So after some 20 years of jumping through the NHS hoops to get a diagnosis and being badly let down, then going private to find that I did have limes disease and anaemia that the doctors didn't pick up from my tests. CD 57 range is 130 to 300 my results were -11! That's another story!!
Last September I had a cortisol saliva test which came back with very low cortisol readings, I have Skype consultations with a doctor in America, who advises what tests to have and then reads and treats from my symptoms and test results. This lead to the diagnosis of adrenal insufficiency and treatment began with hydrocortisone. I have now had three cortisol saliva tests, and the results have always shown a low cortisol reading therefore the dose was adjusted to suit my symptoms and readings again.
This means that I have to source and fund my own hydrocortisone supply, which I have successfully done so. I use Pfizer cortef.
So having some other medical issues and the need for a chest x-ray, I registered with my local GP ( after not seeing a go for 9 years) and ask for an emergency injection of hydrocortisone, as the guidelines state that anybody who is steroid dependent ( that could be for a multitude of reasons) needs an emergency injection as a life-saving practice . My GP won't issue an emergency injection. I wrote to her stating nice guidelines and Addison support papers too. She contacted Endro as still waiting for an appointment . He said I could be taking sugar coated pills so can I take my meds into the surgery pharmacy for them to check they are hc tablets!
As if I would just buy any old meds. These are sealed and from a well known online supplier used by many people on here! I find it difficult to take this on board! I will go next week a let the pharmacy see and open a new bottle!
I also stated I was off to work travel and climb in remote north Wales hence the urgency for an injection pack... I was told that was my choice and I should cancel my trip!
The GP did say that NHS would be adopting the salvia tests as they are more accurate than the current blood tests used by the NHS.
Why oh why are there so many horror stories about poor treatment from medical service providers? This is why I went privately because of misdiagnosis and lack of treatment .
Let's see what happens next week after my sugar pills have been checked!
Have a great weekend