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Tips for coping with chronic pain etc
I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too. https://healthunlocked.com/oa-action/posts/146520364/living-with-arthritis
I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too. https://healthunlocked.com/oa-action/posts/146520364/living-with-arthritis
HeronNS
in
PMRGCAuk
3 years ago
Positive results on RA patients taking Vitamin K2 , whats your thoughts on this one?
Hi everyone I have been researching the benefits and side effects of Vitamin K2 MK-7 and how it can lower the calcification in the arteries then came across this interesting article about Rheumatoid Arthritis patients. Quote "The present study revealed that administration of MK-7 (100 µg/d) to RA patients
Hi everyone I have been researching the benefits and side effects of Vitamin K2 MK-7 and how it can lower the calcification in the arteries then came across this interesting article about Rheumatoid Arthritis patients. Quote "The present study revealed that administration of MK-7 (100 µg/d) to RA patients
Frankiefocus
in
NRAS
3 years ago
Sooo Frustrated!!!
I had a phone appt last week to discuss my going onto biologics as the only DMARD I can tolerate is up to 17.5 of MTX and I am in constant pain. I was diagnosed wth inflammatory arthritis in 2013 and have been on MTX ever since, with other DMARDs added then discarded. I had been told by my Rhuemy nurse
I had a phone appt last week to discuss my going onto biologics as the only DMARD I can tolerate is up to 17.5 of MTX and I am in constant pain. I was diagnosed wth inflammatory arthritis in 2013 and have been on MTX ever since, with other DMARDs added then discarded. I had been told by my Rhuemy nurse
Diamondpainting
in
NRAS
3 years ago
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Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
Open for recruitment: Manchester Digital Pain Manikin Study
Dr Sabine van der Veer, Chief Investigator is explaining "chronic pain and its measurement" and talking about a smartphone-based research opportunity that is open for all, who are suffering from fibromyalgia, osteoarthritis or rheumatoid arthritis. Learn about the study and express your interest at painmanikin
Dr Sabine van der Veer, Chief Investigator is explaining "chronic pain and its measurement" and talking about a smartphone-based research opportunity that is open for all, who are suffering from fibromyalgia, osteoarthritis or rheumatoid arthritis. Learn about the study and express your interest at painmanikin
MyDD
in
Pain Concern
3 years ago
Can anyone help with sleep advice and coming to terms with these conditions?
Hi recently diagnosed with fibamyelgia and osteoarthritis , I am feeling very overwhelmed and although everyone keeps telling me it's good news that we finally know I haven't taken it very well, im only 37 I don't want to live like this for the rest of my life! So my 2 questions are how can I get some
Hi recently diagnosed with fibamyelgia and osteoarthritis , I am feeling very overwhelmed and although everyone keeps telling me it's good news that we finally know I haven't taken it very well, im only 37 I don't want to live like this for the rest of my life! So my 2 questions are how can I get some
Cat1969
in
Fibromyalgia Action UK
3 years ago
Statins and Rituximab
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
-Mii
in
NRAS
3 years ago
Recommendations for the best London Hospital
Hey there, Can anyone recommend a London based Hospital with the best rheumatology department or a good specialist in Rheumatoid Arthritis? I’m not getting the right care or help with my current team and I’m going to change. My condition just keeps getting worse and I’m so worried and fed up. Any suggestions
Hey there, Can anyone recommend a London based Hospital with the best rheumatology department or a good specialist in Rheumatoid Arthritis? I’m not getting the right care or help with my current team and I’m going to change. My condition just keeps getting worse and I’m so worried and fed up. Any suggestions
Jellybean45
in
NRAS
3 years ago
Rheumatologist consultation since my original post
Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under “Diagnosis” she has written; ?Polymyaglia Rheumatica, ?Ploymyalgic Arthritis. So, apparently, the jury is still out! Under “Medication” she has put; 1. Prednisolone
Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under “Diagnosis” she has written; ?Polymyaglia Rheumatica, ?Ploymyalgic Arthritis. So, apparently, the jury is still out! Under “Medication” she has put; 1. Prednisolone
Flivoless
in
PMRGCAuk
3 years ago
Help to deal with osteoarthritis.
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers This’s affecting my daily
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers This’s affecting my daily
TM_Mansaray
in
Arthritis Action
3 years ago
Back pain
Hi everyone I’ve finally seen my RA consultant, first time since 2019, my recent spine X-ray done last December due to severe lower back pain has shown osteoarthritis, I’ve also had a scan for osteoporosis which I apparently have as well. The consultant has recommended amitriptilene for pain relief
Hi everyone I’ve finally seen my RA consultant, first time since 2019, my recent spine X-ray done last December due to severe lower back pain has shown osteoarthritis, I’ve also had a scan for osteoporosis which I apparently have as well. The consultant has recommended amitriptilene for pain relief
Freddiefan
in
NRAS
3 years ago
Apixaban and joint pain...
Hi all, I'm looking for advice from anyone who has changed from Warfarin to Apixaban. Exactly a year ago this month I asked my GP to make the change which he duly did but I think I'm starting to regret it now, only because in that year, my health in other areas appears to be going awol! Namely that
Hi all, I'm looking for advice from anyone who has changed from Warfarin to Apixaban. Exactly a year ago this month I asked my GP to make the change which he duly did but I think I'm starting to regret it now, only because in that year, my health in other areas appears to be going awol! Namely that
Chris1945
in
AF Association
3 years ago
OSTEOARTHRITIS OF THE HANDS
HELLO EVERYBODY ALMOST THREE MONTHS AGO I WAS DIAGNOSED OSTEOARTHRITIS IN MY HANDS 2 INFLAMMATORY OSTEOARTHRITIS 3 CERVICAL SPONDYLOPATHY AND THE RHEUMATOLOGIST HAS PRESCRIBED ME. HYDROXYCHLOROQUINE 200 MG. WHAT CAN YOU TELL ME ABOUT THIS MEDICATION AS IT IS CAUSING ME WITH CONSTIPATION AND A LOT OF
HELLO EVERYBODY ALMOST THREE MONTHS AGO I WAS DIAGNOSED OSTEOARTHRITIS IN MY HANDS 2 INFLAMMATORY OSTEOARTHRITIS 3 CERVICAL SPONDYLOPATHY AND THE RHEUMATOLOGIST HAS PRESCRIBED ME. HYDROXYCHLOROQUINE 200 MG. WHAT CAN YOU TELL ME ABOUT THIS MEDICATION AS IT IS CAUSING ME WITH CONSTIPATION AND A LOT OF
Abdellah
in
Arthritis Action
3 years ago
Is this the right help site for me.
I have been diagnosed with Inflammatory arthritis.
I have been diagnosed with Inflammatory arthritis.
Manderlina
in
NRAS
3 years ago
Lifting of Restrictions & Impact on the Immunocompromised
After yesterday's announcement to lift restrictions on 19 July, here are some interesting tweets from Blood Cancer UK, reflecting concerns of those who are immunocompromised. As someone with Rheumatoid Arthritis, it completely resonates with me! Just wondering how others are feeling. https://twitter.com
After yesterday's announcement to lift restrictions on 19 July, here are some interesting tweets from Blood Cancer UK, reflecting concerns of those who are immunocompromised. As someone with Rheumatoid Arthritis, it completely resonates with me! Just wondering how others are feeling. https://twitter.com
AKA13
in
NRAS
3 years ago
Tocilizumab treatment extension, and latest PET-CT scan results
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Suzita76
in
PMRGCAuk
3 years ago
PMR question
I find this so weird. Today For the first time I took a Tylenol for Arthritis and no prednisone and the pain that was from sternocleidomastoid was gone as was any other pains and aches frm my body, now I am only at .25 mg of prednisone so it’s not a lot....but has anyone experienced anything like this
I find this so weird. Today For the first time I took a Tylenol for Arthritis and no prednisone and the pain that was from sternocleidomastoid was gone as was any other pains and aches frm my body, now I am only at .25 mg of prednisone so it’s not a lot....but has anyone experienced anything like this
Truckfoot
in
PMRGCAuk
3 years ago
Calling UK tocilizumab or epipen users: How do you dispose of your self-injector? Who arranges it?
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
Ankle arthritis pain before Total knee replacement
Hi, I am having a total knee replacement in a few weeks after an 18 month wait due to Covid. I’ve had 2 steroid injections in it, the most recent one being 5 weeks ago. This made my knee feel much better although bone-on-bone on one side so walking bow-legged, I could get around that much better. However
Hi, I am having a total knee replacement in a few weeks after an 18 month wait due to Covid. I’ve had 2 steroid injections in it, the most recent one being 5 weeks ago. This made my knee feel much better although bone-on-bone on one side so walking bow-legged, I could get around that much better. However
LizP2003
in
Arthritis Action
3 years ago
More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
SARose
in
PMRGCAuk
3 years ago
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