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Stem cell and bone marrow transplants
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Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
4 years ago
Gene SRSF2
He has made a referral for
Stem
Cell
Transplant
. Is there anyone out there experiencing any of these genes as I believe it maybe a devastating outcome for me.
He has made a referral for
Stem
Cell
Transplant
. Is there anyone out there experiencing any of these genes as I believe it maybe a devastating outcome for me.
ktaylor5563
in
MPN Voice
4 years ago
Netflix - “The Surgeons Cut”
Anyone who has Netflix may have seen this American documentary entitled, “The Surgeons Cut”. Those who are interested in this type of thing, maybe interested in episode 3 of the series. Called, “Living Donor”. Dr Nancy Ascher has devoted her career to organ transplants and transplant research. The first
Anyone who has Netflix may have seen this American documentary entitled, “The Surgeons Cut”. Those who are interested in this type of thing, maybe interested in episode 3 of the series. Called, “Living Donor”. Dr Nancy Ascher has devoted her career to organ transplants and transplant research. The first
Richard-Allen
in
British Liver Trust
3 years ago
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The road ahead
My oncologist called me yesterday and said they had found a donor match for a
stem
cell
transplant
and did I want to proceed? So a little of my story, I have been on IBRUTINUB for two years and am currently feel great as my lymphocyte count is 16.5 and neutrophils at 3.8.
My oncologist called me yesterday and said they had found a donor match for a
stem
cell
transplant
and did I want to proceed? So a little of my story, I have been on IBRUTINUB for two years and am currently feel great as my lymphocyte count is 16.5 and neutrophils at 3.8.
steve_canada
in
CLL Support
4 years ago
No Antibody response first dose for Autoimmune R A patients
Very anxious now regarding the vaccine they gave said there is no evidence that Ra patients will have some or any antibody response to the vaccine , had Pfizer 7 wks ago and my instincts told me to be worried about leaving the second for 12 weeks for CEV people immunsurpressed auto immune kidney transplant
Very anxious now regarding the vaccine they gave said there is no evidence that Ra patients will have some or any antibody response to the vaccine , had Pfizer 7 wks ago and my instincts told me to be worried about leaving the second for 12 weeks for CEV people immunsurpressed auto immune kidney transplant
trace58
in
NRAS
3 years ago
Bubbles or foam in urine.
Hi, I hope everyone is doing well. I had my kidney transplant about 5 months ago. My urine has always foam or bubbles (I'm not sure) in there. There is also no protein in my urine. My doctor's told me the only way there will be foam in my urine is when there is protein in it. They too find it unusually
Hi, I hope everyone is doing well. I had my kidney transplant about 5 months ago. My urine has always foam or bubbles (I'm not sure) in there. There is also no protein in my urine. My doctor's told me the only way there will be foam in my urine is when there is protein in it. They too find it unusually
K___B
in
Kidney Disease
3 years ago
TRAVELLING ABROAD, POST LIVER TRANSPLANT.
Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to
Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to
Hidden
in
British Liver Trust
3 years ago
After 2nd Vaccine Antibodies
As a kidney transplant In the USA, whose responsibility is it to test me to find out if my body has made antibodies after the second covid vaccine? Also, how long do I have to wait to be tested for antibodies?
As a kidney transplant In the USA, whose responsibility is it to test me to find out if my body has made antibodies after the second covid vaccine? Also, how long do I have to wait to be tested for antibodies?
Hidden
in
Kidney Transplant
3 years ago
Spinal Fusion-break Identified while being on the Lung Transplant List.
Good evening all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed right at the start of my evaluation that I had the start of osteoporosis which they put down to years of taking prednisolone. Even though I had this they were still happy to list me. I have recently
Good evening all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed right at the start of my evaluation that I had the start of osteoporosis which they put down to years of taking prednisolone. Even though I had this they were still happy to list me. I have recently
Joseph260268
in
Lung Conditions Community Forum
3 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
4 years ago
coping with anxiety and depression due to a child needing a kidney transplant
Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not to mention anxiety and depression? Our 12 year old needs a kidney and my husband is not a match. I am a blood type match however, I have scar tissue on my kidneys from many many infections and I am over
Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not to mention anxiety and depression? Our 12 year old needs a kidney and my husband is not a match. I am a blood type match however, I have scar tissue on my kidneys from many many infections and I am over
Crissylately
in
Parents of Children with Kidney Disease
3 years ago
Thriving with Congestive Heart Failure and a Left Ventricular Assist Device as I await a Heart Transplant.
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hidden
in
British Heart Foundation
3 years ago
Ongoing liver assessment stress
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Corrine1
in
British Liver Trust
3 years ago
Update to ? Tocilizumab
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
Hiland
in
PMRGCAuk
3 years ago
METAVIVE experience and why I stopped. (a long post sorry!!) Please read and tell me what you think...
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
Starsw
in
Thyroid UK
3 years ago
Kidney failure stage 4 and am worried?
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
MAK88
in
Kidney Disease
3 years ago
COVID vaccines and the immune system
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
Richard-Allen
in
British Liver Trust
3 years ago
British Society for Immunology statement on COVID-19 vaccines for patients who are immunocompromised or immunosuppressed
For people currently undergoing whole organ or
stem
cell
transplant
and who may be severely immunocompromised, you should talk to your medical treatment team about the most suitable time to get your COVID-19 vaccination.
For people currently undergoing whole organ or
stem
cell
transplant
and who may be severely immunocompromised, you should talk to your medical treatment team about the most suitable time to get your COVID-19 vaccination.
crashdoll
in
NRAS
4 years ago
Lupus life insurance is it possible!
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Wolf_1
in
LUPUS UK
4 years ago
Journey update: LVV/GCA, tocilizumab and exercise
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
DeepThought2
in
PMRGCAuk
3 years ago
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