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Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
Jaw spasm & neck muscle problems?
He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post
stem
cell
transplant
. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving difficult to diagnose.
He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post
stem
cell
transplant
. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving difficult to diagnose.
AnnW22
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
anyone living in Singapore/india post kidney transplant ?
hi, I currently live in the US and had a kidney transplant in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there. if any of you or anyone you know is in
hi, I currently live in the US and had a kidney transplant in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there. if any of you or anyone you know is in
Hidden
in
Kidney Transplant
2 years ago
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Sudden Lymph Node Enlargement
The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go down the road of full chemo and
stem
cell
transplant
if I have advanced to Richters.
The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go down the road of full chemo and
stem
cell
transplant
if I have advanced to Richters.
StrengthHopeLove
in
CLL Support
2 years ago
best Cereal options / veg breakfast options in US for a kidney transplant patient?
hey im 24 years old. I had undergone transplantation on feb'21. I'll be moving to Florida next month. Can you suggest me good breakfast options/cereal options
hey im 24 years old. I had undergone transplantation on feb'21. I'll be moving to Florida next month. Can you suggest me good breakfast options/cereal options
PatientWhizbang
in
Kidney Transplant
2 years ago
can I go abroad for studies after a kidney transplant
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
sanath
in
Kidney Transplant
2 years ago
WARWICK's Latest Update on his POST ASCT journey thus far...
:D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic
Stem
Cell
Transplant
(ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/ quite a few twists & turns...
:D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic
Stem
Cell
Transplant
(ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/ quite a few twists & turns...
socrates_8
in
MPN Voice
2 years ago
Coping with Pediatric Kidney Disease
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
will these hot flashes ever end ?
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Mofred
in
PMRGCAuk
2 years ago
The Constitution of Medical Knowledge (Part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Next-level Dose Given in Trial of Stem Cell Therapy for Bradykinesia
The therapy involves a procedure called an allogeneic
stem
cell
transplant
. During the procedure, a patient receives mesenchymal
stem
cells from a healthy donor to replace their own stem cells. This is done via a one-time intravenous (into-the-vein) infusion.
The therapy involves a procedure called an allogeneic
stem
cell
transplant
. During the procedure, a patient receives mesenchymal
stem
cells from a healthy donor to replace their own stem cells. This is done via a one-time intravenous (into-the-vein) infusion.
Hidden
in
Cure Parkinson's
2 years ago
Candy girl
liver transplant the effects on family
liver transplant the effects on family
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Candy girl 👧
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
Gallbladder issues
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
Ziggydoodah
in
Kidney Disease
2 years ago
Follow up on my liver cancer HCC
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Officially on the lung transplant waiting list
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Life insurance
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Kidney2014
in
Kidney Transplant
2 years ago
Fluid around liver post transplant
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Craftynan
in
British Liver Trust
2 years ago
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