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Upcoming hospital appointment
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have dizziness and body veer to the left when walking. I was also struggling with being in a room where multiple conversations were happening, as I couldn't
EssEmBee
in
Acoustic Neuroma Support
3 months ago
New GCA treatment
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
DogAgilityObsessed
in
PMRGCAuk
8 months ago
Covid vaccine
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as live with someone who is clinically extremely vulnerable.
Main1234
in
Vasculitis UK
3 months ago
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PMR and covid vaccination
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR, mainly about PMR onset after a vaccination. Does anyone know if there’s any evidence between a seasonal vaccination and worsening of PMR symptoms
Freshairfiend
in
PMRGCAuk
3 months ago
Satisfactory Rheumatology Appointment
Some of you will know that for the past 6mths I've been experiencing a few issues regarding the re-emergence of some symptoms, that seem to have resulted in some discord between myself and the rheumatology clinicians! My regular rheumatologist referred me to her colleague, who unfortunately was extremely
Some of you will know that for the past 6mths I've been experiencing a few issues regarding the re-emergence of some symptoms, that seem to have resulted in some discord between myself and the rheumatology clinicians! My regular rheumatologist referred me to her colleague, who unfortunately was extremely
Kendrew
in
PMRGCAuk
9 months ago
do I need the spring Covid shot?
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
Claybuster
in
CLL Support
3 months ago
Awful repeated behaviours of hospital staff
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two of which were caught within the hospital, the third from my husbands Carer. Although there are doctors at this hospital who have saved my life
HilsK
in
Restless Legs Syndrome
3 months ago
covid shot
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
hello , I just had another Covid shot, and each time I have had a large swollen lymph node I Under the arm where I had the injection, but this time I have two swollen under the arm and one just above the collar bone. Also a bit of a rash on that left arm. I’m trying warm wet compress to help . Anyone
Grandmajoanie
in
CLL Support
3 months ago
my dental pain
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
peterfromlondon
in
Pain Concern
3 months ago
GCA Eyesight Anxiety
Hello, I am feeling quite anxious now, because my long-distance sight seems worse today. I am definitely seeing double (at a distance) and cannot focus (distance only.) Up close is clear. (I do have myopia, and have never had any problem with close work, unlike most people my age, which is 65.) I was
Hello, I am feeling quite anxious now, because my long-distance sight seems worse today. I am definitely seeing double (at a distance) and cannot focus (distance only.) Up close is clear. (I do have myopia, and have never had any problem with close work, unlike most people my age, which is 65.) I was
Lenore58
in
PMRGCAuk
9 months ago
Our Heartfelt thanks!
‼ The lesion featured in this post may look like eczema or benign skin lesion, but it is in fact a melanoma! In rarer cases, all types of melanoma can lack pigmentation – these are known as amelanotic melanoma. Jane’s story below highlights just how important it is to get any abnormalities checked out
‼ The lesion featured in this post may look like eczema or benign skin lesion, but it is in fact a melanoma! In rarer cases, all types of melanoma can lack pigmentation – these are known as amelanotic melanoma. Jane’s story below highlights just how important it is to get any abnormalities checked out
SkcinHQ
Partner
in
Skin Cancer UK
5 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
7 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
6 months ago
Periodontal Abscess while on Prednisone
Hello to the group. I have just developed an abscess on the gum of a tooth that had a root canal and crown done 2 years ago. I saw a different person in my dentist’s practice today who confirmed the abscess and said I should go back asap to the endodontist who did the original root canal for either
Hello to the group. I have just developed an abscess on the gum of a tooth that had a root canal and crown done 2 years ago. I saw a different person in my dentist’s practice today who confirmed the abscess and said I should go back asap to the endodontist who did the original root canal for either
Donna5658
in
PMRGCAuk
6 months ago
Covid Booster and Methotrexate
I had my Moderna covid booster jab yesterday, I should have my methotrexate injection today but I have been advised by Nurse Specialist not to have methotrexate for 2 weeks after a covid booster!!Advice please is the above advice correct..
I had my Moderna covid booster jab yesterday, I should have my methotrexate injection today but I have been advised by Nurse Specialist not to have methotrexate for 2 weeks after a covid booster!!Advice please is the above advice correct..
agnesmay
in
Arthritis Action
3 months ago
Covid 19
bonsoir lovelies Oh dear… In the last week I have had two separate invites from two sources.. Book in for your Covid 19 spring booster 🤦♀️ never had one in the first place👀👀clown world🤡Hard to believe isn’t it
bonsoir lovelies Oh dear… In the last week I have had two separate invites from two sources.. Book in for your Covid 19 spring booster 🤦♀️ never had one in the first place👀👀clown world🤡Hard to believe isn’t it
adenough
in
Lung Conditions Community Forum
3 months ago
Measles risk
Hi all, Just watched the news and they said they were worried about a measles outbreak. Thanks to low vaccination rates. As a commuter, what should I think/do? best, Nix
Hi all, Just watched the news and they said they were worried about a measles outbreak. Thanks to low vaccination rates. As a commuter, what should I think/do? best, Nix
BellaBee10
in
CLL Support
6 months ago
Urodynamics test or not?
Hi. Just a brief background. I am on the waiting list for pelvic organ prolapse. I have incontinence issues and I was prescribed Solifenacin by the hospital consultant which worked for about a month then stopped. Because of this the doctor has delayed me signing the consent forms for my surgery and
Hi. Just a brief background. I am on the waiting list for pelvic organ prolapse. I have incontinence issues and I was prescribed Solifenacin by the hospital consultant which worked for about a month then stopped. Because of this the doctor has delayed me signing the consent forms for my surgery and
Mummybear0213
in
Pelvic Pain Support Network
6 months ago
cramp like pain at night from left buttock right down leg
I posted a similar issue not so long ago as a sort of 3am phenomenon. Lately it has got worse and I thought maybe I was tapering pred too quickly ( down to 6/7 mg.) So have taken 10 mg for 2 days and am ok in the day but am now up at5.30 am having experienced first quite severe cramp in my lower left
I posted a similar issue not so long ago as a sort of 3am phenomenon. Lately it has got worse and I thought maybe I was tapering pred too quickly ( down to 6/7 mg.) So have taken 10 mg for 2 days and am ok in the day but am now up at5.30 am having experienced first quite severe cramp in my lower left
Stargiver
in
PMRGCAuk
9 months ago
To circumcise or not to circumcise
Hi I'm 45, fit, not smoking, very little alcohol, regular exercise. Few years ago I was diagnosed with lichen sclerosis by a leading UK expert in genital dermatology prof Bunker. I didn't have any severe symptoms just some small red spots but no pain etc. at least not visible to me but he was confident
Hi I'm 45, fit, not smoking, very little alcohol, regular exercise. Few years ago I was diagnosed with lichen sclerosis by a leading UK expert in genital dermatology prof Bunker. I didn't have any severe symptoms just some small red spots but no pain etc. at least not visible to me but he was confident
mikeABC
in
Men's Health Forum (Penis Health)
5 months ago
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