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Takayasu arteritis
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Mtx - does it even work?
I see a LOT of awful side effects - like nausea. It seems to take 3 months to work, but with a fulckationg disease that mut be difficult to evaluate... UPdate: Thank you all - I fell reassured now and much more positive. I actually now hope to be diagnosed with RA so that I can start medication. Appointment
I see a LOT of awful side effects - like nausea. It seems to take 3 months to work, but with a fulckationg disease that mut be difficult to evaluate... UPdate: Thank you all - I fell reassured now and much more positive. I actually now hope to be diagnosed with RA so that I can start medication. Appointment
krillemy
in
NRAS
3 years ago
Sodium / potassium
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Ballywilliam
in
PMRGCAuk
3 years ago
Do Corticosteroids Make You Immunosuppressed ?
I thought this article was very interesting and might help some on the forum. https://creakyjoints.org/living-with-arthritis/coronavirus/treatments/prednisone-steroids-immunosuppressing-coronavirus/
I thought this article was very interesting and might help some on the forum. https://creakyjoints.org/living-with-arthritis/coronavirus/treatments/prednisone-steroids-immunosuppressing-coronavirus/
kulina
in
PMRGCAuk
3 years ago
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Update
Hello All It has been some time since I posted but just felt like giving an update. My last posts were about suffering from TMJ. I do believe after six months it has got somewhat better. I have arthritis in my jaw and also had a wisdom tooth taken out. Yesterday I went to see a new Rhemy to get some
Hello All It has been some time since I posted but just felt like giving an update. My last posts were about suffering from TMJ. I do believe after six months it has got somewhat better. I have arthritis in my jaw and also had a wisdom tooth taken out. Yesterday I went to see a new Rhemy to get some
Robinsnest72
in
PMRGCAuk
3 years ago
Tocilizumab treatment?
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
Ozark
in
PMRGCAuk
3 years ago
Does having a blood RA of 24 mean I have rheumatoid arthritis?
I’m 40 years old with an under active thyroid on tirosint. Recently diagnosed with osteoporosis of the lumber spine and no one can figure out why. Possibly due to steroid for a back injury. I’ve been having all kinds of physical problems, rashes, joint pain, fatigue and worst of all breathing issues
I’m 40 years old with an under active thyroid on tirosint. Recently diagnosed with osteoporosis of the lumber spine and no one can figure out why. Possibly due to steroid for a back injury. I’ve been having all kinds of physical problems, rashes, joint pain, fatigue and worst of all breathing issues
Bobbobby
in
NRAS
3 years ago
Weather in the south
Hi All anyone living in the south of England find their arthritis. Pre manageable if the weather is better? I have thought about moving /living abroad in the winter too..
Hi All anyone living in the south of England find their arthritis. Pre manageable if the weather is better? I have thought about moving /living abroad in the winter too..
Yasmee
in
Arthritis Action
3 years ago
Rheumatoid arthritis metatarsalgia.
Hello. I was diagnosed with metatarsalgia in my right foot. Anyone of you good people has this issue too? I would appreciate your thoughts. Thanks
Hello. I was diagnosed with metatarsalgia in my right foot. Anyone of you good people has this issue too? I would appreciate your thoughts. Thanks
ks1966
in
NRAS
3 years ago
Help and thoughts please!
Hi,I’m new to this site! I have scleroderma, PBC, Sjögrens and hypothyroidism and fairly bad osteoarthritis. The scleroderma has left me particularly unwell. For the past 2 months I have had a positive rheumatoid factor in my blood work, and am waiting for the results of my anti ccp antibody test. I
Hi,I’m new to this site! I have scleroderma, PBC, Sjögrens and hypothyroidism and fairly bad osteoarthritis. The scleroderma has left me particularly unwell. For the past 2 months I have had a positive rheumatoid factor in my blood work, and am waiting for the results of my anti ccp antibody test. I
MissusTee
in
NRAS
3 years ago
Roactemra Tocilizumab - lab out of stock - advice needed please.
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Frenchduck
in
PMRGCAuk
3 years ago
Advice please re blood results
I have been feeling unwell for years ( fatigued depressed overeating very bad brain fog on top of my Arthritis pains my usual sleep issues ) so decided to stop all the vitamins etc and have bloods checked . I stopped everything including self medicated T3(1/4 of 25ug tablet ) . Previous bloods were
I have been feeling unwell for years ( fatigued depressed overeating very bad brain fog on top of my Arthritis pains my usual sleep issues ) so decided to stop all the vitamins etc and have bloods checked . I stopped everything including self medicated T3(1/4 of 25ug tablet ) . Previous bloods were
Middleagedandtired
in
Thyroid UK
3 years ago
Happy International Friendship Day!
We wanted to wish everyone in the Health Unlocked community a happy International Friendship Day today! We're very grateful to everyone involved in keeping this space so supportive and informative. There are over 10 million people living with some form of arthritis in the UK, making it the leading cause
We wanted to wish everyone in the Health Unlocked community a happy International Friendship Day today! We're very grateful to everyone involved in keeping this space so supportive and informative. There are over 10 million people living with some form of arthritis in the UK, making it the leading cause
arthritis_action
Partner
in
Arthritis Action
3 years ago
VERSUS/ARTHRITIS/AND/FIBRO
Hi all i have just read an email from versus Arthritis i am a member of and have been following there funded studie into fibromyalgia and its antibodies that cause the increased pain muscle weakness readuced movement.not the mind like all the doctors say to you .its all in your mind mate. when you have
Hi all i have just read an email from versus Arthritis i am a member of and have been following there funded studie into fibromyalgia and its antibodies that cause the increased pain muscle weakness readuced movement.not the mind like all the doctors say to you .its all in your mind mate. when you have
antbeech1963
in
Fibromyalgia Action UK
3 years ago
Hip replacement
Anyone had hip replaced? I had a class and and pre op for hip surgery M too scared and worried
Anyone had hip replaced? I had a class and and pre op for hip surgery M too scared and worried
Mystik
in
Arthritis Action
3 years ago
Confused
So had my appt with Rheumatologist and even though my RA factor and ANA test was positive and my joint pain is in both sides he says seeing I don’t have inflammation I don’t have rheumatoid arthritis
So had my appt with Rheumatologist and even though my RA factor and ANA test was positive and my joint pain is in both sides he says seeing I don’t have inflammation I don’t have rheumatoid arthritis
Hurting2012
in
NRAS
3 years ago
Petition to Reduce PIP stress for Rheumatoid Arthritis sufferers
I’m not sure if it’s ok to post petitions so I apologise in advance if it’s not, but I do think it’s a good cause. The petition is calling for people with Rheumatoid Arthritis to be treated equally to people who have a terminal illness when applying for PIP in order to relieve the stress of the application
I’m not sure if it’s ok to post petitions so I apologise in advance if it’s not, but I do think it’s a good cause. The petition is calling for people with Rheumatoid Arthritis to be treated equally to people who have a terminal illness when applying for PIP in order to relieve the stress of the application
MissMinto
in
NRAS
3 years ago
knee pain
I have yet another question. I am not on prednisone at the moment and do not have any pain to speak of in the areas where it all started - shoulders, pelvic girdle, thighs, but do have a nagging discomfort in my knees and wrists. My neck sometimes too, but I know I have osteoarthritis in my neck. My
I have yet another question. I am not on prednisone at the moment and do not have any pain to speak of in the areas where it all started - shoulders, pelvic girdle, thighs, but do have a nagging discomfort in my knees and wrists. My neck sometimes too, but I know I have osteoarthritis in my neck. My
SandyBoots
in
PMRGCAuk
3 years ago
Research Opportunity
Jennifer Todd is carrying out research into fibromyalgia and body awareness. The study is partnered with Versus Arthritis and joining instructions can be found below. 👉 http://ow.ly/au3v50FBked For anyone with any questions, please email jennifer.todd@aru.ac.uk
Jennifer Todd is carrying out research into fibromyalgia and body awareness. The study is partnered with Versus Arthritis and joining instructions can be found below. 👉 http://ow.ly/au3v50FBked For anyone with any questions, please email jennifer.todd@aru.ac.uk
FMA_Reece
Administrator
in
Fibromyalgia Action UK
3 years ago
Stopping meds with COVID 19
Has anyone stopped their meds while they have COVID 19 ? Have just tested positive for COVID 19 having been ‘pinged’ by the app and taking a pcr test. No symptoms so far. My RA is generally very well controlled by 12.5mg of mtx plus sulfasalazine but I am seriously wondering whether to stop the mtx for
Has anyone stopped their meds while they have COVID 19 ? Have just tested positive for COVID 19 having been ‘pinged’ by the app and taking a pcr test. No symptoms so far. My RA is generally very well controlled by 12.5mg of mtx plus sulfasalazine but I am seriously wondering whether to stop the mtx for
Bookworm55
in
NRAS
3 years ago
Firstly why do my legs feel like jelly, (now on 11mg) and secondly what is the threshold for referral to a rheumatologist?
I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg haven’t succeeded. I walk my dog daily for about 1 hour so I don’t understand why my legs feel so weak. I am in a constant battle with tiredness but I don’
I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg haven’t succeeded. I walk my dog daily for about 1 hour so I don’t understand why my legs feel so weak. I am in a constant battle with tiredness but I don’
AnniesRyder5
in
PMRGCAuk
3 years ago
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