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Stem cell and bone marrow transplants
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Covid vaccine & PMR
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Daisy1624
in
PMRGCAuk
3 years ago
Peripheral Neuropathy in feet
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Weimarador
in
Kidney Transplant Patient Support
4 years ago
Hospital Service Experience for Bilirary Atresia, Leed, Uk
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Dominic1975
in
Children's Liver Disease Foundation
4 years ago
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VO2max vs cardio fitness
I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This
I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This
Andyv1
in
Bridge to 10K
4 years ago
Transurethral Urinary Bladder Resection #2...coming up!
Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type
Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type
Sharp5Flat13
in
Lung Conditions Community Forum
4 years ago
Help , feeling really anxious and worried
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hidden
in
ICUsteps
4 years ago
Help for after Meningitis
Hello friends! I wish all of you a healthy 2021! My name is Fredy, I was born in Peru, but for problems in my country I moved to the USA, now I live in New York. In 2012 I got meningitis, 2 weeks in comma, when I woke up from coma, my brain was gone, after that took me like 4 years to understand something
Hello friends! I wish all of you a healthy 2021! My name is Fredy, I was born in Peru, but for problems in my country I moved to the USA, now I live in New York. In 2012 I got meningitis, 2 weeks in comma, when I woke up from coma, my brain was gone, after that took me like 4 years to understand something
menin
in
Meningitis Now
4 years ago
Valentine's Day!
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Spinal Fusion identified while on Lung Transplant List
Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has
Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has
Joseph260268
in
Lung Conditions Community Forum
4 years ago
Kidney Transplant process
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will
brynat2
in
Kidney Disease
4 years ago
Study indicates COVID-19 vaccines are safe for organ transplant patients.
In what may be the first study of its kind, Johns Hopkins Medicine researchers have documented the reaction of nearly 200 solid organ transplant recipients to their first vaccine inoculation against SARS-CoV-2, the virus that causes COVID-19. The findings, they say, provide evidence that both the Moderna
In what may be the first study of its kind, Johns Hopkins Medicine researchers have documented the reaction of nearly 200 solid organ transplant recipients to their first vaccine inoculation against SARS-CoV-2, the virus that causes COVID-19. The findings, they say, provide evidence that both the Moderna
2greys
in
Lung Conditions Community Forum
4 years ago
COVID Stats...
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Vaccine, kidney transplant receiver and immunosuppresants
Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you
Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you
magSLE
in
Kidney Transplant
4 years ago
Stem Cell Transplantation at Mass General
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
jimcaster
in
Cure Parkinson's
4 years ago
Only water fasting after renal transplantation. How long is safe?
Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx
Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx
SLP2005
in
Kidney Transplant Patient Support
4 years ago
Life after transplant
Anyone considering a
stem
cell
transplant
, there really are positive experiences out there.
Anyone considering a
stem
cell
transplant
, there really are positive experiences out there.
KAS8
in
CLL Support
4 years ago
Denied for being underweight ?
Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!
Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!
Megan024
in
Kidney Transplant
4 years ago
Liver transplant ambivalence
I took my brother to his hepatology appt this morning (he has hepatopulmonary syndrome as a result of his liver disease). The registrar was great and gave us an overview of all the LT considerations and my brother stared at the floor quite disinterested-he won’t read up on it and would rather not know
I took my brother to his hepatology appt this morning (he has hepatopulmonary syndrome as a result of his liver disease). The registrar was great and gave us an overview of all the LT considerations and my brother stared at the floor quite disinterested-he won’t read up on it and would rather not know
Hidden
in
British Liver Trust
4 years ago
Liver transplant with amputations
Hi all I’m new here but wondered if anyone has had a liver transplant that had complications and ended up with partial amputations?? Thanks Liz x
Hi all I’m new here but wondered if anyone has had a liver transplant that had complications and ended up with partial amputations?? Thanks Liz x
Miraclesandhope
in
British Liver Trust
4 years ago
Kidney Transplant and Covid Prison
I was actually feeling more like my true self and confident that I was recovering nicely from the transplant surgery, then the covid hit and I have been a prisoner in my own house. The only social activity I have is going for labs and doctor appointments. I miss all the things I used to do: going
I was actually feeling more like my true self and confident that I was recovering nicely from the transplant surgery, then the covid hit and I have been a prisoner in my own house. The only social activity I have is going for labs and doctor appointments. I miss all the things I used to do: going
Ynnep
in
Kidney Transplant
4 years ago
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