I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis.
I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges and I am working full time in a job I started just under a year ago. I don’t suffer with fatigue and have had no infection or illness for nearly 18 months. My childhood inoculations are all up to date.
Anyone considering a stem cell transplant, there really are positive experiences out there.
Written by
KAS8
To view profiles and participate in discussions please or .
That's brilliant news amd I'm glad you posted I often wonder how you are getting on ,as you may know I went down the ibrutinib route around the same time as you started your journey and I also am in remission and compleaty fine although I still have to take pills every day and have acid reflux .
SCT is probably my next call my consultant said it will be veneticlax as a pathway to STC if my ibrutinib fails but of course that could change in a developing landscape .
I'm so pleased for you and thanks for keeping us all informed x
Sounds like you are doing really well. I am glad that the SCT came early on as I was young and fit enough to deal with it. My concern about long term Ibrutinib would be the potential impact on the heart as I have seen others have issues. One of the main checks pre SCT was the heart to ensure it was robust enough to handle the treatment. Perhaps worth asking your consultants.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.