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2nd half-dose Ocrevus Infusion Completed
As many of you following Ocrevus news and experiences are aware, the first 600 mg. dose of Ocrevus (ocrelizumab) is divided into two half-doses spaced two weeks apart. I posted earlier about my first infusion ("Ocrevus - Tomorrow's the Day"), and yesterday I completed the second infusion installment.
As many of you following Ocrevus news and experiences are aware, the first 600 mg. dose of Ocrevus (ocrelizumab) is divided into two half-doses spaced two weeks apart. I posted earlier about my first infusion ("Ocrevus - Tomorrow's the Day"), and yesterday I completed the second infusion installment.
dianekjs
in
My MSAA Community
7 years ago
Severely dry eyes
Anyone else suffering from dry eyes? Been told I have blepharitis which can only be managed. . Washing eye line with baby shampoo, have hylo forte drops and vitA pos ointment for night time.. anyone got any good tips?? I also constantly wear wraparound sunglasseswhen outside ( look a bit of a div in
Anyone else suffering from dry eyes? Been told I have blepharitis which can only be managed. . Washing eye line with baby shampoo, have hylo forte drops and vitA pos ointment for night time.. anyone got any good tips?? I also constantly wear wraparound sunglasseswhen outside ( look a bit of a div in
Linny17
in
Thyroid UK
7 years ago
RA etc
Hi I am suffering from Rheumatoid Arthritis and side affects. A frustrating problem at the moment is dry sore eyes, HYLO Forte makes them sting.
Hi I am suffering from Rheumatoid Arthritis and side affects. A frustrating problem at the moment is dry sore eyes, HYLO Forte makes them sting.
RichardTH
in
Thyroid UK
7 years ago
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150 mg Pradaxa vs 75mg
I have been taking 75mg Pradaxa twice a day since I was diagnosed with A Fib 2 years ago and at my yearly check up with my EP he said I should be on 150mg instead. He said I should have been on 150 and that 75 was not enough. I questioned this as I don't like being on NOAC anyway and now on double the
I have been taking 75mg Pradaxa twice a day since I was diagnosed with A Fib 2 years ago and at my yearly check up with my EP he said I should be on 150mg instead. He said I should have been on 150 and that 75 was not enough. I questioned this as I don't like being on NOAC anyway and now on double the
Flaka
in
AF Association
7 years ago
Prednisone 20 mg raising my need for more blood pressure med in addition to beta blocker.
I have PMR and probably GCA. Seeing doc second time on completion of diagnosis and med assessment today. Althouogh I do a salt free, heart healthy diet and am a lightweight female I have developed HBP around a couple of years ago when this above disease must of started. I did have angina for last
I have PMR and probably GCA. Seeing doc second time on completion of diagnosis and med assessment today. Althouogh I do a salt free, heart healthy diet and am a lightweight female I have developed HBP around a couple of years ago when this above disease must of started. I did have angina for last
Aleish
in
PMRGCAuk
7 years ago
Just ended day 3 of Solumedrol
I hated to do it, but I've spent the last 3 days getting IV steroids from Home Health Care. The exacerbation hadn't gotten too bad yet, but it was spreading and the neuro wanted to nit it in the bud. The worst part of the steroids for me is the sleep disturbance. I've been up and down at night, sleeping
I hated to do it, but I've spent the last 3 days getting IV steroids from Home Health Care. The exacerbation hadn't gotten too bad yet, but it was spreading and the neuro wanted to nit it in the bud. The worst part of the steroids for me is the sleep disturbance. I've been up and down at night, sleeping
Iona60
in
My MSAA Community
7 years ago
Does Flu and Colds makes the platelet count drops to low level?
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
DavieSimon
in
ITP Support Association
7 years ago
Blurred vision
My gp diagnosed me with Sjogrens in January after seeing a Dr in the UK while visiting my parents last year, he suggested I visit my gp & mention this when got home, however because my bloods didn't show anything the Rheumatologist would only diagnose sicca ( never mind Mt tooth that snapped off) so
My gp diagnosed me with Sjogrens in January after seeing a Dr in the UK while visiting my parents last year, he suggested I visit my gp & mention this when got home, however because my bloods didn't show anything the Rheumatologist would only diagnose sicca ( never mind Mt tooth that snapped off) so
Persiankiwi
in
The Australian Sjögren's Syndrome Association
7 years ago
CT3M
I know members here have used the CT3M method successfully, and I'd love to hear about your experiences. I managed to wean myself off Medrol (prescribed for adrenal fatigue in late 2011) about a year ago. HC never worked for me as it metabolised too quickly. I was diagnosed with adrenal fatigue based
I know members here have used the CT3M method successfully, and I'd love to hear about your experiences. I managed to wean myself off Medrol (prescribed for adrenal fatigue in late 2011) about a year ago. HC never worked for me as it metabolised too quickly. I was diagnosed with adrenal fatigue based
Hidden
in
Thyroid UK
7 years ago
Addisons emergency injection from gp or other sources
Solu
cortef
100ml. I'm fully diagnosed with the disease and supply my own b12 Methylcobalamin injections, cortef h.c and foricot. I'm going to see a new gp next week to register my private test results and Addisons so they have that info for an emergency.
Solu
cortef
100ml. I'm fully diagnosed with the disease and supply my own b12 Methylcobalamin injections, cortef h.c and foricot. I'm going to see a new gp next week to register my private test results and Addisons so they have that info for an emergency.
kellykell
in
Thyroid UK
8 years ago
synthetic corticosteroid
Solumedrol IV treatment- people are willing to use a synthetic corticosteroid when turmeric or frankincense oil or extreme high doses of Vitamin D3 can help, curious as to the why's?
Solumedrol IV treatment- people are willing to use a synthetic corticosteroid when turmeric or frankincense oil or extreme high doses of Vitamin D3 can help, curious as to the why's?
Fuzzman
in
My MSAA Community
8 years ago
What a laugh! Any one else been badly treated?
So after some 20 years of jumping through the NHS hoops to get a diagnosis and being badly let down, then going private to find that I did have limes disease and anaemia that the doctors didn't pick up from my tests. CD 57 range is 130 to 300 my results were -11! That's another story!! Last September
So after some 20 years of jumping through the NHS hoops to get a diagnosis and being badly let down, then going private to find that I did have limes disease and anaemia that the doctors didn't pick up from my tests. CD 57 range is 130 to 300 my results were -11! That's another story!! Last September
kellykell
in
Thyroid UK
8 years ago
Acupoints Massage Therapy For PPMS
For years I tried to reach out for PPMS patients like me. Since 1995, I was diagnosed with Fibromyalgia and IBS. In year 2000, I was confirmed with Spinal Cord MS. Injections and oral medications (except Elavil) did not slow down my progression. In 2011, I was in the hospital and came home in wheelchair
For years I tried to reach out for PPMS patients like me. Since 1995, I was diagnosed with Fibromyalgia and IBS. In year 2000, I was confirmed with Spinal Cord MS. Injections and oral medications (except Elavil) did not slow down my progression. In 2011, I was in the hospital and came home in wheelchair
yuehmei56
in
My MSAA Community
8 years ago
Solumedrol
I'm on to second of five Solumedrol iv treatment. I'm a paraplegic fighting to save my upper body. Right side ok but left is numb, tingling and plain dumb sometimes.
I'm on to second of five Solumedrol iv treatment. I'm a paraplegic fighting to save my upper body. Right side ok but left is numb, tingling and plain dumb sometimes.
karenmbloom
in
My MSAA Community
8 years ago
This will get the star for brainfog for sure.
If it wasn't true, it might even be funny. 😏 But when I share these things it helps me realize they are not as desperate as it feels. As you know, I've been on the steroids for about 14 mos. I take methylprednilosone which is not prednisone proper, but it is medrol, or solumedrol.... same kind of side
If it wasn't true, it might even be funny. 😏 But when I share these things it helps me realize they are not as desperate as it feels. As you know, I've been on the steroids for about 14 mos. I take methylprednilosone which is not prednisone proper, but it is medrol, or solumedrol.... same kind of side
Zacsmimi
in
PMRGCAuk
8 years ago
Hrt advice needed
I am hoping someone will be able to help. After a hysterectomy 14 months ago I find myself nearly back in the position I was before the operation. I was put on Elleste solo 1mg as I'm only 41 and had a full abdominal hysterectomy. Anyway I have been back at the doctors as the extreme fatigue, abdominal
I am hoping someone will be able to help. After a hysterectomy 14 months ago I find myself nearly back in the position I was before the operation. I was put on Elleste solo 1mg as I'm only 41 and had a full abdominal hysterectomy. Anyway I have been back at the doctors as the extreme fatigue, abdominal
0702claire
in
Endometriosis UK
8 years ago
Horrendous Mirtazapine withdrawal
Hi! I am new here and going through a horrendous Mirtazapine withdrawal. I have just completed a very long Seroquel withdrawal (am now on day 77 of being totally off) and am now starting 2 slow taper from 15 mg. per day of Mirtazapine. I have been on an off this poison 4 several years and as I am
Hi! I am new here and going through a horrendous Mirtazapine withdrawal. I have just completed a very long Seroquel withdrawal (am now on day 77 of being totally off) and am now starting 2 slow taper from 15 mg. per day of Mirtazapine. I have been on an off this poison 4 several years and as I am
Teddy2580
in
Anxiety Support
8 years ago
Length of relapse
I'm starting to get a little concerned about the relapse that I am currently having. Although I have seen slight improvement, and most of my energy has returned, I'm still not back to my "normal". It has been close to a month when my symptoms first started, and two weeks since I've been off solumedrol
I'm starting to get a little concerned about the relapse that I am currently having. Although I have seen slight improvement, and most of my energy has returned, I'm still not back to my "normal". It has been close to a month when my symptoms first started, and two weeks since I've been off solumedrol
Sadieschafer
in
My MSAA Community
8 years ago
Bottle tops 😟
Does anyone else have difficulty getting the lid off hylo-forte eye drops? I cant seem to be able to grip it properly!!
Does anyone else have difficulty getting the lid off hylo-forte eye drops? I cant seem to be able to grip it properly!!
weathervane
in
LUPUS UK
8 years ago
Sleep apnea and afib
I have severe sleep apnea, congestive heart failure, and Vicky tachy(?). Could sleep apnoea cause these problems? I have notice when I can't sleep, I go into afib. Currently on coreg, lasix,tykosyn, pip metoprol.
I have severe sleep apnea, congestive heart failure, and Vicky tachy(?). Could sleep apnoea cause these problems? I have notice when I can't sleep, I go into afib. Currently on coreg, lasix,tykosyn, pip metoprol.
peaches0716
in
AF Association
8 years ago
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