Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery.
Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews. They also suggested a Y-90 or possible ablation . Over the last 6 months every treatment suggested had to be stopped because new tumors kept popping up. Very aggressive. The Drs were baffled by the progression and thought it may be bile duct cancer. So they scheduled another surgery this past june. During the surgery new tumors were found but was confirmed as HCC.
Due to this I was taken off of the transplant list because of the aggressive nature. The Y-90 was a failure and I am now left with immunotherapy. I have my second treatment next week .
To say the least it’s been really difficult going in all these changes in a short period of time. I can only hope that the immunotherapy works.
Oh gosh, that really is a lot to deal with - so many ups and downs and the emotions that come with it.
My husband was never able to have immunotherapy (he would have had issues with graft vs host disease, since he'd had a bone marrow transplant in 1993) but I've heard of others having great results with it. I really hope the same is true for you.
Keeping you in my prayers and, as always, sending positive vibes your way!
Wendy (in Michigan)