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2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
Exflex
in
PMRGCAuk
1 year ago
Cancelled operation & anaemic now.
Hi Ladies, Well feeling a bit deflated my operation got cancelled 2 days before it was supposed to go ahead on the 19th Aug due to blood tests being low B12 and another 1 low so now being referred to a blood doctor. I was wondering if any ladies have had the Prostap injection before surgery and there
Hi Ladies, Well feeling a bit deflated my operation got cancelled 2 days before it was supposed to go ahead on the 19th Aug due to blood tests being low B12 and another 1 low so now being referred to a blood doctor. I was wondering if any ladies have had the Prostap injection before surgery and there
Hidden
in
Endometriosis UK
2 years ago
Tocilizumab
Do other people find the injector pens are painful, intense stinging. Is there anything that can help this. Thank you.
Do other people find the injector pens are painful, intense stinging. Is there anything that can help this. Thank you.
Hidden
in
PMRGCAuk
1 year ago
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feeling weird just started levo
I started 50 mcg levothyroxine 3 days ago, felt very energetic within an hour of taking it, bit hyper but manageable and felt so positive. Took advice from this forum to split the dose and that helped but last night I wasn’t able to sleep, tense muscles sensation of palpitations and just couldn’t drop
I started 50 mcg levothyroxine 3 days ago, felt very energetic within an hour of taking it, bit hyper but manageable and felt so positive. Took advice from this forum to split the dose and that helped but last night I wasn’t able to sleep, tense muscles sensation of palpitations and just couldn’t drop
Mag999
in
Thyroid UK
2 years ago
Tocilizumab
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
PQXZT
in
PMRGCAuk
2 years ago
Pred affects glucose...what about thyroid?
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
Wallysma
in
PMRGCAuk
2 years ago
Numbness - please help!
I was diagnosed B12D, surviving on starvation rations from NHS for a few years, got really sick after major Gynae surgery likely due to anathetics / antibiotics, had issues with memory, vision, tinnitus, breathlessness, fatigue, MS hug, loss of balance and numbness/ weakness in legs. Neurologist said
I was diagnosed B12D, surviving on starvation rations from NHS for a few years, got really sick after major Gynae surgery likely due to anathetics / antibiotics, had issues with memory, vision, tinnitus, breathlessness, fatigue, MS hug, loss of balance and numbness/ weakness in legs. Neurologist said
MrsTuft
in
Pernicious Anaemia Society
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
Lumpectomy and CKD with eGFR 23%
I am due to have a lumpectomy and sentinel lymph node removal using radioactive dye. My eGFR is only 23%. After the operation I am due to have radiation therapy. Has anyone else had this done and do you know if the radiation or dye will lower my eGFR of 23%. I am very worried at the moment as I don't
I am due to have a lumpectomy and sentinel lymph node removal using radioactive dye. My eGFR is only 23%. After the operation I am due to have radiation therapy. Has anyone else had this done and do you know if the radiation or dye will lower my eGFR of 23%. I am very worried at the moment as I don't
eveebear
in
Kidney Disease
2 years ago
B12 deficiency post cholecystectomy
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
B12life
in
Pernicious Anaemia Society
2 years ago
Off Tocilizumab after six months
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
I don't know where to start. My history will show I have GCA and PMR all diagnosed in 2019 after several misdiagnoses, and started treatment with Pred 15mg and then up to 25mg which helped the PMR and the GCA somewhat. I was then put on 20mg of Mexthetrate which did not agree with me. I change my
redhouts
in
PMRGCAuk
2 years ago
tocilizumab after relapse
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Devoid
in
PMRGCAuk
2 years ago
Aviva - Excluding Endometriosis as a "Chronic" Condition
Hello I'm hoping someone could give me advice or be able to provide some support during this tough time which my wife is going through. I'm doing my very best to support her but feel like I can't do enough most of the time. I know we are lucky in that we have private medical insurance through my work
Hello I'm hoping someone could give me advice or be able to provide some support during this tough time which my wife is going through. I'm doing my very best to support her but feel like I can't do enough most of the time. I know we are lucky in that we have private medical insurance through my work
HTFCacc2022
in
Endometriosis UK
2 years ago
Request - Real time experience Reco for the best haematologists in Portugal please
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Iwillwin123
in
PMRGCAuk
2 years ago
10 weeks post op liver cyst deroofing/resection
I am 10 weeks out today from robotic liver resection 10%m gallbladder removal (lesion pressing on it killed it) and deroofing of an 8 cm cyst (formerly a hemangioma that turned cystic after 2 ablations). I have made some progress but still feel rather badly; still have pain/discomfort on right side,
I am 10 weeks out today from robotic liver resection 10%m gallbladder removal (lesion pressing on it killed it) and deroofing of an 8 cm cyst (formerly a hemangioma that turned cystic after 2 ablations). I have made some progress but still feel rather badly; still have pain/discomfort on right side,
Surfrgirl
in
British Liver Trust
2 years ago
will these hot flashes ever end ?
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Mofred
in
PMRGCAuk
2 years ago
mastectomy
i had a mastectomy in june and total lymph node removal in july. been told i need chemotherapy and radiotherapy, when will treatment begin
i had a mastectomy in june and total lymph node removal in july. been told i need chemotherapy and radiotherapy, when will treatment begin
gelardine19
in
Women's Health
2 years ago
Stopping the mini pill for better sex?
Just looking for opinions to help me make my mind up about whether to stop taking the mini pill. Sorry its a long one! I was officially diagnosed with stage 4 deep infiltrating endo last summer after about 7 years. I am on the waiting list for excision surgery, cyst removal, possible ovary removal,
Just looking for opinions to help me make my mind up about whether to stop taking the mini pill. Sorry its a long one! I was officially diagnosed with stage 4 deep infiltrating endo last summer after about 7 years. I am on the waiting list for excision surgery, cyst removal, possible ovary removal,
Petalgirl
in
Endometriosis UK
2 years ago
Ive just had a total hysterectomy and The removal of both my ovaries, I’m quite scared and confused a bout th reset of my health now.
Having a huge cysts on both ovaries 1 was 20cm and the other around 8 cm it was decided it was best to get rid of both my ovaries too as this was the 3rd time i had surgery for endometriosis. My consultant has said i shroud wait a month before i go on HRT, due to blood clotting just after surgery. I
Having a huge cysts on both ovaries 1 was 20cm and the other around 8 cm it was decided it was best to get rid of both my ovaries too as this was the 3rd time i had surgery for endometriosis. My consultant has said i shroud wait a month before i go on HRT, due to blood clotting just after surgery. I
JoAmber22
in
The Endometriosis Foundation
2 years ago
Gallbladder Removal Anxiety
After a few years of off and on stomach pain I finally had an ultrasound that reveals gallstones. I have a consultation with a surgeon and I am freaking out. I know that this surgery is pretty common but I am someone with high anxiety and occasional panic attacks, I've never had surgery and this is a
After a few years of off and on stomach pain I finally had an ultrasound that reveals gallstones. I have a consultation with a surgeon and I am freaking out. I know that this surgery is pretty common but I am someone with high anxiety and occasional panic attacks, I've never had surgery and this is a
Cattitude27
in
Anxiety Support
2 years ago
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