my results today

[FoxyTed]

Hi everyone,

From the Thyroid clinic uk

My results are as follows, I am confused now as to what is causing my awful symptoms.

TSH 2.34 range 0.27 - 4.2

Free T3 3.9 range 3.1 - 6.8

FT4 15.7 range 12 -22

TPA <9 range 0 - 34

Folate serum 37.4 range 8.83 - 60.8

B12 792 range 145 - 769 (HIGH)

Ferritin 144 range 30 - 650

Iron serum 23.5

I was supplementing with b complex, stopped week b4 tests so I think I need stop b12.

My saliva cortisol was tested at 8am, 12noon,4pm and 10pm this was all ok except the 12 noon shot up to 17.80 range 1.6 -5.6!!!

Can anyone help? Or throw any light.

Ps

GP done tests last week and I have to have my U & E repeated, is this potassium and sodium?

Much thanks!

[SlowDragon Administrator]

This was NHS test

was test early morning, fasting

No Thyroglobulin antibodies test

NHS won’t test TG antibodies when TPO antibodies are negative

Need to test privately via Medichecks or Blue Horizon

If both antibodies are negative

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Gluten intolerance is often a hidden issue too.

Request coeliac blood test BEFORE considering trial on strictly gluten free diet

Ft3 is very low and likely causing symptoms

Yes you can stop separate B12, but continue a daily vitamin B complex

No vitamin D test result?

[FoxyTed in reply to SlowDragon]

Thanks Slowdragaon for kindly replying.

Test was done via THE THYROID CLINIC UK and done at 9am fasting.

My anxiety is off the charts, I’m now worrying could this be long covid🥲

I don’t have gluten.

Can you recommend a good B complex without B12?

Thanks a lot

[SlowDragon Administrator in reply to FoxyTed]

So how long have you been gluten intolerant / on gluten free diet

As you are gluten free, TPO antibodies are more likely low

So definitely get TG antibodies tested

And ultrasound scan of thyroid if both antibodies are negative

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Have you been taking any supplements that contain B12

Improving your B vitamins with vitamin B complex can balance all the B’s

High B12 can be misleading

Low Ft3 will be leading to symptoms like anxiety

Looking at your previous posts……you’re not currently taking levothyroxine ?

[FoxyTed in reply to SlowDragon]

Hi SlowDragon, Tks again!

Yes I have been taking SEEKING HEALTH methyl free B complex as I was Rock bottom folate last year. I stopped gluten to improve vitamin absorption and also I used to have to take laxatives but since gluten free im regular ….sorry for details😬

I have been having headaches almost daily since age 43 im now 62. I have always thought these were hormonal as in female hormones🤷‍♀️ but I don’t know.

I am wakened every single early mornings with sweats and palps/racing heart, but im on estrogen hrt.

Hit a brick wall 8 weeks ago, feel so so low, zero motivation just so unlike me. I have had odd bouts of this since covid matters 2 years ago so im baffled. Perhaps I already had an underlying thyroid issue.

My mood is what is worrying me the most🥲and not being able to do much doesn’t help.

I thank you for your support it means a lot x

[SlowDragon Administrator in reply to FoxyTed]

I have apt with good Endo next week.

Could you get ultrasound scan before appointment

If not say you are investigating getting one done

[FoxyTed in reply to SlowDragon]

chat tomorrow re scan. Tk you and good night x

[FoxyTed in reply to SlowDragon]

Hi SG

I’m not really gluten intolerant, I had tests a while ago privately and it suggested leaky gut, i Eliminated gluten and it has helped keep me regular x

[Easylover in reply to FoxyTed]

I think Slow Dragon is right about why you feel low. Your T3 is LOW! From what I understand, it's preferable to have Free T4 in mid range and T3 in the upper according to Stop the Thyroid Madness. Com and also Thyroid Patient's Canada.

[FoxyTed in reply to Easylover]

Back in May my T4 was 11 so it has actually gone up a bit!

Thank you for your reply, I’d love to find a key to stop some of my symptoms🤞apt next week with Endo - first for me and thyroid, he prob say your results are ok🤷‍♀️

[Easylover in reply to FoxyTed]

Study, study, study study. People here know more than the endo. Look on line. Paul Robinson Thyroid Website. Stop the Thyroid Madness. Com, Thyroid Patient's Canada. Take temperature different times a day. Write how you're feeling. Insist on FREE T3 TEST! HR, BP. Listen to SlowDragon

[FoxyTed in reply to Easylover]

I will have a look at that👍 Hubby be with me and he knows how I am. All this whatever is going on has changed my life so much🙁 Tk you

[Easylover in reply to FoxyTed]

I can relate. I am frustrated myself. When I was young it all seemed so easy. Now, it's about high n low cortisol, dividing doses, trying to fit all the pieces to the puzzle. I just want to feel wonderful again.

[Easylover in reply to FoxyTed]

I do want to say this that according to Antonio C Bianco MD, who is scientist!, that the body doesn't use anything except T3 to make all its cells work. So even he who prescribed people T4 only apologizes to all his patients that he didn't listen to those who still suffered from hypothyroid symptoms. Because he did the same thing all doctors do, your TSH and your T4 is fine go home and die. It's so in depth and so intense and even he doesn't have it right because if you continue to think that you can make someone's body react like a normal body when it has hypothyroidism it is impossible we are all unique and individual and we have to titrate our medicine exactly to Who We Are. God bless you God bless us all!

It is an image of the book Rethinking Hypothyroidism

[FoxyTed in reply to Easylover]

It’s awful really. I have been housebound for 2 months now, trying to manage hrt also, affecting my mental health a lot! nothing seems to be working.

I know exactly what you mean.

Thank you for the book rec x

[Easylover in reply to FoxyTed]

Please hang in there. It does get better. I only bought that book because it was written by a doctor. However, I feel only people who have thyroid issues really know what's up. I sympathize with you because that's how I felt, "that nothing works"! Just keep plugging away. I found some resources in STTM stop the thyroid madness. Please keep going. It will get better. Pray. Try new things but even that you have to stuck with it for a certain period of time because the way the hormones work it can be 6 weeks to 3 months to really balance it out. The body wants a timely manor. So, for instance, if you take thyroid hormone and you have to divide your T3 doses, do it at the same time every day and then follow Paul Robinson's blog on symptoms and signs. Don't give up. You can do it. God can send you the right doctor and the right information. Blessings be. Sincerely.

[FoxyTed in reply to Easylover]

Easy, You are so so kind to take time to message me like that. Feel I’m going mad, I’m so not me and it’s not getting any better.

Have you looked at my results, I’m afraid Endo will dismiss them, even though iv never seen him yet.

I have no appetite, I feel nauseated, freezing feet always, hair coming out and so weak, anxious and v down.

How did you feel if I can ask?

[Easylover in reply to FoxyTed]

I'm not skilled in lab work. I feel maybe your 12 noon? Cortisol should be addressed. Please contact Paul Robinson through his website. He will answer a few questions because he's promoting his books. Cold...yes. do take your temperature different times a day. Record it. Just keeping. You will feel better. I wish I could help more because I do care. When you're on Natural desecrated thyroid hormone NDT...the TSH goes down suppressed they call it. Then you look at T3 upper range...I don't know its been a pain. I don't take my medicine as I should before a test because I've had the clinic freak out but I feel so much better since I started splitting my doses into three. God us so good. Hang in there baby.Depression, hair all if it...

[Easylover in reply to Easylover]

Of

[FoxyTed in reply to Easylover]

Thank you, v kind. It’s so frustrating isn’t it!

I’m glad you’ve found a solution.

There are some great people on this site I’m so grateful!! Iv had some good feedback, I want to have T issues (never thought I’d say that) so I can be treated.

God bless you x

[Easylover in reply to FoxyTed]

You do not want to be treated w T4 only. NO. Please take the advice I gave you. Please start reading. Go to sites mentioned. Your signs(vitals) and symptoms are more important than blood work. You're kind too Foxy for sharing, being honest n open We all learn from each other!

Bless You sister.

[FoxyTed in reply to Easylover]

Easy, I don’t even know what he will suggest, but if he does suggest a little T4, have you any suggests as to what I should say, or how? I don’t want to ruffle feathers, putting cart b4 the horse for sure😬

❤️

[Easylover in reply to FoxyTed]

Foxy, I've been looking at your labs. My suggestion would be to tell the new Endo that your goal is to keep your T4 about where it is, mid range and to raise your T3 to the very top of its range because according to all studies done in the recent understanding of our need for T3 in every cell, D1,, etc, that most patients feel best at those levels with TSH suppressed. And that obviously you are not a good converter of T4 to T3. All your symptoms point to the fact that you need to be prescribed T3, preferable in 3 doses. T4 may just make you sicker. If he isn't open to the new way of treating hypothyroidism, have him look at the book I posted here. Can you make a screenshot of it? And print what Paul Robinson wrote you. If you can bring any literature to the appointment, especially Pauls books and Thyroid Patient's Canada website from Dr Taina?, do so. You may know more about hypothyroidism than the Endo. Tell him please do not go by TSH and T4. They are completely irrelevant. Most people who are properly treated have TSH suppressed and your symptoms must diminish so you are no longer hypo. Print what you can to support your case and have it on hand.

[FoxyTed in reply to Easylover]

Dear Easy,

Paul got back to him, he’s an Angel!

I sent him my results his words were as follows

You’re T3 is VERY LOW, you are hypothyroid!

I feel so unwell today, freezing, nauseous, low mood, headache, anx and exhausted.

I can cope with this better now that Paul has confirmed🙏🏻🙏🏻

Thank you so so much for suggesting that I email him. May God bring you great love & blessings xxx

[Easylover in reply to FoxyTed]

PRAISE GOD FOXY!!! THANK YOU SO SO VERY MUCH FOR GETTING BACK TO ME. I THOUGHT YOU WERE MAD AT ME.

[FoxyTed in reply to Easylover]

Easy see your inbox🪴

[Easylover in reply to FoxyTed]

Foxy when you email Paul Robinson, don't go into a big spiel about your thyroid or your chest or your levels or nothing just say what you make of this 12 noon cortisol and you said it was like 17? And that's all and he'll answer you. Let him know you're interested in his books you really should check out his site because the blogs are outrageous. I think he knows about cortisol more than anybody out there in the field. I'm praying for you!

[FoxyTed in reply to Easylover]

I will do that Easy. Tk you😁

[FoxyTed in reply to Easylover]

Done👍🤞🤞

[Easylover in reply to FoxyTed]

When I do voice to text it seems to be too long. But I wanted to tell you that I have been self-medicating for years because the doctors don't know what they're doing if you find one that does you are Beyond Blessed! I take Natural desecrated thyroid hormone. I found a doctor who prescribed it to me but before that I ordered it online because I learned about it from stop the thyroid madness.com I'm not saying that everything's perfect but I am saying it's a lot better than what the doctors were doing to me because I was totaled. You're right it affects your mental health it affects your heart it affects everything in your life your relationships your mood your ability to cope. I just wish you well I mean I've learned to just go by how I feel what my symptoms are. My dad lost both his legs from Hughes syndrome. He told me it's my own fault I put myself in the hands of a doctor.

[TiggerMe Ambassador]

When you look at your results as a percentage it highlights your issue... under replaced

TSH 2.34 mIU/L (0.27 - 4.2) 52.7%

Free T4 (fT4) 15.7 pmol/L (12 - 22) 37.0%

Free T3 (fT3) 3.9 pmol/L (3.1 - 6.8) 21.6%

T4:T3 Ratio 4.026 

So TSH is too high ideally below 20% or 1mIU/L

fT4 needs to be 70%+

to give fT3 chance to be above 50%+

then you might feel a whole lot better 🤗

Really hand calculator if you get tests from various labs thyroid.chingkerrs.online/

Edit... sorry I was forgetting you aren't on any treatment are you 😵

You could perhaps look into a thyroid supplement, I've put my daughter onto Thyroid Pro by Insynergy Labs as she has a sluggish thyroid... yet to retest but she has seemed a whole lot perkier

There is also Metavive (bovine glandular) which might be worth a look?

[FoxyTed in reply to TiggerMe]

Hello Eeyore, your reply does give me hope that this could be thyroid (please see my reply to SlowDragon) and that I can be treated to feel myself again!

I have apt with good Endo next week.

I will take you’re treatment tips on board for sure if no joy there!

I have daily headaches (not stress) plus all the other joys, so need help asap🤞🤞

Thank you sooo much x

[TiggerMe Ambassador in reply to FoxyTed]

Headaches could also be low oestrogen... stick an extra half a patch on and see how you feel 🤗 low testosterone also make you feel pretty..... limp 🤣

Finding the right treatment for sex and thyroid hormones comes down to a bit of trial and error to fine tune 🙃

[FoxyTed in reply to TiggerMe]

Woman after my own heart Eeyore🤩

Yes I think it’s fluctuations in estrogen causing headaches, who’d be a woman🙄

I stuck on an extra 25 patch as I’m v sensitive. So that’s 100mcg.

My T levels came back high even though I’d reduced to every other day, the free available was ok free Androgen index 1.7 range 0.2-7.1

Free Testosterone 0.014 range 0.001-0.02

What’s the difference in free T and free androgen please??

BUT my SHBG was high, this was my reason to changing from tablet to patch so this might take a while to come down??

SHBG 146 range 27.1 -128

[TiggerMe Ambassador in reply to FoxyTed]

This explains it well... balance-menopause.com/menop...

Interestingly high SHBG is linked to Hyperthyroidism rather than Hypo as we tend to have lower SHBG... especially post meno

[FoxyTed in reply to TiggerMe]

Yeh I had read that re hyper. Thing is SHBG was actually 200 on 2mg oral estrogen and that’s why I changed SO I’m pleased it has reduced over this past 5 weeks. I think my hormones were bound up by this

[TiggerMe Ambassador in reply to FoxyTed]

Yes, that's exactly what it does, binds to the hormones and stops them being free which means the body can't access them... great that it is coming down. That is the drawback with oral HRT it interferes with the liver

[FoxyTed in reply to TiggerMe]

Tk u Eeyore for all your support and feedback, it’s much needed & appreciated x

[am111]

No need to stop B12. It is not toxic. Do not panic about high serum B12 in the blood.

As others have pointed out, I do believe that your problems are due to low T3 and T4, particularly T3. A small dose of levothyroxine (25-50mcg/day) might improve things. Good luck!

[FoxyTed in reply to am111]

Thank you am111,

No I’m not concerned about the B12. Will see next week when I bring my other results to specialist🤞

[Hedgeree]

Hi FoxyTed,

Do you have any test results for vitamin D levels? When you described having daily headaches that was one of the symptoms that I experienced daily when I had a vitamin D deficiency.

If you haven't had it tested recently I'd ask the GP first (if you have a helpful one!) If not I'd get one done privately.

I remember feeling unwell, tired and low mood, bad frontal headaches daily, bone pain mostly in my legs and weak arms which I couldn't lift above my head. Once I started supplementing I felt much better quite quickly.

Best wishes.

[FoxyTed in reply to Hedgeree]

Hi Hedgeree Tk you.

I did have Vit d tested it was 135 range 50 - 250, I think this is ok? I do take 3000 daily supp

[SlowDragon Administrator in reply to FoxyTed]

That’s good level vitamin D

Are you also supplementing magnesium

[FoxyTed in reply to SlowDragon]

Yes I take mag glycinate daily.

I’m wondering if it’s my estrogen needs sorting! Blimey it’s horrid

[SlowDragon Administrator in reply to FoxyTed]

Thyroid levels are low ….get ultrasound scan

TSH is not responding correctly to low Ft4 and especially to low Ft3

[FoxyTed in reply to SlowDragon]

Slowdragon AND all you wonderful people, I emailed Paul Robinson and he so kindly replied to my email, I sent him my cortisol and thyroid results,

He replied my T3 is VERY LOW and I am hypo.

THANKS THANKS and love to you all.

I will be in touch when I get some treatment sorted next week❤️

[radd in reply to FoxyTed]

FoxyTed,

Be aware thyroid hormone levels might increase as SHBG continues to reduce.

SHBG rises inline with oestrogen levels and can bind thyroid hormones as well as other sex hormones. Therefore, if this were me I would wait until oestrogen levels/SHBG has 'normalised' and then retest thyroid hormones (including FT3) several weeks after to achieve a truer reading.

[Brightness14]

Your TSH is too high. Your FT3 is much too low.

[FoxyTed]

hi brightness Tks for reply. I’m not on any T meds, so do you think also these aren’t right? I hope Endo specialist sorts something🤞

[Easylover]

Other Resourcesbrodabarnes.org/other_resou...

[Easylover in reply to Easylover]

Dear foxy I've been thinking about this and I was thinking maybe it's good you're going to the endo! They're not going to give you meds with your lab results. You don't want thyroid medicine anyway the real thyroid works better. Maybe it's something really simple that you haven't thought of and the doctor will find it there are some good doctors out there. I do think you should email Paul Robinson his website is for T3 just talk to your phone and say Paul Robinson thyroid email him about your cortisol it could actually just be that that's making you tired or making you cold. Give it a chance give it a try. And have you thought of taking kelp?

[FoxyTed in reply to Easylover]

Dear Easy,

Not sure I had replied to you, brainfog!!

Paul got back said cortisol readings indicating low T3.

I then emailed him my panel results and he wrote in caps T3 TOO LOW only at 21 percentile so likely hypo.

T3/T4 combo or just T3.

Thank you so much Easy

[Susieibbo301]

Foxyted I had the same test by the same people and I had a high B12 result. It was different with Medichecks as Active B12 and suggested I need more not less B12. Best of luck. @Susieibbo

[FoxyTed in reply to Susieibbo301]

Thanks Susie for reply x

[Easylover]

Foxy, get your T3 issues solved and all your other problems will go away! Make sure you divide the doses because according to Paul Robinson, Dr Antonio Bianco, and several others that if you don't the T3 turns into reverse T3 and you don't want that. Also T3 slowly becomes less as the day goes on in a normal human body. So you want to take your morning dose should probably be a little bit higher than your afternoon does and then you're late evening dose or afternoon should be even less than that. Of course Paul Robinson knows more than I. God bless you foxy. I am so happy I met you on this forum and there are many good administrators as well. Peace be with you. Easy

[helvella in reply to Easylover]

T3 does not turn into rT3.

Dosing schedules can be very individual.

[Easylover in reply to helvella]

Hi, it doesn't?

[helvella in reply to Easylover]

No, it doesn't.

rT3 is formed by de-iodination of T4 by Deiodinase 3 (Dio3 or D3).

ncbi.nlm.nih.gov/books/NBK2...

[Easylover in reply to helvella]

Hi you may know more than me. However, I understood it that it's the body's way of getting rid of any excess T3 and if there is reverse T3 then it makes it harder for the good T3 to enter the cells. This is according to many different sources, although you may be correct.

[helvella in reply to Easylover]

T4 is converted into either T3 or rT3. (Am trying not to over-complicate - there are other possibilities but these are the main ones that are discussed.)

It is speculated that converting to rT3 (which appears to have little if any function of its own) acts to allow the balance of T4 and T3 (both individually and with respect to each other) to be maintained.

If the only way of processing T4 was to convert it to T3, then a high T4 would inevitably result in high T3.

There is no end of repetition of the idea that rT3 blocks T3. This was always itself somewhat an assumption but seems to have been disproved in recent years.

Then both T3 and rT3 can be converted into T2. Which sets up a whole raft of other questions, I know.

[FoxyTed in reply to Easylover]

Appreciate your help Easy. If T3 or whatever helps me I’ll be on cloud 9.

Paul suggested T3 as you have or may need a little T4 and T3.

Now that’s the easy part…..Appointment😬😬

[Easylover in reply to FoxyTed]

Foxy this is for you but I have to copy and paste the Relevant information within the article separate. K.thyroidpatients.ca/2019/11/...

[Easylover]

thyroidpatients.ca/2019/11/...

[Easylover]

Your doctor doesn’t believe you are suffering because your Free T3 is in the “normal” range. It has not yet fallen below reference where it qualifies as a biochemical indicator of “Low T3 syndrome” or underdose.

[Easylover]

Your doctor doesn’t believe you are suffering because your Free T3 is in the “normal” range. It has not yet fallen below reference where it qualifies as a biochemical indicator of “Low T3 syndrome” or underdose.

[Easylover]

Your doctor doesn’t believe you are suffering because your Free T3 is in the “normal” range. It has not yet fallen below reference where it qualifies as a biochemical indicator of “Low T3 syndrome” or underdose.

[Easylover]

What a hassle