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Stem cell and bone marrow transplants
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Vaccine
Hello I don't post much on here I've had my call for the vaccine tomorrow bit of a shock as I didn't expect it so soon I'm 66 had a liver transplant 4 years this April other wise in good health I still work as a tree surgeon I did phone my transplant centre but couldn't speak to anyone probably too busy
Hello I don't post much on here I've had my call for the vaccine tomorrow bit of a shock as I didn't expect it so soon I'm 66 had a liver transplant 4 years this April other wise in good health I still work as a tree surgeon I did phone my transplant centre but couldn't speak to anyone probably too busy
Treeclimber62
in
British Liver Trust
4 years ago
Is this real?
There are so many things racing in my head right now I don’t know where to start. I realize that I can no longer go on living with my existing condition. My father recently passed away in October. He was a liver transplant (2) survivor. He’s in a better place. I spent thanksgiving with my mother, along
There are so many things racing in my head right now I don’t know where to start. I realize that I can no longer go on living with my existing condition. My father recently passed away in October. He was a liver transplant (2) survivor. He’s in a better place. I spent thanksgiving with my mother, along
Benny_Brady
in
CHADD's Adult ADHD Support
4 years ago
Vaccines for kidney transplant patients
Has anyone with a kidney transplant had the vaccine yet?
Has anyone with a kidney transplant had the vaccine yet?
JEanes55
in
Kidney Transplant
4 years ago
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How Can I Cure Leg Wasting ?
Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced
Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced
WarriorChild_
in
Sickle Cell Society
4 years ago
The world's first successful artificial cornea transplant restored the vision of a man who had been blind for 10 years
https://www.businessinsider.com/world-first-artificial-corneal-transplant-78-year-old-has-recovered-sight-israel?amp&utmSource=twitter&utmContent=referral&utmTerm=topbar&referrer=twitter&__twitter_impression=true
https://www.businessinsider.com/world-first-artificial-corneal-transplant-78-year-old-has-recovered-sight-israel?amp&utmSource=twitter&utmContent=referral&utmTerm=topbar&referrer=twitter&__twitter_impression=true
Farooqji
in
Cure Parkinson's
4 years ago
MDS and AML
cell
transplant
in february.
cell
transplant
in february.
sportydad
in
Leukaemia Support
4 years ago
COVID 19 POSITIVE
I am a kidney transplant patient and I have tested positive for COVID-19. I am sick for more than a week with fever, headache and body pain. At night I get high fever and body pain. They told me to keep checking my oxygen and if its low then go hospital. I was told to quarantine for 20 days as I
I am a kidney transplant patient and I have tested positive for COVID-19. I am sick for more than a week with fever, headache and body pain. At night I get high fever and body pain. They told me to keep checking my oxygen and if its low then go hospital. I was told to quarantine for 20 days as I
Tahmed251
in
Kidney Transplant
4 years ago
Finding Support
Hello everyone~ I'm new in the Raleigh, NC area and looking for someone to take the journey with me through the kidney transplant process. I don't know where I can go to reach out to find folks who can volunteer to go down this path. I cannot begin the transplant program without having a supportive partner
Hello everyone~ I'm new in the Raleigh, NC area and looking for someone to take the journey with me through the kidney transplant process. I don't know where I can go to reach out to find folks who can volunteer to go down this path. I cannot begin the transplant program without having a supportive partner
WhQQpie
in
Kidney Transplant
4 years ago
Is there a difference between Collapsing Glomerulopathy and C3?
My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases of it happening in pediatric patients and my son is the youngest she knows of to ever have it. She explained to me that it usually happens either
My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases of it happening in pediatric patients and my son is the youngest she knows of to ever have it. She explained to me that it usually happens either
Shieldmaiden
in
C3 Glomerulopathy
4 years ago
Tocilizumab extension
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Devoid
in
PMRGCAuk
4 years ago
Some interesting news
https://sclerodermanews.com/2020/10/15/
stem
-
cell
-
transplant
-quality-of-life-scleroderma-patients-study/?utm_source=Scleroderma&utm_campaign=2d6b76b118-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_8741067e1d-2d6b76b118-73460397
https://sclerodermanews.com/2020/10/15/
stem
-
cell
-
transplant
-quality-of-life-scleroderma-patients-study/?utm_source=Scleroderma&utm_campaign=2d6b76b118-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_8741067e1d-2d6b76b118-73460397
amc282
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
17 Year old with unknown kidney disease given transplant in June now has Collapsing Glomerulopathy
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Shieldmaiden
in
C3 Glomerulopathy
4 years ago
An interesting letter to the editor: Stem Cell Transplantation for Parkinson Disease: Déjà Vu All Over Again? ?
https://academic.oup.com/neurosurgery/advance-article/doi/10.1093/neuros/nyaa487/6027128
https://academic.oup.com/neurosurgery/advance-article/doi/10.1093/neuros/nyaa487/6027128
Farooqji
in
Cure Parkinson's
4 years ago
Creatine is 1.51 really worried had transplant in 2001 its been 20 years
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
jennifer24
in
Kidney Transplant
4 years ago
Sleeping kidney after transplant
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Kwatts87
in
Kidney Transplant
4 years ago
Covid vaccine post liver transplant
Hello, newbie here. Could Iask if anybody that is post transplant has had a conversation with their consultant and or transplant coordinators re the Covid vaccine and what their opinions and views were? Many thanks, Martha.
Hello, newbie here. Could Iask if anybody that is post transplant has had a conversation with their consultant and or transplant coordinators re the Covid vaccine and what their opinions and views were? Many thanks, Martha.
MarthaRock
in
British Liver Trust
4 years ago
Kidney Transplant Recipient
Hi my name is Rachel I had a kidney transplant in December 2019
Hi my name is Rachel I had a kidney transplant in December 2019
Beachvibe
in
Kidney Disease
4 years ago
Needing a little short-term assistance while recovering
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
Southernfriends
in
Kidney Transplant
4 years ago
Nervous
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Suet3942
in
PMRGCAuk
4 years ago
Liver Transplant
A question, and I know that everyone is different. How long does the pain, tightness and general uncomfortable feelings last after having a transplant? I know I’ve added to my malaise by developing an infection where my gallbladder used to be (removed during the transplant) but the pain is still bad
A question, and I know that everyone is different. How long does the pain, tightness and general uncomfortable feelings last after having a transplant? I know I’ve added to my malaise by developing an infection where my gallbladder used to be (removed during the transplant) but the pain is still bad
Braveheart65
in
British Liver Trust
4 years ago
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