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Am I going insane?
Hmm so I’m just wondering, do those of you with PA that self inject regularly still suffer extreme fatigue and body aches and pains or other symptoms? I have celiac disease and that’s in remission thanks to a gluten free diet and I self inject fortnightly. I follow a good gut health diet but was told
Hmm so I’m just wondering, do those of you with PA that self inject regularly still suffer extreme fatigue and body aches and pains or other symptoms? I have celiac disease and that’s in remission thanks to a gluten free diet and I self inject fortnightly. I follow a good gut health diet but was told
Mandymoos8
in
Pernicious Anaemia Society
9 months ago
Recent results & help needed on next steps
Hi, I'm really grateful for any help please.. My theory is that I am having a gut issue because of the supplements I am taking not making a difference and I have no clue where to start with that. I have been attempting to help myself since November 2022 when I was fed up of feeling crappy. I have been
Hi, I'm really grateful for any help please.. My theory is that I am having a gut issue because of the supplements I am taking not making a difference and I have no clue where to start with that. I have been attempting to help myself since November 2022 when I was fed up of feeling crappy. I have been
Smv95
in
Thyroid UK
1 year ago
GP referred me to Endocrinology
hi I really hope someone can help… I’m diagnosed with Ehlers Danlos syndrome hypermobility type and fibromyalgia. I was diagnosed with bipolar disorder after a single episode of psychosis over a decade ago. pain is an every day thing but the past 18 months I’ve felt on a slippery slope. Usually
hi I really hope someone can help… I’m diagnosed with Ehlers Danlos syndrome hypermobility type and fibromyalgia. I was diagnosed with bipolar disorder after a single episode of psychosis over a decade ago. pain is an every day thing but the past 18 months I’ve felt on a slippery slope. Usually
Kaatse
in
Thyroid UK
8 months ago
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Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
11 months ago
Do I risk taking T3 medication?
I had a double thyroidectomy 15 years ago and I have managed quite well on an optimal dose of 112mcg of Mercury Pharma levothyroxine per day. After the second operation I was told that the crucial test results would now be T3 and T4 instead of T4 and TSH . I was advised that I would probably feel well
I had a double thyroidectomy 15 years ago and I have managed quite well on an optimal dose of 112mcg of Mercury Pharma levothyroxine per day. After the second operation I was told that the crucial test results would now be T3 and T4 instead of T4 and TSH . I was advised that I would probably feel well
Scolbyn
in
Thyroid UK
1 year ago
update on hubby
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
LAJ12345
in
Cure Parkinson's
1 year ago
2 year old Toddler with RLS
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
OrangeDino
in
Restless Legs Syndrome
1 year ago
my results today
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
FoxyTed
in
Thyroid UK
8 months ago
endo diet
Hey ladies dise anyone follow a gluten free diet to help with endometriosis and if so dose it help xx 😘
Hey ladies dise anyone follow a gluten free diet to help with endometriosis and if so dose it help xx 😘
Shay30
in
Endometriosis UK
9 months ago
where to go from here
I started t3 a month ago first 2 weeks 2.5 mornings only which I definitely believe gave me more stamina and energy and then after 2 weeks added in a second afternoon 2.5, - im not sure if this made much difference, perhaps as first was going from nothing to something and this was just a small increase
I started t3 a month ago first 2 weeks 2.5 mornings only which I definitely believe gave me more stamina and energy and then after 2 weeks added in a second afternoon 2.5, - im not sure if this made much difference, perhaps as first was going from nothing to something and this was just a small increase
samking5
in
Thyroid UK
10 months ago
Results of test with a history of ME/CFS
First of all I have a history of ME/CFS not hypothyroidism. I feel well and have either recovered from ME/CFS or it is in remission, and wanted to get tests while feeling well. My only symptom is tinnitus. I have no fatigue or neurological complaints otherwise at present although i have had lots of fatigue
First of all I have a history of ME/CFS not hypothyroidism. I feel well and have either recovered from ME/CFS or it is in remission, and wanted to get tests while feeling well. My only symptom is tinnitus. I have no fatigue or neurological complaints otherwise at present although i have had lots of fatigue
MEguy
in
Thyroid UK
9 months ago
Advice/assistance regarding starting T3.
Most recent results, Monitor my health 24/7/2023 TSH 0.3 (0.27-4.2) FT4 20 (12-22) FT3 4.2 (3.1-6.8) Vit D 117 - their ranges are just lines on a graph but it’s in the excess category. VitB12/folate/ferritin- I have a replacement kit (which I forgot to do this morning) due to blood clotting so they
Most recent results, Monitor my health 24/7/2023 TSH 0.3 (0.27-4.2) FT4 20 (12-22) FT3 4.2 (3.1-6.8) Vit D 117 - their ranges are just lines on a graph but it’s in the excess category. VitB12/folate/ferritin- I have a replacement kit (which I forgot to do this morning) due to blood clotting so they
Beads
in
Thyroid UK
11 months ago
Early 50s male, healthy till hypothyroidism my first few months experience of treatment
I don't usually share info on the internet, but as a lot of material out there is aimed at women or Americans (I mean no offence to either!) I thought I'd stay my experience so far. Diagnosis, what does it all mean, and treatment/first medications. DIAGNOSIS Late 2022 I saw a nurse as I was taking longer
I don't usually share info on the internet, but as a lot of material out there is aimed at women or Americans (I mean no offence to either!) I thought I'd stay my experience so far. Diagnosis, what does it all mean, and treatment/first medications. DIAGNOSIS Late 2022 I saw a nurse as I was taking longer
BobMcBob
in
Thyroid UK
1 year ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
Fight MPN
10 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
MPN Voice
10 months ago
Supplements to Stop Before Holmium Laser Enucleation of the Prostate (HoLEP) Surgery
Hubby has been scheduled for prostate surgery on 26 June 2023 at Vanderbilt. Surgeon asked him to stop
COQ10, Krill Oil, Turmeric, Aspirin and B Complex
for 10 days prior to surgery. I understand that he needs to stop first four which are blood thinners, BUT WHY
B COMPLEX?
Can any one
Hubby has been scheduled for prostate surgery on 26 June 2023 at Vanderbilt. Surgeon asked him to stop
COQ10, Krill Oil, Turmeric, Aspirin and B Complex
for 10 days prior to surgery. I understand that he needs to stop first four which are blood thinners, BUT WHY
B COMPLEX?
Can any one
Despe
in
Cure Parkinson's
1 year ago
Iron test results advise please!
Hi, Thanks for the great advice on my last post. Latest Thyroid results: TSH 0.824 (0.27 - 4.2) FT3 4.2 (3.1 - 6.8) FT4 15.2 (12 -22) TPA antibodies 13.1 (0 -34) Thyroglobulin antibodies 285 (0 -115) HIGH Since my last post I have seen a private thyroid GP and have been prescribed T3 I took
Hi, Thanks for the great advice on my last post. Latest Thyroid results: TSH 0.824 (0.27 - 4.2) FT3 4.2 (3.1 - 6.8) FT4 15.2 (12 -22) TPA antibodies 13.1 (0 -34) Thyroglobulin antibodies 285 (0 -115) HIGH Since my last post I have seen a private thyroid GP and have been prescribed T3 I took
Bluecat77
in
Thyroid UK
9 months ago
gluten diet
Having difficulties in having a balanced gluten free diet or what to cook because very scared to go to restaurants and other food outlets. How do I make a healthy gluten free diet, i have lost a lot of weight.
Having difficulties in having a balanced gluten free diet or what to cook because very scared to go to restaurants and other food outlets. How do I make a healthy gluten free diet, i have lost a lot of weight.
NyashaWisi
in
Gluten Free Guerrillas
10 months ago
T3 affects of different manufacturers
After many years on Teva 60mcgs daily I am trying to reduce the dose to 55mcgs due to increased bowel activity! The GP prescribed 2x20 Teva, 10 Morningside and 5 Viatris. I feel ok except that I have a burning sensation in my digestive system which would suggest an excipient in the new T3 may be an issue
After many years on Teva 60mcgs daily I am trying to reduce the dose to 55mcgs due to increased bowel activity! The GP prescribed 2x20 Teva, 10 Morningside and 5 Viatris. I feel ok except that I have a burning sensation in my digestive system which would suggest an excipient in the new T3 may be an issue
MaryMary
in
Thyroid UK
10 months ago
Gluten ataxia.
Just want to make it clear that having gluten ataxia and then going gluten free is not a cure. For many there is still no medication and only if you don't respond to a gluten free diet are you offered anything.A gluten free diet and a healthy eating approach along with regular exercise helps. I also
Just want to make it clear that having gluten ataxia and then going gluten free is not a cure. For many there is still no medication and only if you don't respond to a gluten free diet are you offered anything.A gluten free diet and a healthy eating approach along with regular exercise helps. I also
penelope2
in
Ataxia UK
10 months ago
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