Just ended day 3 of Solumedrol

I hated to do it, but I've spent the last 3 days getting IV steroids from Home Health Care. The exacerbation hadn't gotten too bad yet, but it was spreading and the neuro wanted to nit it in the bud. The worst part of the steroids for me is the sleep disturbance. I've been up and down at night, sleeping 2 hours, waking 2 to 3 hours, then sleeping 2 to 3 more. Not sure how long this will last.

I'm feeling much better.

18 Replies

  • Iona60 i know you had mentioned symptoms worsening--so sorry, but glad you are starting to feel better! Is day 3 the last day? Hope you have some good audio books to get you thru the nite.

  • Sorry about the sleep issues, Iona60. I was hoping that wouldn't be a problem this go-around. How about your symptoms? Even better today? I hope so. Praying you get some sleep tonight and even more symptom relief as the days wear on. Pace yourself. I know you've been doing a lot. 💞

  • What does the solumedrol do for you Iona60. Sorry your going through a rough patch again, blessings Jimeka 🦋 🌈

  • jimeka It slows down the inflammation causing less overall damage. I think.

  • I'm glad you are feeling much better Iona60. The only IV steriods I've had were during my first 3 doses of Tysabri to keep any reaction minimized. Those doses weren't at the level that you must be getting to tame a flareup. I've heard they are difficult. I hope you start getting decent sleep soon.

  • when I was on solumedrol loved it. I walked almost normally and got so much done.

  • Iggyvair Today I have a leftover energy boost. Sometimes it doesn't give me any extra energy at all. I guess it just depends on how far along the exacerbation is.

  • So sorry! I hope the steroids help and that you feel better.

  • So sorry you had to go through the steroids, Iona60. I always broke out in a terrible steroid rash. Plus not sleeping.

    I'm glad you feeling better.

  • Feeling much better today. Thanks.

  • Glad you're feeling better!😁

  • Iona60, I'm praying the Solumedrol does a great job in reducing your your relapse time and symptoms, but that you also get some sleep.

  • greaterexp Got a little more sleep last night and am enjoying an energy boost today. Thanks.

  • Hurrah! Great news!

  • I'm so sorry you had to do take the steroids again but very glad that you may be feeling better soon <3

  • Iona60 so happy to hear you doing better! We can't wait to see more pictures!😊

    J 🌠

  • Iona60 Sorry to hear you had to have steroids but glad you are starting to feel a little better. It has been years since I have had to have them but it seemed I was going almost every 6 months for them after I was first diagnosed in 2006. The first time I had lots of energy to get cleaning and things done. The second time I had them I was tired a lot. Guess each time it can be different.


  • bxrmom I'm the same way. As they are sugar based, I think they make my insulin levels go up sometimes and I get tired instead of energy. I'm enjoying the energy today.

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