days as I was very jaundiced. They did an ultrasound which confirmed it was gallstones and quite
xanon
in
Thyroid UK
10 years ago
I have Giant Cell Arteritis and am reducing Prednisolone. Does anyone have terrible 'hot flushes' and itchy patches on skin?
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
sookiesue
in
PMRGCAuk
10 years ago
Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Endometriosis pain after hysterectomy and oophorectomy - Is there anything that can help or am I stuck with the pain forever?
I have had a radical hysterectomy and oophorectomy last September. I was initially put on HRT patches when I came out of surgery - I noticed that I felt better as the patch was wearing off. After a couple of weeks I ditched them altogether. At that point I was coping with the menopausal symptoms. By
I have had a radical hysterectomy and oophorectomy last September. I was initially put on HRT patches when I came out of surgery - I noticed that I felt better as the patch was wearing off. After a couple of weeks I ditched them altogether. At that point I was coping with the menopausal symptoms. By
niknak247
in
Endometriosis UK
10 years ago
The diagnosis and classification of giant cell arteritis
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
On zoladex again!!!!
I've had endo since I was 17 although it wasn't diagnosed until I was 24. I am now 37 and have just had my first new round of zoladex today, I've been having zoladex since 2001 and it doesn't get any easier. I am now on the waiting list for an oophorectomy, my left ovary is definitely being removed,
I've had endo since I was 17 although it wasn't diagnosed until I was 24. I am now 37 and have just had my first new round of zoladex today, I've been having zoladex since 2001 and it doesn't get any easier. I am now on the waiting list for an oophorectomy, my left ovary is definitely being removed,
Hidden
in
Endometriosis UK
10 years ago
Ovary removal symptons
After 25 years of pain I finally had my left ovary and tube removed last November along with lots of endo which was attached to my bladder and bowel and a nasty lump also removed. This seems to have been successful but over the last 3 weeks I have has terrible pain in my right leg bone and calf (not
After 25 years of pain I finally had my left ovary and tube removed last November along with lots of endo which was attached to my bladder and bowel and a nasty lump also removed. This seems to have been successful but over the last 3 weeks I have has terrible pain in my right leg bone and calf (not
chelle68
in
Endometriosis UK
10 years ago
More from Doc Peatfields book
Hello Again! I am posting theses quotes as they are all applicable to me personally, and would like to share them with everybody . The Book - "Your Thyroid and how to keep it healthy". I read it in 2 days - it is well written, warm, reader friendly and extremely informative. Page49 " Thyroid Trauma.
Hello Again! I am posting theses quotes as they are all applicable to me personally, and would like to share them with everybody . The Book - "Your Thyroid and how to keep it healthy". I read it in 2 days - it is well written, warm, reader friendly and extremely informative. Page49 " Thyroid Trauma.
sheenah
in
Thyroid UK
10 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide. This book is a must for your bookshelf or kindle
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Skinnyjonny
in
PMRGCAuk
10 years ago
Book on PMR and GCA available now!
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Book on the way!
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
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