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Help....
Has anyone returned to normal walking after lots of weakness and numbness in both legs? I have had weakness and numbness/stiffness even after solumedrol. I'm afraid I may never return....😢
Has anyone returned to normal walking after lots of weakness and numbness in both legs? I have had weakness and numbness/stiffness even after solumedrol. I'm afraid I may never return....😢
Sadieschafer
in
My MSAA Community
8 years ago
Solumedrol
I am so thankful for the support I am feeling from everyone on here. I have been in the hospital for about 4 days on a solumedrol iv. I am still having numbness, tingling, weakness in the legs. I know everyone is different, but if anyone is willing to share their experiences with this, I would greatly
I am so thankful for the support I am feeling from everyone on here. I have been in the hospital for about 4 days on a solumedrol iv. I am still having numbness, tingling, weakness in the legs. I know everyone is different, but if anyone is willing to share their experiences with this, I would greatly
Sadieschafer
in
My MSAA Community
8 years ago
RHS facial paralysis since Decembhe - the longer it lasts the less likely it will go?
I had RHS on the 16 December and the left hand side of my face is still very paralyzed. My eye shuts now but doesn't blink and i find i have to tape it shut in the day sometimes as it gets sore even with the hylo forte eye drops. i have a referral to the facial nerve clinic but there is a long waiting
I had RHS on the 16 December and the left hand side of my face is still very paralyzed. My eye shuts now but doesn't blink and i find i have to tape it shut in the day sometimes as it gets sore even with the hylo forte eye drops. i have a referral to the facial nerve clinic but there is a long waiting
claudine-g
in
Facial Palsy UK
8 years ago
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Do these really work
Ok so saw optometrist who agree with GP that my dry eyes is down to tear production not oil glands. Recommended Thera tears capsules, vita-pod ointment, lid wipes, heatnask & covers & hylo-forte drops to a tune of $170 but hylo-forte doing nothing can still feel my eyelids sticking occasionally, I seemed
Ok so saw optometrist who agree with GP that my dry eyes is down to tear production not oil glands. Recommended Thera tears capsules, vita-pod ointment, lid wipes, heatnask & covers & hylo-forte drops to a tune of $170 but hylo-forte doing nothing can still feel my eyelids sticking occasionally, I seemed
Persiankiwi
in
The Australian Sjögren's Syndrome Association
8 years ago
Update on So sick and tired.
I saw my MS Dr on Monday. I absolutely love my Dr. He is so kind and caring, honest and thorough. I just don't like the drive, 47 miles each way. I picked up all my MRI's I have had since the summer. He looked at all of them. He was totally shocked with how fast the progression is. Up until recently,
I saw my MS Dr on Monday. I absolutely love my Dr. He is so kind and caring, honest and thorough. I just don't like the drive, 47 miles each way. I picked up all my MRI's I have had since the summer. He looked at all of them. He was totally shocked with how fast the progression is. Up until recently,
dar58
in
My MSAA Community
8 years ago
So sick and tired
I am sorry I haven't been on in a while. I have been in either the hospital or nursing home/rehabs mor than I can count since early summer. I live in a small rural community and our local hospital does not have a neuro dept. Everytime something goes wrong they pagkage me up and send me to Hartford Hospital
I am sorry I haven't been on in a while. I have been in either the hospital or nursing home/rehabs mor than I can count since early summer. I live in a small rural community and our local hospital does not have a neuro dept. Everytime something goes wrong they pagkage me up and send me to Hartford Hospital
dar58
in
My MSAA Community
8 years ago
Leflunomide Arava
Hi I would like to know how Robert17 and others feel with taking now for a few months this DMARD and what experience did you have. What about side effects? I have had PMR/GCA for over 2 years. In August I was at 6mg Predisone. Since then I am again at 10mg and the blood tests are not so good. At 6mg
Hi I would like to know how Robert17 and others feel with taking now for a few months this DMARD and what experience did you have. What about side effects? I have had PMR/GCA for over 2 years. In August I was at 6mg Predisone. Since then I am again at 10mg and the blood tests are not so good. At 6mg
Orchid47
in
PMRGCAuk
8 years ago
Solumedrol for optic neuritis
Gradual blurry vision with far vision. Optometrist unable to correct vision with glasses. Retinologist says very healthy retina. Sent records to neurologist. Message from neurologist - chronic optic neuritis. yesterday completed 3 days of sterioid IV infusuions with very little improvement. Will
Gradual blurry vision with far vision. Optometrist unable to correct vision with glasses. Retinologist says very healthy retina. Sent records to neurologist. Message from neurologist - chronic optic neuritis. yesterday completed 3 days of sterioid IV infusuions with very little improvement. Will
Vinagirl
in
My MSAA Community
8 years ago
Hi y'all! I'm Katie from Texas...
So happy to be a part of this amazing group! I was dxd w/ RRMS in June 04. I currently take Copaxone to help manage the disease. I'm a General Manager for a major clothing retailer. Overall I've been able to handle working but have had a few times that I've needed STD. The last couple of years in the
So happy to be a part of this amazing group! I was dxd w/ RRMS in June 04. I currently take Copaxone to help manage the disease. I'm a General Manager for a major clothing retailer. Overall I've been able to handle working but have had a few times that I've needed STD. The last couple of years in the
meowmix915
in
My MSAA Community
8 years ago
HI, I'M BACK!
Hi, everyone. I have been off-line for a few weeks because the nerve pain I had been experiencing took over my life. Every time that someone touched my right palm, inner elbow, or shoulder, my back arched up like a cat and I felt as if I was being stabbed with knives from my shoulders to my fingers
Hi, everyone. I have been off-line for a few weeks because the nerve pain I had been experiencing took over my life. Every time that someone touched my right palm, inner elbow, or shoulder, my back arched up like a cat and I felt as if I was being stabbed with knives from my shoulders to my fingers
Sukie427
in
My MSAA Community
8 years ago
Pain on T3! Iron is good. Cortef?
I am on 17mcg/3x daily. My joint and muscle pain is getting unbearable. I'm thinking its better to just quit meds and go back to treating this naturally with vitamins and good food. I have below range cortisol at all times of the day. Should I try Cortef next? Has anyone quit and treated naturally?
I am on 17mcg/3x daily. My joint and muscle pain is getting unbearable. I'm thinking its better to just quit meds and go back to treating this naturally with vitamins and good food. I have below range cortisol at all times of the day. Should I try Cortef next? Has anyone quit and treated naturally?
TJC123
in
Thyroid UK
8 years ago
I need a PM for source
Does anyone know of a source that takes credit cards that sells T3 and Cortef (hydrocortisone)? Thank you.
Does anyone know of a source that takes credit cards that sells T3 and Cortef (hydrocortisone)? Thank you.
TJC123
in
Thyroid UK
8 years ago
Private blood results.... Help
I have just received my blood results very quick service it went in the post yesterday and I have just received the results. I only started taking the levothyroxine today 50mcg I also taking HRT Elleste solo 2mg a day Venlaflaxine 37.5 mg a day. I am getting slightly worried about all of this now...
I have just received my blood results very quick service it went in the post yesterday and I have just received the results. I only started taking the levothyroxine today 50mcg I also taking HRT Elleste solo 2mg a day Venlaflaxine 37.5 mg a day. I am getting slightly worried about all of this now...
Purple80
in
Thyroid UK
8 years ago
Can anyone help with cortef or a generic HC supplier ?
Dear all A well known online pharmacy no longer takes credit card online. I have spoken to them and they told me that one of the Big pharma group have basically bribed Visa and MasterCard not to allow payment to their site (through lobbying). I would appreciate any sources that are reliable by PM to
Dear all A well known online pharmacy no longer takes credit card online. I have spoken to them and they told me that one of the Big pharma group have basically bribed Visa and MasterCard not to allow payment to their site (through lobbying). I would appreciate any sources that are reliable by PM to
stuartwwhouse
in
Thyroid UK
8 years ago
T3 dosages - Input please
I can not take any form of T4 or NDT as I cant convert. For 10 years I have been on T3 only but housebound. I was told UP UP UP and that you needed to be on large amounts of T3. I also take Cortef. Last year I was on 56.25 taken the following - I have Hashimotos that flares all the time 7am 31.25mcg
I can not take any form of T4 or NDT as I cant convert. For 10 years I have been on T3 only but housebound. I was told UP UP UP and that you needed to be on large amounts of T3. I also take Cortef. Last year I was on 56.25 taken the following - I have Hashimotos that flares all the time 7am 31.25mcg
riannabri
in
Thyroid UK
8 years ago
Solu-Medrol
I have been in the bed sick for days and just couldn't seem to get over it so I decided to take my emergency injection of solu-Medrol (125 mg ). I have carried the medicine around for years but never taken it. I could barely move my legs from the waist down. I was ready to try anything to get rid of
I have been in the bed sick for days and just couldn't seem to get over it so I decided to take my emergency injection of solu-Medrol (125 mg ). I have carried the medicine around for years but never taken it. I could barely move my legs from the waist down. I was ready to try anything to get rid of
Pine_Knot
in
AMN EASIER
8 years ago
Responding poorly to cortisol therapy/hydrocortisone
An adrenal test taken a few months ago indicated moderately low cortisol output throughout the day, however my symptoms have been relatively bad. I wake up groggy and tired, get hypoglycemic reactions after a high protein breakfast, cannot exercise, I have rapidly gained weight and my cognition is impaired
An adrenal test taken a few months ago indicated moderately low cortisol output throughout the day, however my symptoms have been relatively bad. I wake up groggy and tired, get hypoglycemic reactions after a high protein breakfast, cannot exercise, I have rapidly gained weight and my cognition is impaired
mikee5
in
Thyroid UK
8 years ago
Short synacthen for adrenals
Hello, has anyone had this test? I would really appreciate some feedback and advice as I am becoming increasingly anxious about having it on Thursday. I do struggle with any sort of stress. I have had 2 low morning cortisol blood test results instigated by myself, one with Blue Horizons, now the NHS
Hello, has anyone had this test? I would really appreciate some feedback and advice as I am becoming increasingly anxious about having it on Thursday. I do struggle with any sort of stress. I have had 2 low morning cortisol blood test results instigated by myself, one with Blue Horizons, now the NHS
punch54
in
Thyroid UK
9 years ago
Letter from GP regarding Hylo-Forte
Well what a ridiculous letter I received from my GP practice yesterday. One of my regular prescriptions - Hylo-Forte 2% eye drops Preservative Free ( prescribed by the top Ophthalmologist at my local hospital regarding the importance of protecting both my corneas - for life) has now been substituted
Well what a ridiculous letter I received from my GP practice yesterday. One of my regular prescriptions - Hylo-Forte 2% eye drops Preservative Free ( prescribed by the top Ophthalmologist at my local hospital regarding the importance of protecting both my corneas - for life) has now been substituted
bestbuddy
in
LUPUS UK
9 years ago
Quick update - Hysterectomy for me
I have had my gynae appointment and been given a 4 week course of Synarel nasal spray alongside an HRT pill, Elleste Solo. I have bled the whole time I have been taking the nasal spray and since the four weeks were up (3 days ago) I have heavy bleeding and horrible period pains, I had no other symptoms
I have had my gynae appointment and been given a 4 week course of Synarel nasal spray alongside an HRT pill, Elleste Solo. I have bled the whole time I have been taking the nasal spray and since the four weeks were up (3 days ago) I have heavy bleeding and horrible period pains, I had no other symptoms
jennies
in
Endometriosis UK
9 years ago
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