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Please help PMRGCAuk raise money for GCA research!
Hi. This forum is free, free, free and always will be. However, PMRGCAuk is run on a shoestring and our shoestring is wearing a bit thin! We desperately need money to help us continue our work. This month, Jennifer from the East Anglia support group and I are doing the Carrots Night Walk around
Hi. This forum is free, free, free and always will be. However, PMRGCAuk is run on a shoestring and our shoestring is wearing a bit thin! We desperately need money to help us continue our work. This month, Jennifer from the East Anglia support group and I are doing the Carrots Night Walk around
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
Going to have an OPEN Unilateral Oopherectomy... what can I expect???
I recently was diagnosed with pelvic congestion, and underwent an embolization of the veins. I am 24, thin, and very healthy. I have a daughter who is two. I have had a loooong history of ovarian cysts (3 required surgery, 5 hospitalizations). So the embolization was done about 8 weeks ago, and needless
I recently was diagnosed with pelvic congestion, and underwent an embolization of the veins. I am 24, thin, and very healthy. I have a daughter who is two. I have had a loooong history of ovarian cysts (3 required surgery, 5 hospitalizations). So the embolization was done about 8 weeks ago, and needless
sobermeyer87
in
My Ovacome
12 years ago
Can B12 deficiency cause other diseases?
Hi I only joined today so would be grateful of any advice in advance. I'm a 53 yr old female who had a mesenteric infarct necessitating removal 2/3 small bowel in 1983 inc terminal ilium. Have 6 ft left which is not working well so have several operations for bowel obstructions. Since then have
Hi I only joined today so would be grateful of any advice in advance. I'm a 53 yr old female who had a mesenteric infarct necessitating removal 2/3 small bowel in 1983 inc terminal ilium. Have 6 ft left which is not working well so have several operations for bowel obstructions. Since then have
cezzie5
in
Pernicious Anaemia Society
12 years ago
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I've just had a bilateral oopherectomy as I have the brca 1 gene is there anybody who has had this procedure done that I can talk to?
Lioness69
in
My Ovacome
12 years ago
Is Zoladex menopause worse than menopause from ovary removal?
Hi ladies, I am trying to work out which hysterectomy I should go for, and would like to know your experiences/advice on whether the menopause caused by ovary removal is worse/same/better than a zoladex enduced menopause? Many thanks Noggsxxx
Hi ladies, I am trying to work out which hysterectomy I should go for, and would like to know your experiences/advice on whether the menopause caused by ovary removal is worse/same/better than a zoladex enduced menopause? Many thanks Noggsxxx
Noggsy
in
Endometriosis UK
12 years ago
Seen by haematologist - no further forward at moment
Hi everyone thanks for your help with preparing for appointment - I was well armed when I saw haematologist today. Not got much further really. Apparently when I was pregnant/having miscarriages (2004)they did 2 tests, but only told me about one. One test positive for lupus anti-coagulant, one negative
Hi everyone thanks for your help with preparing for appointment - I was well armed when I saw haematologist today. Not got much further really. Apparently when I was pregnant/having miscarriages (2004)they did 2 tests, but only told me about one. One test positive for lupus anti-coagulant, one negative
aliceblue
in
Hughes Syndrome APS Forum
12 years ago
Have you had a hysterectomy and did you keep/not keep your ovaries?
Hi ladies, I am in the consultation process of having a hysterectomy. The question is though do I or do I not keep my ovaries? I lean towards them being taken out as I am on zoladex, and stopped hrt due to pains coming back - so in essence if they are taken out and I take a calcium supplement, this
Hi ladies, I am in the consultation process of having a hysterectomy. The question is though do I or do I not keep my ovaries? I lean towards them being taken out as I am on zoladex, and stopped hrt due to pains coming back - so in essence if they are taken out and I take a calcium supplement, this
Noggsy
in
Endometriosis UK
12 years ago
What an amazing week!
Well, on top of the article in the Daily Mail that has caused our phones to practically melt (140 calls since Tuesday), we have got even more excitement to report. Lord Wills, who has taken up the cause of Giant Cell Arteritis and the tragedy of sight loss that it can cause, has managed to get the
Well, on top of the article in the Daily Mail that has caused our phones to practically melt (140 calls since Tuesday), we have got even more excitement to report. Lord Wills, who has taken up the cause of Giant Cell Arteritis and the tragedy of sight loss that it can cause, has managed to get the
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
Daily Mail features Giant Cell Arteritis
Now, the Daily Mail isn't normally my favourite newspaper, but today it definitely is. The Mail has published a long and really good feature on Giant Cell Arteritis, the tragedy of people who lose their sight because of it not being diagnosed, and the scandal of doctors who don't see what is right in
Now, the Daily Mail isn't normally my favourite newspaper, but today it definitely is. The Mail has published a long and really good feature on Giant Cell Arteritis, the tragedy of people who lose their sight because of it not being diagnosed, and the scandal of doctors who don't see what is right in
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
Recovery time after a unilateral salpingo oophorectomy?
I know everyone is different, but just interested in people's experiences. Also any tips / advice for preparing and for afterwards?
I know everyone is different, but just interested in people's experiences. Also any tips / advice for preparing and for afterwards?
Rufio
in
My Ovacome
12 years ago
I am looking to find out any information from anyone who has experienced removal of ovaries pre menopause?
I ‘m 42 with a history of endometriosis and fibroids and a Mother who died from OC aged 57 (diagnosed at 46). I have just had my annual ovarian screening and am awaiting an appointment with a consultant after another potential fibroid has been found, it’s blocking the view of my left ovary so the sonographer
I ‘m 42 with a history of endometriosis and fibroids and a Mother who died from OC aged 57 (diagnosed at 46). I have just had my annual ovarian screening and am awaiting an appointment with a consultant after another potential fibroid has been found, it’s blocking the view of my left ovary so the sonographer
MarieK
in
My Ovacome
13 years ago
Any tips for dealing with fatigue associated with surgical menopause?
I seem to be really, really tired most of the time (not even a strong cuppa wakes me up!) and I'm suspecting it's the surgical menopause. (I can't have HRT as my tumours were strongly oestrogen receptive). My gynaecologist gave me a review paper to read from the Royal College of Gynaecologists/Obstetricians
I seem to be really, really tired most of the time (not even a strong cuppa wakes me up!) and I'm suspecting it's the surgical menopause. (I can't have HRT as my tumours were strongly oestrogen receptive). My gynaecologist gave me a review paper to read from the Royal College of Gynaecologists/Obstetricians
dundeegirl
in
My Ovacome
13 years ago
Great Sunday Times Article Dec 09
This article came out recently in the Sunday Times - brilliantly written story: I was just 40 when I was diagnosed with ovarian cancer. That’s pretty unusual — only 15% of cases occur in women below the age of 50. It’s one of those diseases that’s completely unsexy. It lacks the trendy factor: we don
This article came out recently in the Sunday Times - brilliantly written story: I was just 40 when I was diagnosed with ovarian cancer. That’s pretty unusual — only 15% of cases occur in women below the age of 50. It’s one of those diseases that’s completely unsexy. It lacks the trendy factor: we don
ovadmin
in
My Ovacome
15 years ago
Ovacome launch Young Ovarian Cancer Support Network
Hi everyone. I'd like to introduce myself. I'm Kerry, I was 37 when I was eventually diagnosed last year. I finished treatment (surgery and chemo) in February 2010. After treatment ended I was relieved on the one hand but on the other, I felt as though I'd been cast adrift in the ocean, with no prior
Hi everyone. I'd like to introduce myself. I'm Kerry, I was 37 when I was eventually diagnosed last year. I finished treatment (surgery and chemo) in February 2010. After treatment ended I was relieved on the one hand but on the other, I felt as though I'd been cast adrift in the ocean, with no prior
Kerry
in
My Ovacome
14 years ago
Anyone have similar experience?
Hi, I was diagnosed with multilocular complex cysts on left ovary with Ca125 level of 145 in December and was due to have laparoscopic removal of left ovary and tube + - bilateral yesterday. When I came round from op I thought that it had been done. On reading the discharge letter I realised that the
Hi, I was diagnosed with multilocular complex cysts on left ovary with Ca125 level of 145 in December and was due to have laparoscopic removal of left ovary and tube + - bilateral yesterday. When I came round from op I thought that it had been done. On reading the discharge letter I realised that the
scat
in
My Ovacome
13 years ago
Surgical menopause - how long it lasts without HRT? and sur meno related insomnia - any tips? Am going slowly bonkers from lack of sleep...
Since my op last August I've been in surgical menopause (with a couple of 'holidays' due to HRT as part of IVF treatment). My tumours were oestrogen receptive so I can't have any HRT normally long-term, nor oestrogen creams, nor lots of phyto-oestrogens. I'm really struggling at the moment with insomnia
Since my op last August I've been in surgical menopause (with a couple of 'holidays' due to HRT as part of IVF treatment). My tumours were oestrogen receptive so I can't have any HRT normally long-term, nor oestrogen creams, nor lots of phyto-oestrogens. I'm really struggling at the moment with insomnia
dundeegirl
in
My Ovacome
13 years ago
Gallbladder removal even more fatigued
Had to be admitted to hospital last Monday as emergency. Never been so ill they removed my gallbladder on the Tuesday said it was badly infected and and all the gallstones had gone solid. Had keyhole surgery anybody else had this done ? Was just wondering if having PBC makes the recovery any longer ?
Had to be admitted to hospital last Monday as emergency. Never been so ill they removed my gallbladder on the Tuesday said it was badly infected and and all the gallstones had gone solid. Had keyhole surgery anybody else had this done ? Was just wondering if having PBC makes the recovery any longer ?
cowren
in
PBC Foundation
13 years ago
Advice on Surgical Menopause in your 40's
Dear Ladies, I‘m looking for advice, help and support on surgical menopause. I’m a long term sufferer of endometriosis (approximately 25 years), along with fibroids. I’ve had a variety of treatments and surgery over the years. My Mother died from ovarian cancer in 2002 (she was originally diagnosed
Dear Ladies, I‘m looking for advice, help and support on surgical menopause. I’m a long term sufferer of endometriosis (approximately 25 years), along with fibroids. I’ve had a variety of treatments and surgery over the years. My Mother died from ovarian cancer in 2002 (she was originally diagnosed
MarieK
in
My Ovacome
13 years ago
Welcome to our new community!
Hi I'm Kate Gilbert and I'm the Chair of PMRGCAuk. We are delighted to be collaborating with HealthUnlocked on this new community This charity has only been going for a couple of years, but we are already making a difference to the lives of people with polymyalgia rheumatica and giant cell arteritis
Hi I'm Kate Gilbert and I'm the Chair of PMRGCAuk. We are delighted to be collaborating with HealthUnlocked on this new community This charity has only been going for a couple of years, but we are already making a difference to the lives of people with polymyalgia rheumatica and giant cell arteritis
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
13 years ago
Sex after surgical menopause
Hi there, I realise this might be a delicate topic but I'm wondering if anyone has any advice or tips for me! I've been in the surgical menopause since August 2010 after having a BSO at age 33...unfortunately I can't have HRT as my tumours were oestrogen-receptive and I'm finding some aspects of
Hi there, I realise this might be a delicate topic but I'm wondering if anyone has any advice or tips for me! I've been in the surgical menopause since August 2010 after having a BSO at age 33...unfortunately I can't have HRT as my tumours were oestrogen-receptive and I'm finding some aspects of
dundeegirl
in
My Ovacome
13 years ago
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